1. < Parkinson's Disease

Mobility Issues

Posted by cmdw2600 @cmdw2600, Feb 21, 2023

My husband (age 72) was diagnosed with Parkinson’s about 6 years ago. I feel his progression is slow even though he would say otherwise. He is still driving and playing golf-although poorly. He does go to the gym, but he is weak and feels that he cannot improve in this area. He is of a healthy weight, maybe a bit too thin, and we have a healthy diet. He currently takes Sinemet, and a drug that is not as well known called Gocoveri. This drug seems to control what he referred to as “bobble head”. His hand tremors are pretty well controlled with the Sinemet.

My question is this: does anyone have tips for getting out of bed, getting off the sofa, getting out of the car? I’d like him to get some kind of physical therapy for these situations but am not certain how to proceed. He does not use a walker, cane or Nordic sticks.

Anything that has worked for anyone out there?

Thank you! Cindy

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

cmdw2600 | @cmdw2600 | Dec 4 7:18am
In reply to @bjleffelman "Cindy, Does your husband have allot of "OFF" times with his drugs? That is another very..." + (show)
@bjleffelman

Cindy,
Does your husband have allot of "OFF" times with his drugs? That is another very issue my husband deals with and it is very difficult to deal with that.
Thank you,
Barb

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My husband says he does not have “off” time, but I m not certain he’s correct. He also believes his medication doesn’t help but I know that’s not true.

We now have a motorized lift chair that he sleeps in because it’s too difficult to get out of bed, even with a bed rail. That was working for a while but now he’s struggling to get out of the chair. He fell over the weekend due to temporary loss of balance.

I must admit I am very worried about the future.

Best wishes to all on this forum. Cindy

REPLY
lagiaconda | @lagiaconda | Dec 9 12:18am

Hello,

You'll need to copy and paste. The first program is slow, so fast forward show to wherever you may find information relevant. This guy (John Argue) has taught me how to sit down and stand up from a couch and chair.


https://www.youtube.com/watch?v=4cxZgi90bEA
https://www.youtube.com/watch?v=AqzcQ-LQJFk
Good luck!

I find YouTube a fabulous resource for Parkinson's disease sufferers. I especially find Laurie Mischley's presentations and webinars valuable and inspirational. .

REPLY
sillyblone | @sillyblone | 5 days ago
In reply to @melaniego "Have you been living with Parkinson's? If so, for how long? I'm 58 and just diagnosed..." + (show)
@melaniego

Have you been living with Parkinson's? If so, for how long? I'm 58 and just diagnosed last year. DEvastated and terrified.

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My spouse was diagnosed in 2018. He has changed alot this year. Spouses and Caregivers do feel anxious and sometimes concerned about the changes. It is very hard to see the changes. Walking and getting other conditions that intensify their condition is so overwhelming to the both of us, The best to you and keep yourself healthy and updated. Medications work for awhile and some don't ! Report changes to your physician and do your research and stay informed. Connect with the local chapter of Parkinsons Association. Write your symptoms down and any side effects. This connection group has been a God moment for me! Hugs to you !💓

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