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Anyone out there dealing with granulamatosis polyangiitis with vasculitis? With organ involvement?
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Anyone out there dealing with granulamatosis polyangiitis with vasculitis? With organ involvement?
Interested in more discussions like this? Go to the Heart & Blood Health Support Group.
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Hi, my rheumatologist suspects that I now have GPA and my heart and kidneys are the organs involved.
I'm expecting a call tomorrow from another rheumatologist that specializes in GPA, and will be undergoing a biopsy soon to confirm dx.
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1 ReactionHello, Sheims 022.
I have GPA and my Heart and Kidneys are the organs involved, altho I have a healthy heart and a healthy lungs,
its the veins leading to the heart and lungs that that are damaged due to vasculitis, I also have chronic Kidney disease due to the Vasculitis and drink quite a bit of water every day, at first I started drinking about 60 oz of liquid a day and now I drink about 32 oz a day. I am starting my 11th year with GPA and in remission. I wish there were more Rheumontologist out there, right now my Primary doctor is watching over me.
I can answer any questions you ask, I take two "preventive" heart pills and take no medication for my kidneys and none for my lungs, when I was first diagnosis I took Prednisone. Write using the words ''GPA'' MFB