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Do you have pre-seizure issues or symptoms?

Posted by Teresa, Volunteer Mentor @hopeful33250, May 22, 2020

I've been reading a book about a person who has had seizures since the teenage years. I'm most impressed with the "pre-seizure" symptoms. Seizures seem to come with fatigue, stress, hunger, and the hard to understand auras.

Some seizures involve staring off while others involve convulsions. Please share, as you are comfortable doing so, about your seizures. Are they convulsive? Do they usually happen in the evening when you are most tired? Do you always have a clue(s) before your seizure starts?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Moderator
Lisa Lucier, Moderator | @lisalucier | 1 day ago
In reply to @gig666 "I wrote previously, 7 years ago had a left temporal. Tumor a benign menginoma. I was..." + (show)
@gig666

I wrote previously, 7 years ago had a left temporal. Tumor a benign menginoma. I was out on seizure medication, and only had a few seizures till 3 years ago. Long story short they discovered l have LNets. 2 small in right and 20 + tiny ones too. Left lung one small again scattered nets.
The new focal seizures would trigger my serotonin in my brain to increase, bringing in he seizures and they added
Cymbalta, which increase the SEROTONIN levels which is one place it is produce, the other place in the gut. I had 3 major seizures like have never had before.
You doctor, NET Specialist./oncologists should always check the level of serotonin in your body.

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Thanks for the update, @gig666. I'm glad to hear you have a diagnosis now. I was also diagnosed with NETs a little over a year ago, but originating in the GI tract.

Experiencing three major seizures like you've never had before sounds hard.

I'm wondering how you are doing now. Did your doctor change your medications? Have you had additional seizures?

REPLY
gig666 | @gig666 | 1 day ago

I am my own advocate and when the second seizure started l stopped cymbalta, on my own. Reading up about serotonin is produced in the brain, l realized my brain was very overly simulated. It was a dangerous situation if l continued using it, plus my daily seizure medication. I told the Palliative Counselor who prescribed it, "she said she never heard of that happening." She had no knowledge what Neuroendocrine Cancer is, plus where serotonin was made in a person's body. In the brain, and separate also in the Gut, they do Not mix. ANYONE suffering from epilepsy should check if their Doctor wants them on anti-depressant. Hopefully, they have a Neuroendocrine Specialist working with them.
If you use any anti-depressant, do not worry. Yes, you have Nets. in you Gut. area you will not have seizures like l did. Mine had to do with a damaged area of my brain, the nerves are reacting abnormally due to not connecting together.

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