Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@lioness

@sandytoes. @karen00 This is the 6th day being on Magnesium Malete @Malic Acid it has worked very well for me In fact I just ordered another bottle also a bottle of MSM that helps the healing of injuries, it is derived from plants as a sulphur ,it is good for hair,nails and skin it promotes GI health .I'm reading from Nutritional healing book by Phyllis Balch her 5th edition Fome I'm adding it. F.M.had MSM in it Jen

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@lioness I’m so glad to hear that something is working! I’ll definitely have to check out that kind of magnesium. The fact that you ordered another bottle already is a good sign! What else is in Phyllis Balch’s book?

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@karen00

@lioness I’m so glad to hear that something is working! I’ll definitely have to check out that kind of magnesium. The fact that you ordered another bottle already is a good sign! What else is in Phyllis Balch’s book?

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@karen 00 I love her books . I think I have had all 5 she put out. She goes with a diagnose like fibromyalgia then gives you the herbs,teas that will help oh yes vitamins also . She lets you know what not to take if you are on certain medications. Also what foods supply what vitamins and minerals that's why she calls it a Perscription for Nutritional Healing There has been 8 million copies sold . All the blank pages I have are covered with what helps me for fibro ,arthritis both O,A and R.A. remedies and therapies for what ails you ,also how to prepare for surgery,Tens unit Tai Chi just so much This book has 882 pages in it I think it covers everything about being healthy If you want to get away from drugs it is a well worth book for you to get

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@lioness

@karen 00 I love her books . I think I have had all 5 she put out. She goes with a diagnose like fibromyalgia then gives you the herbs,teas that will help oh yes vitamins also . She lets you know what not to take if you are on certain medications. Also what foods supply what vitamins and minerals that's why she calls it a Perscription for Nutritional Healing There has been 8 million copies sold . All the blank pages I have are covered with what helps me for fibro ,arthritis both O,A and R.A. remedies and therapies for what ails you ,also how to prepare for surgery,Tens unit Tai Chi just so much This book has 882 pages in it I think it covers everything about being healthy If you want to get away from drugs it is a well worth book for you to get

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@karen00 I forgot to give you the website so you can look her up. http://www.perscriptionfornutritionalhealing.net

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Well y'all. All of the being bounced around like a ping pong ball is frustrating and discouraging. Thing is I continue to try. Lacking energy and motivation. I dealt with the fibromyalgia and have accepted this long ago. Now all I get is bounced here and there. Does it take a stroke before anyone pays attention??? Some things are just not worth the energy and time. No need mentioning anything more to family as all they likely see is another old person to place in a nursing home. Living here is really dragging me down. Mostly people going to nursing homes and/or dying. Out of options.
Self esteem waning and I know it is pain/depression.
I try to avoid negative posts as I realize they are not appreciated. Must not be counting my blessings enough. Working on it.

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@parus————I don’t understand. From where do you get bounced here and there? Karen00

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@karen00 Referring to being sent to so many doctors and the fact that I have had 3 primaries in 4 years as many are leaving do to not being allowed time with patients and other control issues. I have not fired them they relocate. Frustrating for sure.
Just deal with it I suppose.

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@parus I'm at that point now my old rheumatologist left so going to new one in May hope he is more knowledgeable then last one It is frustrating .

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I have fibromyalgia for many years. Have gone for PT which helped some. I get strong pain in the shoulder area. I put on fibro cream. It helps so much. Can get cream on amazon or cvs. It does work
Feel better. Arlene

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@glutenfree555

I have fibromyalgia for many years. Have gone for PT which helped some. I get strong pain in the shoulder area. I put on fibro cream. It helps so much. Can get cream on amazon or cvs. It does work
Feel better. Arlene

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@glutenfree555 Welcome to connect . We aren't Dr's but have a lot of information about our conditions that might help others. I too have fibromyalgia for over 30 yrs and have found the fibro cream helps my shoulders especially . It is Topricin brand name . Is this the one you have? I also take more magnesium according to the fibro. website .

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I have fybromyalgia for many years. Nice to know this cream works.T Y for posting.

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