Holidays: Celebration or Challenge for Transplant Families

Posted by Rosemary, Volunteer Mentor @rosemarya, Nov 18, 2022

Holiday celebrations and festivities can be a challenge for transplant patients and their families. The twinkling lights and music are everywhere enticing us to get out to shop and celebrate. Soon, we will be receiving invitations to family and social gatherings with all of the special foods and beverages. It is no wonder that some of us approach the holidays with trepidation about a season that is supposed to bring joy and cheer.
How will you navigate the holidays? What are your plans?

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@chickytina

I had my double lung transplant May 2022. I will be traveling for the holidays. The first thing I do is to wear my mask all the time unless I can find a place away from everyone else (not easy to do) or if I need to take meds and therefore will need to take down my mask. I also have my son on one side and my husband on the other side on the plane. I will be visiting friends and family who know if they even have a tickle in their throat not to come near me. I also need to be careful to not eat any raw vegetables or at any buffet style places, only drink bottled water and no ice in any drinks,
Just a little side note to anyone that is traveling and is unaware. You are able to bring a medical bag with you that doesn't count as a carry on or personal item. You do need to make sure that everything is allowable as medical. If there is one item that is not medical in the bag, it is not considered a medical bag. You should make sure that the bag stays with you at all times. You don't want to check your meds just in case.

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Hi, @chickytina Thanks for the good information about the medical bag. I was not aware of that, so I found the info to be very helpful. 👍

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Good morning
I'm a liver transplant patient, October 2020. I too carry hand sanitizer and I actually wear a mask anytime I'm out in public. Even in the summer. I do grocery shop, but I use self checkout as to avoid people standing in my personal space. I stay away from sick people. And I even will make family and friends feel guilty if they attend functions where I am for showing up sick. I try to live life, but do so carefully

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@rosemarya

@cehunt -
Happy Transplant Anniversary!
I hope that you have something planned to celebrate this miracle of life day! Perhaps, to quote from your post, "...a very laidback day. ..no hustle and bustle..." kind of day.
What will you do to honor this day?

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Congrats to us all for surviving this long! I want to wish all my wonderful friends at Mayo happy holidays and healthy fun wild new year!!! 🎊

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@rosemarya

To All: Let's reactivate this conversation! ⛄❄️

Holiday celebrations and festivities can be a challenge for transplant patients and their families. The twinkling lights and music are everywhere enticing us to get out to shop and celebrate while we consider invitations to family and social gatherings with special foods and beverages. It is no wonder that whatever stage of some of us approach the holidays with a hint of uncertainty and trepidation during the season that is supposed to bring joy and cheer.

- How will you navigate the holidays? What are your plans?
- If you are a new recipient, what questions do you want to ask if the experienced recipients?
- Share a Holiday wish!

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Hi, @rosemarya.
No special plans outside of home for the holidays. I'm just one year post kidney transplant and, over the past few months, have been slowly adding back a few activities into my life as transplant team restrictions have been eased. But whatever I do, I take recommended precautions. Some may think I go overboard, but I mask up, keep a good social distance, avoid crowds and sick people (as much as possible), wash hands frequently, hand sanitize, get my vaccinations, etc. And I do these things year round. I am trying to see how I can safely incorporate travel back into my life. I probably won't do anything special during the winter but maybe I'll be able to "get moving" in the spring. My main concern is to be careful and safe.
So, with that in mind, my question for the experienced recipients is what precautions do you take on various modes of transport? In particular, how do you stay safe on airplanes full of strangers that you will be in close contact with and who may be sick and infectious and are not wearing masks?
My holiday wish is for everyone to have a joyous holiday season and enjoy life!

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@my44 I have flown a few times. I do the following:
1. Try to take as few flights as possible-direct if possible without layovers.
2. Mask up
3. Take antibacterial wipes and wipe down seat tray, arm rests, anything I might be touching.
4. Hand sanitizer for my hands whenever I do touch something or need to eat or drink.
5. Limit amount of eating on flight if possible.
6. If flying with family or friends-sit next to them because as least you know they are healthy/careful.
Good luck!

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Thank you, @jackiez...excellent information. I will definitely follow those practices.

Question: Even with the regimen that you follow (which is great), have you ever felt nervous or concerned about your health on a flight? I just would hate to go on vacation and come home with an infection. A lot of things on the ground I am able to control, like social distancing, and staying away from crowds and sick people. But I wouldn't necessarily be abe to control those on a plane. I'm usually alone on the plane, so nobody with me to "surround" me. What are your thoughts?

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@my44

Thank you, @jackiez...excellent information. I will definitely follow those practices.

Question: Even with the regimen that you follow (which is great), have you ever felt nervous or concerned about your health on a flight? I just would hate to go on vacation and come home with an infection. A lot of things on the ground I am able to control, like social distancing, and staying away from crowds and sick people. But I wouldn't necessarily be abe to control those on a plane. I'm usually alone on the plane, so nobody with me to "surround" me. What are your thoughts?

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@my44 everything has a risk associated with it. I try to weigh the risk/reward when I choose to fly, go out to eat, etc. I control what I can. But you are right, you might be seated next to someone who has a cough or cold. That was my worst fear. And yes, I was apprehensive when I flew. We make a hundred choices every day that impacts our health-what we put in our mouth, who we see, what we do. My transplant influences me but it doesn’t define me. I still make choices to live a full life-everyone has a different definition of what that is.

I did ask my transplant coordinator about air travel as I have a work reward trip that I need to attend outside the US - she told me to ‘go for it’. I will ask again closer to the trip and take into account their recommendation too.

I hope this helps. It is a personal choice. And it’s a tricky one.

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@jackiez

@my44 everything has a risk associated with it. I try to weigh the risk/reward when I choose to fly, go out to eat, etc. I control what I can. But you are right, you might be seated next to someone who has a cough or cold. That was my worst fear. And yes, I was apprehensive when I flew. We make a hundred choices every day that impacts our health-what we put in our mouth, who we see, what we do. My transplant influences me but it doesn’t define me. I still make choices to live a full life-everyone has a different definition of what that is.

I did ask my transplant coordinator about air travel as I have a work reward trip that I need to attend outside the US - she told me to ‘go for it’. I will ask again closer to the trip and take into account their recommendation too.

I hope this helps. It is a personal choice. And it’s a tricky one.

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Hi @jackiez.
Thank you for your response. It definitely does help, and I accept and embrace everything you said.
In addition to the great advice you gave me in your earlier post, my main takeaways from what you mentioned in this post are: I need to get past my apprehensions, weigh the risks vs rewards, control what I can, and choose to live a full life. I will definitely follow that advice.
But my biggest takeaway from what you said is: “My transplant influences me but it doesn’t define me.” And I plan to adopt that attitude and remind myself of it every day.
I also like your transplant coordinator’s advice to “go for it.” And when I’m ready to travel, I’ll check with my transplant coordinator and, hopefully, she will give me that same reassurance and encouragement,
Thanks, again, @jackiez, you have been a tremendous help and inspiration to me.

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@my44 so glad this was helpful. Good luck in your journey!

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@jackiez

@my44 so glad this was helpful. Good luck in your journey!

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Thank you very much @jackiez.
I'll take your wishes for good luck to cover both my kidney journey and my anticipated travel journey. 😊💕

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