I am a support group leader for psp aka supranuclear palsy

Hi @afoster80, welcome to Connect.
I'd like to hear more about your support group and your role as a leader. What kind of feedback or information are you looking for? It will help me connect you with other people familiar with this disease.

I was diagnosed on Nov 15/23
I was told no cure for the disease but I could join the trial clinic in the spring.

it hasn’t happened yet. I am Canadain and winter down in Yuma so am home now. Any ideas when the trial clinic is going to happen.

I just got diagnosed after having what I thought was Parkinson’s so I’am a newby

Hi my name is Kelly
I’am 66 yrs old , bI live in Florida on the west coast
I just got diagnosed with PSP
I’ve been dealing with what I thought was Parkinson’s for one year and 3 months
I’am headed to Shane’s in Gainesville
If course I’am scared and anxious and depressed. I was born on a sunny day always out side, but now i’am in the house all the time bummer , what’s my future? Anybody else have this disease that’s stealing my walking ?

I use to run marathons, play in my garden now I have to use a walker to get around . We moved from the country to the city. We live in canada

Do you mind if I messenger you. You are in the trial up at Mayo Clinic in Scottsdale.

Yes I am are you a person in the trial
Tha
I could talk to.

Yes that is me use to run marathons now I need a walker to get me around

What do you wan my walking is terrible. I fall down all the time my speech is bad and my handwriting is unreadable.