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Progressive supranuclear palsy (PSP)

Posted by 1pspgirl @1pspgirl, Dec 22, 2024

Hi my name is Kelly
I’am 66 yrs old , bI live in Florida on the west coast
I just got diagnosed with PSP
I’ve been dealing with what I thought was Parkinson’s for one year and 3 months
I’am headed to Shane’s in Gainesville
If course I’am scared and anxious and depressed. I was born on a sunny day always out side, but now i’am in the house all the time bummer , what’s my future? Anybody else have this disease that’s stealing my walking ?

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merrychristmas | @merrychristmas | Apr 19 3:37am
In reply to @SusanEllen66 "@merrychristmas I don’t know about a trial. However, I just applied for an appointment at Mayo,..." + (show)
@SusanEllen66

@merrychristmas I don’t know about a trial. However, I just applied for an appointment at Mayo, and was turned down.
I don’t understand.

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You could ask

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merrychristmas | @merrychristmas | Apr 20 8:29am
In reply to @SusanEllen66 "@rockwood PSP, yes I’m on my way for an official diagnosis myself. I have had movement..." + (show)
@SusanEllen66

@rockwood PSP, yes I’m on my way for an official diagnosis myself.
I have had movement issues, double vision too. It is not Parkinson’s, but it is referred to as a Parkinsonism Disease because the 2 diseases have similar traits.

I also have FRONTOTEMPORAL Dementia.

There are YouTube videos that are very informative.

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Are sure that you have dementia? FTD is Frontotemporal Degeneration . PSP falls under that umbrella term (also there other diagnosis ie Alzheimers, PPA etc. ). They all can lead to dementia you can live without it for a long time and can even die before you get dementia.
You already know this. 😊

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