Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

I have had long Covid for 20 months and I've had progressive neuropathy or muscle weakening and I've been to five neurologist we have nothing to say about it. I can't do any of the activities you do. Everyone is different I'm very surprised your clinic said you were the only person who had this. My doctor has tested me for mold sensitivity which would be no and I came up positive not strongly but there you go and has put me on two meds one is called ACS nasal spray. We'll see what happens. This is also accompanied by Brain fog and a few other goodies. I also had they Covid booster a month ago and I think that is contributing to my problems.

I, too, have suffered from what I have come to understand as Post Exertional Malaise (what a mild term for what it does to us) PEM for short.
Check out the Bateman Horne Center on (free) YouTube. You'll see that you are not alone and there are professionals who believe you and who have some answers.
Getting better is not 'black and white' - our bodies are amazing and complex. We have to be our own advocate and there is a lot to learn. I'm a female; 82 years old; and 4 years post-covid. I'm much better than I was 2 or 3 years ago. It does take time and it is a process.
I see recovery as a 3-legged stool: #1 Nutrition/Supplementation #2 Lifestyle Change #3 Meditation and Brain Training
You can also glean a lot of information from the (free) YouTube site of Raelan Agle and the free YouTube site of Gemma at Healing Gems.
My best to you.

I will check them out, thank you very much!

To mspaminreno —

Thank you for your detailed comments about you (age) and your long experience of PEM. And for the resource references and your 3-factor approach to recovery.

I’m 75, and I’m encouraged when I read about the high pre-Covid activity levels of people who are 70-90 years old, and their active approaches to dealing with the limitations now imposed by LC.

— friedrich

Have you tried increasing your protein consumption?

To @tatjohnsHope you do not take my comment negatively. I have long covid documented by 2 long covid clinic since nov. 2023. I have lost 55#'s much of it due to muscle atrophy. Have P.E.M. of course plus an atrophied pancreas now treated by digestive enzymes. My long covid doctor, whom i trust greatly states she has never seen, in 4 years such muscle atrophy. She is referring me to a neurologist. I lift weights by not nearly with the results prior to covid. I am glad to find someone with my particular muscle atrophy problem. giving me more hope I can fight it more successfully. hope you doing better @tatjohns.

@catfishgrazis44 the muscle atrophy is progressing, and I am not able to build muscle at all with weight training. Just when I think I can't lose more muscle, I do. I've tried everything, including physical therapy. I also have brain fog and have developed sleep apnea and asthma after the covid infection 2.5 years ago. I don't know how this happened, but I have mitochondrial dysfunction from the virus, it somehow has altered my body at a cellular level. It is devastating, I am so depressed.

Wow, I never gave it a thought there was any correlation between long Covid-19 and developing COPD, sleep apnea, asthma and muscle atrophy progression. None of my care givers even suggested any of it was possible. (I guess they still do not know a lot about long covid's effects)
One additional item, I contracted a severe case of covid on 8 December 2020 and since then, I have been slowly developing all of the above issues. I might add that when I contracted double lung pneumonia covid, I had quit smoking 29 years earlier and had no issues with breathing until I went into a pulmonologist and was diagnosed with COPD.

I am 71 and have been noticing that
I have been getting muscle wasting not from long covid, but from diabetes. I have had diabetes for 35 years. Noticed my muscles are disapearing. I have neuropathy, this
Has me concerned.

I had COVID March of 202 and have had quite a bit of muscle wasting since then. I am exercise malaise so have to take it really easy with the weight lifting but am going to try again to see if I can still build muscle.