PMR Diet: Foods to eat and avoid

Posted by alan bruce @alanbruce, May 6, 2020

What foods to avoid and what food to focus on when on PMR

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Food to avoid: GARLIC
I've been eating two cloves of garlic every day in salads and cooking since shortly before PMR struck in March 2023. This week I found on several reliable websites and in research papers that garlic shouldn't be eaten with any autoimmune condition as it heightens the immune response, something we want to avoid with active PMR. Garlic was praised up everywhere for general good health and gut health so I committed to eating it every day, but hadn't thought to check the effect on PMR. No more garlic for me.

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@janiceem

Yes, some call our gut our "second brain."

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Hence the many adages about "gut" instincts.

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@megz

Food to avoid: GARLIC
I've been eating two cloves of garlic every day in salads and cooking since shortly before PMR struck in March 2023. This week I found on several reliable websites and in research papers that garlic shouldn't be eaten with any autoimmune condition as it heightens the immune response, something we want to avoid with active PMR. Garlic was praised up everywhere for general good health and gut health so I committed to eating it every day, but hadn't thought to check the effect on PMR. No more garlic for me.

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I personally have never heard about a connection between garlic and PMR, but that said, I don't believe that eating any food in excess is good for us.

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When I was first diagnosed I was told not to eat night shade veg: potatoes, tomatoes, egg plant, and sweet peppers. No pork in any shape or form, no cold cuts, fried food, fast food, sugar, chocolate, but be careful of gluten free ready made food and check for the above ingredients. Also there is disagreement about Shrimp, which I love. Nothing fermented, no soy sauce, vinegar, pickles, wine (Aaaag)

I could eat gluten free premade items with care, also GF ingredients, milk, butter, some disagreement on cheese, mushrooms, eggs, onions, peas beans, green beans, fruit in moderation, green leafy veg. organic chicken and grass fed beef, fish. Not a lot to work with but being a cook from way back I manage.

I found that chocolate gave me pain, some brands more than others. I gave up cane sugar all together and now use Stevia and Palm Sugar which I don't react to, GF bread and products. I find that coffee helps to quieten pain in arms and legs which I still have. I do indulge in Malt Vinegar with fish, no reaction that I have noticed.
That's all I can remember.

My main go to, apart from Mayo Clinic is the British National Health Service, which has a pretty good PMR page.

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Figuring out what foods to eat and avoid with PMR drives me crazy. I have for some time avoided processed and fried foods, sugar and red meat. Then, before prednisone, PMR caused anemia so I tried to get more iron in my diet. Then methotrexate elevated my liver enzymes so I cut back alcohol to 2 drinks a week. Then Kevzara elevated my cholesterol so no eggs or cheese and oatmeal every morning. Avoiding potatoes, tomatoes and eggplant does not make sense to me since there is only an association with inflammation, not a cause and effect, and everyone is different. I will change my diet if it allows me to stay off a medication or lessen the side effects of ones I have to take but other than that I try to follow what Michael Pollan said: " Eat real food, mostly plants, not too much".

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@linda7

Figuring out what foods to eat and avoid with PMR drives me crazy. I have for some time avoided processed and fried foods, sugar and red meat. Then, before prednisone, PMR caused anemia so I tried to get more iron in my diet. Then methotrexate elevated my liver enzymes so I cut back alcohol to 2 drinks a week. Then Kevzara elevated my cholesterol so no eggs or cheese and oatmeal every morning. Avoiding potatoes, tomatoes and eggplant does not make sense to me since there is only an association with inflammation, not a cause and effect, and everyone is different. I will change my diet if it allows me to stay off a medication or lessen the side effects of ones I have to take but other than that I try to follow what Michael Pollan said: " Eat real food, mostly plants, not too much".

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My uric acid level is elevated. I'm told to cut back on red meat and alcohol which won't be a problem for me. I don't drink alcohol and red meat is too expensive.

I have gone through the same dietary "adjustments" to see if anything helps . The only thing that helped tremendously was when I tapered off prednisone. Otherwise ... not checking labs so often helped because everything was assumed to be normal.

My endocrinologist and I had a nice chat today. The talk was mostly about my prednisone weight gain and the "metabolic abnormalities" that show up in my lab values. The encouraging words were that diet and exercise will only get me so far. Then he added "as long as I felt healthier and I thought I was headed in the right direction --- that is all that matters."

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