Fibromyalgia pain: Let's connect

I just did that this past be June. I sorted out things I wanted to keep and then threw most of that away. I actually gave all of it to my church. I am surprised my church did not send me a mental health expert. I gave away antiques and things I won't mention here that had great value. I was moving to Texas for better health care. Many times I have opened cupboards for something I no longer own. I slowly am replacing things but by they are junk next to what I had. I think I was so physically hurting and thought I would surely die and my poor kids WD be stuck with things none of them want. I hear you and someone needed to rescue be us. Lol

Well all of you people living in fibro land encouraging you to do your best and what is in your comfort zone. It may mean a fairly lonely existence, but certainly (speaking for myself) better than flares. I do not even ask for pain medication as where I am it is viewed as drug seeking. I stay with the same primary care person as too much changing around or any at all now is viewed as drug seeking. Take an OTC is what they recommend. No need as if it does not help why take it-even as prescribed. In the area I live in prescribing of opioids is rare. Depression and PTSD are in my chart for all to see-it is the first thing in my chart. How far does anyone trying to get help for pain get taken seriously I am told to talk to a therapist. I have a UTI and still trying to see the PCP. Still waiting on a cancellation. So yes, in a fibro flare. There are times when I go to bed and hope not to awaken to another day. As you can see I have and hoping to get some help for the UTI. I don't even mention fibro as bels and whistles go off in the doctor's head that spell out drug-seeker when I have not once asked for them. They are firing patients now for even asking. I do see a pain specialist for trigger point injections which help for a few days. Insurance will only pay for every 6 months even though they only last a week or so. I am allergic to steroids and get shots of a numbing agent that help the muscles relax. So yes, I am rather discouraged right now. 🙁

Yes. We are headed to a place where no illness can touch us.

Glad you found an apartment you like congrats.I know how you feel about S.s mine is just over the limit by 100.00 When working I started 3different plans for income ,guess what they count your total income ,not fair ,we worked for this money and now penalized for it

Yes, you work hard at your employment giving your all only to retire and realize, there is NO money going into the bank, just out of the bank. The kids today are different. They saw how we struggled after retirement. They now demand retirement benefits from their employers plus vacation, sick leave you name it. When you are self employed your your employee get the day off. Not you. I made a good living. I make too much to get help, and to little to survive. When my husband became ill, and died, I lost his SS. and his Navy benefit. I went from comfortable to poverty overnight. I am very fortunate. A friend of mine had no one to leave his home to. He left it to me. I lived there two years after he died. But, medical was NILL where I lived in the middle of nowhere. So, sold house and moved to Texas. Best medical I could ask for. I guess I just dont know the games you can play to get this and that from the County. I know a friend of mine lives very comfortable while the County pays her rent and drives her two hours to the doctor and back. I pay my rent and I pay my ride over and back. Does not seem fair.

I know we pay that for our Medicare. AND, I have suppliment insurance which runs me nearly 250.00 a month now. Goes up every year. They would love to get rid of me. But, before I would give up my suppliment, I would skip one meal a day. I never pay a dime out in medical bills. But, I wondered if there is a cap that Medicare will pay? Like lifetime max $300,000 or something like that. I will go on line and see. I was self employed. I feel like my whole life, I worked just to keep my husband and I in good health insurance.

Age doesn\'t matter pain is the pain. Support for a loved one is so important. I just reunited 2 yrs ago with my former boyfriend apart for 30 yrs. Love him to pieces but makes me feel sad. I wanted to get a book to read, send articles. Every time there is an issue he gets pissy. So i can relate to you. You say you are looking for assisted living. If $$ is an issue and we all know what that is about. If you are on Social sec disability or your state insurance. You can call the local chapter of adult social services. They will assist you or call 211 and tell them you need resources. Instead of senior living look into subsidized living. There will be a list but take only 30% of your income. Grant, it it is not the tosh mahal but maybe that can help. I to go on the computer keeps my mind busy love my games lol and two dogs a Pomeranian and a 50 %beagle, 37 Boston terrier and 13 bulldog had her DNA done 🙂

Does anyone know if Medicare has a cap they will pay?

Age doesn\'t matter pain is the pain. Support for a loved one is so important. I just reunited 2 yrs ago with my former boyfriend apart for 30 yrs. Love him to pieces but makes me feel sad. I wanted to get a book to read, send articles. Every time there is an issue he gets pissy. So i can relate to you. You say you are looking for assisted living. If $$ is an issue and we all know what that is about. If you are on Social sec disability or your state insurance. You can call the local chapter of adult social services. They will assist you or call 211 and tell them you need resources. Instead of senior living look into subsidized living. There will be a list but take only 30% of your income. Grant, it it is not the tosh mahal but maybe that can help. I to go on the computer keeps my mind busy love my games lol and two dogs a Pomeranian and a 50 %beagle, 37 Boston terrier and 13 bulldog had her DNA done 🙂

Does anyone know if Medicare has a cap they will pay?