Fibromyalgia pain: Let's connect

I have not found anything that is super helpful. I am very interested to see what others post!

Hello, Sundance6. Yes, that the brand name. I only take the brand....don't know if it has been released as generic yet. Sounds like you and your PCP are on the right track working together. Stay safe and do well on this what is a wonder drug for me. Let us know how you do! Blessings, Elizabeth

Thank You Elizabeth! I will do that! Had blood work don yesterday and nothing special blood work. I've also spent three days hunting down a person who does Myofascial Release Therapy. Hope the most recent referal I got from one Therapist will turn out to be good! Contacting her in the morning, Saturday!
Have a Wonderful Weekend and Support!
From the Land of enchantment!
Sundance(RB)

rossjt, as I said below, I have finally after three days of searching may have found someone who will do Myofascial Release Therapy. Going to try and contact her tomorrow, Saturday.
I'm holding your email open and I will let you know what I find out!
Have a Great Weekend!
We're expecting snow tomorrow. We;ve been so dry this winter.
Sundance(RB)

@sundance(RB)
Hi Richard, I was scanning through this discussion and in this post and the next one (by @grandmar ) you both mention FBS. Is this a reference to fibromyalgia? When I search for FBS I come up with an illness called Fanconi-Bickel Syndrome (a new one to me and sounds pretty rare). Sorry, just trying to clarify which you are referring to.

I also have seen that you are looking to try myofascial release. I have not tried it but a lot of people on Connect (and I mean a lot) say it is very effective.There is also a discussion about it started by Jennifer Hunter. Link is here:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/?utm_campaign=search
Good luck with it. Best to you, Hank

Hank, Yes it is Fibromyalgia! I see it refered to with those letters. I appreciate the link to the discussion. After three days of looking I have finally found someone who is farmiliar with both Lyme and Fibromyalgia in ABQ. Talked to her briefley this morning, Saturday! She knows our medical system I am on! She also asked me about possibly Mold Exposure! Which I have thought about before but never found how to get tested! She and I are going to have a conultation visit next Thursday!
Will keep you posted!
From The Land of Enchantment!
Sundance(RB)
PS, Again, You are such a helpful and considerate person to have on MayoConect!

I have been considering myofascial release massage, but haven't due to COVID. I am pleased to see so many have found relief with this technique! I think I will call the local massage therapist and see if she does myofascial release...I think (hope) she does! Mayo Connect is such a great resource; not only in knowing there are others who suffer like I do, but to learn of treatment modalities that might help! Would you please post your findings on mold exposure? I would be really interested to learn how it might relate or impact fibromyalgia. Thanks again and I wish everyone well!

rossjt, I finally found someone who is trained in Myofascial Release! She is both farmiliar with not only Fibromyalgia, Lyme Disease and Mold Toxicity! Meating with here this coming Thursday! Will keep you posted!
Sundance(RB)

Elavil is no longer on the market and Amitriptyline is and since it is an old drug, it’s way cheaper. I was just prescribed this but uneasy about taking it because I have tried so many other stuff that did nothing but make me worse. Norco, not an option in Florida due to the opioid epidemic and that was the only thing that gave me a better quality of life. CBD, lyrics, cymbalta, and about 20 other anti depressants,muscle relaxer,etc did nothing. My depression and pain is at the worst now and mood shifts and triggers that cause me to become so angry that they can be explosive. Doctor said he wanted me to take these to help my pain,depression and insomnia etc. I am tired of meds and already take lunesta to sleep but pain prevents quality of what sleep I do get. Virus makes things harder because what if I have a reaction and there is no help then what. I pray for God to tell me what to do. It might be be the one that works but then again I did try it in 2017 and I felt like I had a hangover the next day and felt crappy. Then again the multiple doctors had me on so many different drugs, I don’t know if it was that or combination of the hundreds of things going wrong in my body that was dismissed and every time I saw someone I was told to take this or that drug instead of getting to the root issues. Curious if anyone with fibro, ptsd, depression, nerve damage, spinal stenosis,peripheral nerve damage etc had good results. Thx

I have taken Amitripyline for YEARS and couldn't live or sleep without it. I have Firbro and was prescribed that. I take it about 7:30p., and go to sleep about two hours later. If I take it too late, I am a little groggy in the morning. I too have serious back pain and have Tramadol but it does absolutely nothing for pain. I just a percoset that I had left over from dental surgery and it worked for about six hours. I know no one will probably write an Rx for that. I wish pain doctors had chronic pain~~maybe things would change.