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Cerebral amyloid angiopathy
I was having an MRI to work up onset of headaches, 3 wks. duration and this was seen on the MRI. I'm an RN and scared out of my mind that I'm going to have a stroke. I'm not reading anything online that sounds like anyone can do anything. Is there any reason to go to Mayo? Might I still live a long life? Is there any chance the MRI was read incorrectly? I'm having a hard time here with all this.
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@nellie1
Last November I had a hemorrhagic stroke in the right occipital lobe and was consequently diagnosed with CAA. I’m fortunate to have a neurologist in the family and the first to have discovered the CAA. He suggested to me that I get rid of my current neurologist and get a stroke neurologist which is what I did. there is nothing they can do for you so you try to live your life not worrying too much,way easier said than done and with the Internet it’s 10,000 times worse. I set up goals for myself one of the things that happens from CAA is I get between 30 and 50 headaches a day since my stroke i’m supposed to be on the lookout for a thunderclap headache and a sudden increase in blood pressure. It’s a little unnerving to say the least. in the year after all of this happened I don’t know that I’m any better at that than I was from day one.
I wish you nothing but good luck, and a long life!
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