Thyroid? Or something else? Constant internal shakiness

I agree that removal of the thyriod is not a good solution. I have had Hashi for years and also other autoimmune disease.
If you don't supplement it, you are in trouble, especially if your thyriod is under attack...I wish there were better treatments, but there aren't, at least now now. Mine is probably dead and gone by now lol, but taking it out is worse.
Although there is a weak link via the research I've read, I still wonder if having Hashi "opens the door" to other autoimmune disease?

Hi Joanne,

You may want to reconsider your idea on the autoimmune diagnosis. Some autoimmune diseases can progress a LOT more and a lot faster without treatment.

My eye doctor-- who was seeing me every 3-6 months to check my field of vision while I was on plaquenil-- suggested to me that, since many of the treatments overlap, I continue treatments without an absolutely verified diagnosis.

This was hard for me to accept, but I did continue, and I'm really glad that I did.

The scientific research into autoimmune diseases and treatments is relatively new and changing rapidly. There are still many unknowns that hinder making an absolutely verified diagnosis. The science just ain't here yet, and we patients may just have to take the doctor's best guess.

I am not a medical professional. I was diagnosed with autoimmune diseases (one doc said Lupus, the next one said spondyloarthropathy) in 2012 with elevated ANA, fatigue, body pains.

When my treatment (biologic via infusion) was interrupted and sporadic for about 18 months, I went from mostly functional, working full-time to disability. Based on my experience, I would recommend treatment rather than waiting.

Good luck to you! Best wishes

Hi, in response at your comment that if i don't supplement one is in trouble, i don't supplement because all my levels are fine and my Dr don't see that i should do, if will make my hyper. Not everybody needs to take medicine for it dependes on their thyroid if it is dying or something else.

You can have hashimoto's without having significant TPO antibodies in a blood test. I have never shown the antibodies, and I wasn't diagnosed with hashimoto's
until I had surgery to remove out of my thyroid. They look at the nodules and your symptoms and basically diagnose it from there.

The shakiness may be caused by low blood sugars but I am not sure. I also have hypothyroid condition and I have the same shakiness. When I eat a small snack it goes away. I may have low blood sugars at times. I am going to get tested. Just a thought. Debby

Could it be internal vibrations, a symptoms of autonomic dysfunction?

Hi, I'm 45 years old. I have Hoshimotos(with nodules) and Pernicious Anemia with Intrinsic Factor(B12 deficiency). I also have internal shakiness as well as vertigo. I highly suggest getting your B12, Vit D and iron tested. Also have your Thyroid tested thoroughly. Not just your TSH level but your antibodies, T4, T3, ect. Check out The Thyroid Pharmacist Dr Izabella Wentz . She has all the information you need about Thyroid and other related Auto Immune Disorders. I saw in this thread something about Calcium, so could also be calcium deficiencies. Something I'm gonna look into myself. As I have these internal shakiness tremors as well.

That's vertigo. I have it as well. I suffer with Hoshimotos and Pernicious Anemia with Intrinsic Factor. It is a Vitamin B12 deficiency. I have to take B12 injections weekly or I start having memory issues and more vertigo and internal shakiness.

Tell.your Dr to have a ln ultrasound done of your Thyroid. If you have High antibodies you probably have nodules. When those tests are high an ultrasound should have already been ordered. If you have nodules and non cancerous you can have what's called Raduo Frequency Ablasion to get rid of nodules.

I have read your comment and wanted to tell you about the Stellate Ganglion Block Injections. I too suffer from Hashimoto’s and I also have Hypothyroidism. I lost my taste and smell with Covid 2 years ago and was recommended to have Stellate Ganglion Block injections to regain them. I’ve had 7 so far and the only thing it has helped quite a bit with are my body tremors. The injections go directly into your neck where there is a bundle of nerves that control your nervous system are located. I go for these injections at our hospital, Northwestern at our downtown location in their Pain. Management Clinic. They are not painful, but I get put to sleep as if I’m having a colonoscopy because my B/P usually shoots up way too high and that keeps me more calm. The medication that’s injected is Lidocaine, which is usually used as a numbing agent. I haven’t had any weird side effects from it and will probably continue to have the injections for this reason. I’m so sorry you’re suffering and if you have any questions, please reach out. Good luck!