1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

lioness | @lioness | Mar 11, 2018
In reply to @dais "I am going to be with my grandson today. I always make up excuses to not..." + (show)
@dais

I am going to be with my grandson today. I always make up excuses to not see him because I'm embarrassed by not being able to do much with him. I've been in a Fibro flare for a long time. Sometimes I think winter has a bad effect on me. Does anyone else suffer worse in the winter?

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Sorry your hurting its a struggle I'm 75 and I'm hurting also no med I took has helped it is depressing.I use all the arsenal I have but the weather plays a BIG part of our pain.Hopefully tomorrow will be a brighter day.

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lioness | @lioness | Mar 11, 2018
In reply to @dais "I am going to be with my grandson today. I always make up excuses to not..." + (show)
@dais

I am going to be with my grandson today. I always make up excuses to not see him because I'm embarrassed by not being able to do much with him. I've been in a Fibro flare for a long time. Sometimes I think winter has a bad effect on me. Does anyone else suffer worse in the winter?

Jump to this post

Oregongirl,Parus I forgot about a report I have on non-drug pain solutions most of them we,be used but here is some others:reduce grains@sugar I know grains bother me ,wheat in particular oats steel cut are o.k.,Omega3,K-Laser class 4therapy,the herb-Astaxanthin, Boswellia also a herb.Evening Primrose ,herb,CBD,walking barefoot on ground.Also I forgot about Essential Oils I used in past so will restart I know Pepperment oil in a carrier oil ,almond ,coconut all these have to say pure Use it as a rub on trigger points.I just did and not hurting at all Hope this helps

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lioness | @lioness | Mar 11, 2018
In reply to @dais "I am going to be with my grandson today. I always make up excuses to not..." + (show)
@dais

I am going to be with my grandson today. I always make up excuses to not see him because I'm embarrassed by not being able to do much with him. I've been in a Fibro flare for a long time. Sometimes I think winter has a bad effect on me. Does anyone else suffer worse in the winter?

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Thank you I am a retired nurse have fibromyalgia ,chronic pain s research and pass on .I was looking at Charolets Web on CB D they also have candles ,you could burn frequently then

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Texas Freedom | @oregongirl | Mar 11, 2018
In reply to @dais "I am going to be with my grandson today. I always make up excuses to not..." + (show)
@dais

I am going to be with my grandson today. I always make up excuses to not see him because I'm embarrassed by not being able to do much with him. I've been in a Fibro flare for a long time. Sometimes I think winter has a bad effect on me. Does anyone else suffer worse in the winter?

Jump to this post

My pain is not isolated. If on the right also on left. My shoulders, neck and spine. It feels like the flu pain only worse. I would have to fill a tub of natural oils.

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lioness | @lioness | Mar 11, 2018
In reply to @dais "I am going to be with my grandson today. I always make up excuses to not..." + (show)
@dais

I am going to be with my grandson today. I always make up excuses to not see him because I'm embarrassed by not being able to do much with him. I've been in a Fibro flare for a long time. Sometimes I think winter has a bad effect on me. Does anyone else suffer worse in the winter?

Jump to this post

I found a website that to me sounds promising as I've heard of enzymes before @Fibromyalgia To here and read ppt-health.com/forward-looking let me know what you think

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Texas Freedom | @oregongirl | Mar 11, 2018

Lioness, I just texted my primary. I told her I would rather have a disease that has an end. They use chemo on me but the pain nothing. Now I think I have something wrong with my lungs. I keep wondering if they made a mistake on my diagnosis.

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2 replies
lioness | @lioness | Mar 11, 2018
In reply to @oregongirl "Go to Oregon if you like rain." + (show)
@oregongirl

Go to Oregon if you like rain.

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I found another website that is good , fibromyalgia treating.com/mag-fibro

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lioness | @lioness | Mar 11, 2018
In reply to @oregongirl "Lioness, I just texted my primary. I told her I would rather have a disease that..." + (show)
@oregongirl

Lioness, I just texted my primary. I told her I would rather have a disease that has an end. They use chemo on me but the pain nothing. Now I think I have something wrong with my lungs. I keep wondering if they made a mistake on my diagnosis.

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Have you had trouble breathing?

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grandmaR | @grandmar | Mar 12, 2018
In reply to @dais "I am going to be with my grandson today. I always make up excuses to not..." + (show)
@dais

I am going to be with my grandson today. I always make up excuses to not see him because I'm embarrassed by not being able to do much with him. I've been in a Fibro flare for a long time. Sometimes I think winter has a bad effect on me. Does anyone else suffer worse in the winter?

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HI OREGONGIRL
HAVE YOU TAKEN AN MRI OF YOUR CERVICAL SPINE TO BE SURE THAT THE PAIN YOU ARE EXPERIENCING IS COMING FROM YOUR CERVICAL SPINE AND NOT THE FIBRO?
I HAVE BOTH BUT THE PAIN IS A BIT DIFFERENT.
FOR ME, MY CERVICAL SPINE PAIN FEELS MORE LIKE SOMEONE IS INSIDE ME AND PUNCHING ME.
OR, IT FEELS SHARP OR DEEPLY INTENSE.
MY FIBRO PAIN WAS MORE LIKE DEEP ACHES.

JUST WANTED TO BEING ANOTHER SOMETHING FOR YOU TO THINK ABOUT AND CONSIDER.
I CERTAINLY DON'T WISH THIS ON YOU, BUT I THINK YOU NEED TO BE SURE WHAT YOU ARE DEALING WITH SO THE DOCS KNOW HOW TO TREAT IT.

ronnie

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Texas Freedom | @oregongirl | Mar 12, 2018
In reply to @dais "I am going to be with my grandson today. I always make up excuses to not..." + (show)
@dais

I am going to be with my grandson today. I always make up excuses to not see him because I'm embarrassed by not being able to do much with him. I've been in a Fibro flare for a long time. Sometimes I think winter has a bad effect on me. Does anyone else suffer worse in the winter?

Jump to this post

Grandmar..yes my Ra Dr sent me to the spine doctor. My neck and back are getting worse. He did x-rays, and even I suggested cat scan he did not feel I needed it. I have good insurance so there was no reason to not do a cat scan. My back has extra vertebrae and I am liaded with arthrites in my neck. Also on lower scalp at the neck. I fractured that bone snow mobiling. I believe we have Ra but these other things are growing in us. I hate it. Take my pain away please

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