I have Factor V and have been on a baby aspirin for years. My problem is every time I have an IV for a procedure, I get a blood clot or sclerosis in that vein. How can I prevent that?
Hi! I'm a 49yo f with Factor V Lieden. I've had clusters of PE's several different times. I had a severe stroke 3 years ago and 4 wks ago had 6 heart bypasses. Are there any studies I can join to help with research?
You can also contact a research coordinator with your questions. They may be able to help match you with a trial for which you are eligible.
Phone: 800-664-4542 (toll-free)
Robin, you certainly have been through several serious health events. How was recovery from your stroke? And 6 heart by passes, woah? How are you doing now?
Welcome @mjthornton78. It’s pretty normal to be scared when you’ve gotten a new diagnosis, especially if you don’t know much about. It leaves you feeling very lonely. So I’m glad you joined Connect. There are a number of members who also have Factor v Leiden which is a blood disorder which can cause abnormal clotting.
My wife has it. It was thought to be a factor in the stroke and TIAs she's had. She was recently switched to Eliquis, which will hopefully eliminate the issue. Definitely ensure your medical team takes measures to address it.
My wife has it. It was thought to be a factor in the stroke and TIAs she's had. She was recently switched to Eliquis, which will hopefully eliminate the issue. Definitely ensure your medical team takes measures to address it.
And I just had a major surgery and can't take NSAIDs or even my tumeric messes w my blood and there's an opioid epidemic.. so my pain just isn't a thing super fun cervical fusion w dysectomy on C5 and c6
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@rmd23, getting a clot or sclerosis everytime you have an IV is an issue. What does your medical team do to help reduce the risk of clot?
@robinpope2013, you can search for available clinical trials at Mayo Clinic using this tool: https://www.mayo.edu/research/clinical-trials
You can also contact a research coordinator with your questions. They may be able to help match you with a trial for which you are eligible.
Phone: 800-664-4542 (toll-free)
Robin, you certainly have been through several serious health events. How was recovery from your stroke? And 6 heart by passes, woah? How are you doing now?
Yes I'm so scared
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1 ReactionWelcome @mjthornton78. It’s pretty normal to be scared when you’ve gotten a new diagnosis, especially if you don’t know much about. It leaves you feeling very lonely. So I’m glad you joined Connect. There are a number of members who also have Factor v Leiden which is a blood disorder which can cause abnormal clotting.
I’m not sure what’s been explained to you so I’m putting a few links with information about Factor V Leinden for you to read.
~This from Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/factor-v-leiden/symptoms-causes/syc-20372423
~Healthline.com
https://www.healthline.com/health/factor-v-deficiency
If you don’t mind sharing a little more of your story, how was your diagnosis discovered? Were you experiencing blood clots? Are you currently taking any treatments to help prevent abnormal clotting?
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3 ReactionsMy wife has it. It was thought to be a factor in the stroke and TIAs she's had. She was recently switched to Eliquis, which will hopefully eliminate the issue. Definitely ensure your medical team takes measures to address it.
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1 ReactionAnd I just had a major surgery and can't take NSAIDs or even my tumeric messes w my blood and there's an opioid epidemic.. so my pain just isn't a thing super fun cervical fusion w dysectomy on C5 and c6