Fibromyalgia

Hi
I used to take cyclobenzaprine five milligrams every night. My new g p does not want me using it at all.. I did use it while I was going through radiation.I would just take One at bedtime. I live in canada so my C b d oil is through the government . I take cbd 20mg / cbn 10mg. I take 0.5 Ml Of a
Syringe. I am changing 2 a gummy.I just have to have my meeting with my doctor. I.
Tried lyrica.It's a powerful drug.I couldn't use it

How much Lyrica were you taking a day and what side effects made you stop?
Thanks.

Hope it helps! Be aware that the Valerian has a natural smell of "dirty socks". The capsules have no taste. It is normal for this Valerian root to smell this way. I suggest you keep the plastic bottle it in a sealed container after opening.

Fibromyalgia is kind of a catch-all for indiscriminate nerve pain. I was diagnosed 20 years ago. I didn't really "buy it." I couldn't make sense of it and why and when. After I received some other diagnoses, I could periodically make it go away. Seemed the worst when I was experiencing: menopause, inflammatory reactions, my muscles were "bound" up and I was having fatigue. I have tried everything but for me - getting rid of inflammation, which excited the nerves and caused massive fatigue, was probably the answer in my case. Solutions were: going on Bioidentical Hormone Replacement Therapy, changing my diet and adding amino acids which weren't getting digested properly (Spectracell has a GREAT test for deficiency), regularly going to an acupuncture doctor (this was the most helpful!); using yoga to stretch and deep breathe, having a nutrition analysis so I found out I was lactose/gluten intolerant and that cleared the brain fog, and gently exercising (walking) which kept circulation moving. The nerve meds NEVER helped me. l took them all. I am super sensitive to medication and I could not tolerate them. Find a GREAT deep tissue myofascial release therapist (there is a section here on MFR) and that should really put you in high gear after a few months. I found tart cherry capsules (Zazzee brand) helped me after 30 years! found it thru this group! My pain was misdiagnosed! Although I am riddled with osteo arthritis - so they mistakenly said that caused my whole body inflammation -- it turned out it was Gouty Arthritis (high uric acid levels) which caused my 30 years of whole body inflammation! It has been a life changer for me. I am back on HRT at 67, I tested for LCarnitine deficiency so I take a suppliment, take vitamin D (because we all need to at older age) and i'm feeling GREAT. So much better than the crap I was going thru 20 years ago! Its a personal journey for sure!

My Treatment Survival List
This is a list of what has helped. I am highly reactive to prescriptions and avoid them at all cost if possible. I have compiled a 1½ page list of allergic reactions to various meds to avoid repeats.
1. Acid Reflux after meals: 4 or 5 almonds after breakfast; ½ teaspoon of baking soda in water after lunch, one Tums after dinner (sometimes forced to take 2 tabs). Tums can give you side effects. If you try vinegar/water treatment -NEVER TAKE WITH BAKING SODA!
2. Heating Pad - Has worked in the past for pelvic pain
3. Knudsen Tart Cherry - Decreases Inflammation - Has changed the nightly every 1.5 hr trips to the bathroom to 4.5 hours, never caused by urinary tract infections - has been inflammation all along.
4. Gatorlyte - High dose electrolyte drink, only 60 calories since stevia is used for the sweetener. Helpful when I have muscle cramping in many, many other parts of the body.
5. Lemon Balm - Calming
6. Magnesium Glycinate (350 mg) by Life Seasons - Is a “Buffered” 4 pill daily dose.
7. Mt Olive Pickle Juice - I keep one small “Pickle Juice Sprots Drink Shot” by the bed, stops cramps in about one minute to a minute and a half (maybe less, just seems like an eternity). I peal off the outer plastic cover without unscrewing it, until needed so it will not spoil until used.
8. Passion Flower or Valerian - Puts you to sleep
9. Prevagen Extra Strength (3 months to become effective after initiation) - Cleared the brain fog
10. Probulin Probiotic - Colonic Support - very expensive, plan taking for a couple of months due to years of physicians prescribing Omeprazole (PPI) when the literature stated not to take for longer than 14 days. I am convinced this wreaked havoc on my digestive system. This was further aggravated by physicians prescribing antibiotics for UTI’s which were false positives due to faulty specimen collections. The pain was inflammation all along.
11. Theraworx Relief for Muscle Cramps (Foam) - Spread on thighs and calves before bed. Have used for the last 6 nights and seems to work.
---------------
Notes: A one-hour rest in the afternoons is very helpful. The Lemon Balm, Passion Flower or Valerian is taken at night before bed. The Tart Cherry Juice will make you tired but I do take it during the day. You can add a little water to the glass, is less tart if you do not eat anything sweet before drinking. Walmart is the least expensive that I have found.

As of 13 Dec 24 - No muscle cramping at night with the use of Theraworx one application on thighs and calves before bed. What a wonderful over-the-counter product!
Had a bad episode last night after I went in to lie down, same as last Dec for some reason (maybe the cold had something to do with it). Whole trunk of body (below the neck to hips) very tight painful, especially to touch. Went to ER last Dec because the Nurse Line though it was the heart, nothing found except slightly low Potassium. So, last night just used a heating pad to the back and took Tylenol until it slowly subsided. Guess it was just my old friend "Fibro".

Thank you for taking the time to send helpful advice and inspiring information.

I sometimes wonder if I have been
Misdiagnosed ! One doctor said fibromyalgia and one said polyrhythmic syndrome? Even though my blood work was ok! I am in agony and the pain is getting worse!

My Treatment Survival List
This is a list of what has helped. I am highly reactive to prescriptions and avoid them at all cost if possible. I have compiled a 1½ page list of allergic reactions to various meds to avoid repeats.
1. Acid Reflux after meals: 4 or 5 almonds after breakfast; ½ teaspoon of baking soda in water after lunch, one Tums after dinner (sometimes forced to take 2 tabs). Tums can give you side effects. If you try vinegar/water treatment -NEVER TAKE WITH BAKING SODA!
2. Heating Pad - Has worked in the past for pelvic pain
3. Knudsen Tart Cherry - Decreases Inflammation - Has changed the nightly every 1.5 hr trips to the bathroom to 4.5 hours, never caused by urinary tract infections - has been inflammation all along.
4. Gatorlyte - High dose electrolyte drink, only 60 calories since stevia is used for the sweetener. Helpful when I have muscle cramping in many, many other parts of the body.
5. Lemon Balm - Calming
6. Magnesium Glycinate (350 mg) by Life Seasons - Is a “Buffered” 4 pill daily dose.
7. Mt Olive Pickle Juice - I keep one small “Pickle Juice Sprots Drink Shot” by the bed, stops cramps in about one minute to a minute and a half (maybe less, just seems like an eternity). I peal off the outer plastic cover without unscrewing it, until needed so it will not spoil until used.
8. Passion Flower or Valerian - Puts you to sleep
9. Prevagen Extra Strength (3 months to become effective after initiation) - Cleared the brain fog
10. Probulin Probiotic - Colonic Support - very expensive, plan taking for a couple of months due to years of physicians prescribing Omeprazole (PPI) when the literature stated not to take for longer than 14 days. I am convinced this wreaked havoc on my digestive system. This was further aggravated by physicians prescribing antibiotics for UTI’s which were false positives due to faulty specimen collections. The pain was inflammation all along.
11. Theraworx Relief for Muscle Cramps (Foam) - Spread on thighs and calves before bed. Have used for the last 6 nights and seems to work.
---------------
Notes: A one-hour rest in the afternoons is very helpful. The Lemon Balm, Passion Flower or Valerian is taken at night before bed. The Tart Cherry Juice will make you tired but I do take it during the day. You can add a little water to the glass, is less tart if you do not eat anything sweet before drinking. Walmart is the least expensive that I have found.