Immunotherapy Scheduling

@isadora2021: I’ve been on this cancer road for 3yrs too! Perhaps we all have wondered “why me” & as time goes by I feel the situations that occur and how I react to them is what really matters. Acting with gratitude, new insight and approach each challenge with courage and persistence; I believe this is our gift as cancer patients. Not one of us makes it out of here alive, but while we are here we can learn to be the best advocate and better human.
I want to be stronger than ever.
Best every day to you! Bette

@dbamos1945 So very true. My oncology team set up my infusion programme with the infusion centre, and I always had an advance programme. Now that I’ve finished treatment I’m doing quarterly surveillance scanning. I often have to chase up my oncologist’s admin team to sort out the scans with the provider. The provider can’t book me in until they get the paperwork from my oncologist’s office. It’s very annoying how often the admin team drop the ball. I’ve learnt not to think they’ve got it in hand, and now assume they don’t!! I chase. It’s my life at risk.

@isadora2021: I’ve been on this cancer road for 3yrs too! Perhaps we all have wondered “why me” & as time goes by I feel the situations that occur and how I react to them is what really matters. Acting with gratitude, new insight and approach each challenge with courage and persistence; I believe this is our gift as cancer patients. Not one of us makes it out of here alive, but while we are here we can learn to be the best advocate and better human.
I want to be stronger than ever.
Best every day to you! Bette

I've learned that now, too! And great for you for completing treatment!!
BTW, I replied to a former post of yours about puppies -- I'm a momma to two labradoodles.

I'm tagging a few other members who have had immunotherapy at Mayo Clinic, like @jmp1514 @lls8000 @rosie100 @gaybinator @richcolleen and others. They can share their experiences of how infusion appointments were arranged for them.

@grammato3, do you use Mayo Clinic's patient portal (Patient Online Services) to see your upcoming appointments, communicate with your care team, see test results, etc? Are you a patient at Mayo Clinic Arizona?

I'll be starting chemotherapy soon. Im on the Mayo patient portal.

Hi @captjack Welcome aboard Mayo Connect. Looks like you’ll be starting treatment for some form a cancer soon and are a patient at Mayo! I may be a little biased but you couldn’t be in better hands. ☺️

You mentioned already being on the portal. That’s great!
Your patient portal at Mayo will be a lifeline to appointments, test results and notes from your care team. Now that you have that set up, you’re good to go.

Now that you’re on Connect, I’d like to help you find the perfect support group for your diagnosis. If you wouldn’t mind sharing a little more about yourself, what type of cancer do you have? When will your treatments begin?

Im having my port-a-cath implanted on Jan 2 and will start a bi-monthly Flofox or Flofiri infusion treatments soon after. Also, I'll be part of a clinical trial on a new drug (onvansertib). My latest CT scan report includes:

1. Peritoneal carcinomatosis with small volume ascites. Tumor implants on the gastric serosa and undersurface of the right hemidiaphragm.
2. Hypodense liver lesions could be parenchymal metastatic disease versus post-resection changes versus residual tumor in the background of post-resection changes. Comparison to prior imaging would be helpful.
3. Indeterminate splenic lesion.
4. Subcutaneous nodules of the anterior abdominal wall could represent port sites versus metastatic implants in the port sites. Again, comparison to prior would be helpful.

I've had three resection surgeries: 1 colon and 2 liver to remove polyps and lesions. I understand my stage IV colorectal cancer is not curable but would like to know how chemotherapy works. What can I expect?
Any help would be appreciated.

@captjack. You’ve certainly been through the wringer with with your surgeries for Colon and Liver. I’m not familiar with Flofox or Flofiri, my flavor of chemo was different.
But I did find reference to a few members who have mentioned the medications in their posts. I’m wondering if @davidwrenn might give you some insight on the treatments with his experience of esophageal cancer. Below is a link to one of his comments regarding the meds.
https://connect.mayoclinic.org/comment/1149266/
Since you’ve had both liver and colon cancer, you might want to post questions in either of these two support groups with members who can relate to what you’re been experiencing.

Liver Cancer Support Group
https://connect.mayoclinic.org/group/liver-cancer/
Colorectal Cancer Support Group
https://connect.mayoclinic.org/group/colorectal-cancer/
When is your first round of chemo scheduled?