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Fibromyalgia pain: Let's connect
Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo
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@Parus Happy Mothers day to you also
Amongt other things I have fibro. Many years ago a fibro dr recommended "Fibro Malic" by Trask Taking it ever since but I take narcotics for my other issues so it helps fibro too.
Lucky Vitamin online has been the cheapest
If you haven't tried it, honey, you should - might take the edge off the pain a bit.Please let me know how you do. I have very few friends left too, so I understand. TG Yyou have a good man. I did too till the Good Lord took him back. 5 yrs now. Clown, what can I call you
Call me Marcy
Ill be waiting to hear if it helped vyou Good luck amd and be blessed
I am always hear if you need me Maybe we can even talk if you feel lonely
I always am.
Marcy
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1 Reaction@parus,
I see you changed your profile picture to a new drawing. Is that done in pencil? It is very detailed and another great work of yours for the collection you have shared since joining Connect.
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2 ReactionsHi All Fibro Sufferers,
I tried to post something before but I think I lost it.
If you see it, I'm not loosing my mind (I don't think).
Anyway, I have a lot of info on Fibro that I thought I'd share.
I am not very computer savvy so I hope I don't mess up.
Here I go...........................
https://www.mayoclinic.org/diseases-conditions/fibromyalgia/expert-answers/is-fibromyalgia-hereditary/faq-20058091https://www.mayoclinic.org/diseases-conditions/fibromyalgia/expert-answers/fibromyalgia/faq-20057978https://www.mayoclinic.org/diseases-conditions/fibromyalgia/expert-answers/fibromyalgia/faq-20111602https://www.mayoclinic.org/diseases-conditions/fibromyalgia/expert-answers/fibromyalgia-treatment/faq-20058273
Hope this helps...
Ronnie (GRANDMAr)
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3 Reactions@marcy I also use Fibro Malic ,love it I get mine through Vitacost it's about 23.00 I,'ll look at Lucky Vitamin
Glad its not all in my mind.lol Prices do vary from time to time. I have used vitacost too. Just check before u buy - as u know, things add up ! Glad it helps u too. Be well.
Marcy
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2 ReactionsThanks so much Ronnie. My knee is so bad that if my fibro started acting up I would go nuts.
Marcy
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1 Reaction@marcyk Yes I do thanks I,m going to check out what you pay
@jennapower I like your post ,my pain Dr gave me shots in my back but I still have the pain in my leg from hip area, I saw while in his office he is banned from giving any narcotics with my L2 fracture it was suggested to have surgery Kyplasty but I refused it now the pain is getting worse I'm in Calif.but as you said my rheumatologist never suggested CBD or marijuana as I have fibromyalgia for 30+ yrs Gailb have some suggestions on websites one was with drinking cbd water
@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.
Jen
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