1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Texas Freedom | @oregongirl | Feb 15, 2018
In reply to @audreyb "Don't know if there is a cap?.right now Medicare premium in San Diego is $134 month..." + (show)
@audreyb

Don't know if there is a cap?.right now Medicare premium in San Diego is $134 month but some income levels pay more based on incomes over a certain level..suggest you look/read the annual Medicare booklet published and mailed to those enrolled in Medicare . I believe you can request this publication from Medicare.
Liege

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I am so lazy. I get those thick books and throw them in the trash. Now I need answers and will pray the price for throwing it away. LOL

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lioness | @lioness | Feb 15, 2018
In reply to @pitagirl "I read your story. I was dx: in 2003 with Fibro and 2006 approved for SSI...." + (show)
@pitagirl

I read your story. I was dx: in 2003 with Fibro and 2006 approved for SSI. It was not even recognized as a disease in 2003, I can hear where you are coming from I was there. One being alone all day is probably causing you some depression I did but there is the help. Also, all the trigger points i have 16. I took Norco 6x for 6 yrs until i realized that those drugs were killing me. Had my doctor put me on Tramadol 3xday only 50 mg and savella 100mg 2xd. I know you say you don\'t drive but if you want to know what i did you would have to figure out how to get there. I joined the gym aqua therapy is a blessing your weightless. I even got myself into the gym after the therapy and took it slow. I found the light impact very slowly to start. I felt better. Did not help with the sleep issues we do not go into Rem sleeping crazy. Hope my words helped you.

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How horrible ,morphine is potent sorry you went through that When I fractured my back they gave me morphine horrible I was hallucinating .I just got off Predinisone it's a steroid where you take 3 down to 1over 6 days and day 7I was climbing walls I hurt so bad but now back on my meds.Steroids are hard on the kidneys @liver they must give a small amount to infuse that often.The tramadol +1Aleve work for me ,long time ago I was on Vicodan 3a day Rummi said this is not addictive this way God bless us all .take care Linda

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lioness | @lioness | Feb 15, 2018
In reply to @oregongirl "I know we pay that for our Medicare. AND, I have suppliment insurance which runs me..." + (show)
@oregongirl

I know we pay that for our Medicare. AND, I have suppliment insurance which runs me nearly 250.00 a month now. Goes up every year. They would love to get rid of me. But, before I would give up my suppliment, I would skip one meal a day. I never pay a dime out in medical bills. But, I wondered if there is a cap that Medicare will pay? Like lifetime max $300,000 or something like that. I will go on line and see. I was self employed. I feel like my whole life, I worked just to keep my husband and I in good health insurance.

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I don't know about lifetime cap but yearly it's 2500.00 I think Yes I also was self employed but nursing was my full time job.Now that I retired I'm not as comfortable as I thought I would be It seems it you don't put money away or enough for retirement the Medicare Medical people get all there medical care free

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Texas Freedom | @oregongirl | Feb 15, 2018

Yes, you work hard at your employment giving your all only to retire and realize, there is NO money going into the bank, just out of the bank. The kids today are different. They saw how we struggled after retirement. They now demand retirement benefits from their employers plus vacation, sick leave you name it. When you are self employed your your employee get the day off. Not you. I made a good living. I make too much to get help, and to little to survive. When my husband became ill, and died, I lost his SS. and his Navy benefit. I went from comfortable to poverty overnight. I am very fortunate. A friend of mine had no one to leave his home to. He left it to me. I lived there two years after he died. But, medical was NILL where I lived in the middle of nowhere. So, sold house and moved to Texas. Best medical I could ask for. I guess I just dont know the games you can play to get this and that from the County. I know a friend of mine lives very comfortable while the County pays her rent and drives her two hours to the doctor and back. I pay my rent and I pay my ride over and back. Does not seem fair.

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6 replies
lioness | @lioness | Feb 15, 2018
In reply to @pitagirl "Age doesn\'t matter pain is the pain. Support for a loved one is so important. I..." + (show)
@pitagirl

Age doesn\'t matter pain is the pain. Support for a loved one is so important. I just reunited 2 yrs ago with my former boyfriend apart for 30 yrs. Love him to pieces but makes me feel sad. I wanted to get a book to read, send articles. Every time there is an issue he gets pissy. So i can relate to you. You say you are looking for assisted living. If $$ is an issue and we all know what that is about. If you are on Social sec disability or your state insurance. You can call the local chapter of adult social services. They will assist you or call 211 and tell them you need resources. Instead of senior living look into subsidized living. There will be a list but take only 30% of your income. Grant, it it is not the tosh mahal but maybe that can help. I to go on the computer keeps my mind busy love my games lol and two dogs a Pomeranian and a 50 %beagle, 37 Boston terrier and 13 bulldog had her DNA done 🙂

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Audrey I moved from Pa to Ca what a sticker shock for me in the rent prices out here I live in Long Beach in a affordable senior building I had to go on Sec 8 as I couldn't afford the rent 29,000 is the income level in L.A. County. Can't you get rid of your property in mobile home park if your mobile home isn't eligible can't you have the health dept red tag it ?If your a senior call the Office of the aging ,maybe they can suggest something?

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lioness | @lioness | Feb 15, 2018
In reply to @oregongirl "Yes, you work hard at your employment giving your all only to retire and realize, there..." + (show)
@oregongirl

Yes, you work hard at your employment giving your all only to retire and realize, there is NO money going into the bank, just out of the bank. The kids today are different. They saw how we struggled after retirement. They now demand retirement benefits from their employers plus vacation, sick leave you name it. When you are self employed your your employee get the day off. Not you. I made a good living. I make too much to get help, and to little to survive. When my husband became ill, and died, I lost his SS. and his Navy benefit. I went from comfortable to poverty overnight. I am very fortunate. A friend of mine had no one to leave his home to. He left it to me. I lived there two years after he died. But, medical was NILL where I lived in the middle of nowhere. So, sold house and moved to Texas. Best medical I could ask for. I guess I just dont know the games you can play to get this and that from the County. I know a friend of mine lives very comfortable while the County pays her rent and drives her two hours to the doctor and back. I pay my rent and I pay my ride over and back. Does not seem fair.

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Are you over 65? If you are you can get your husband's social security I do I get widows social security as my husband's made more then I did.Most of the people here are well if ,they know how to hide there money ,they get cash and give it to there kids I never could do that.In L.A. County the income level for Sec 8 is 29,000 a year.I never made more then 22 myself ,This senior building is 6floors ,we have a gym ,library,computer room,rooftop is finished for our uses,so all in all I'm comfortable.

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Texas Freedom | @oregongirl | Feb 15, 2018
In reply to @pitagirl "Age doesn\'t matter pain is the pain. Support for a loved one is so important. I..." + (show)
@pitagirl

Age doesn\'t matter pain is the pain. Support for a loved one is so important. I just reunited 2 yrs ago with my former boyfriend apart for 30 yrs. Love him to pieces but makes me feel sad. I wanted to get a book to read, send articles. Every time there is an issue he gets pissy. So i can relate to you. You say you are looking for assisted living. If $$ is an issue and we all know what that is about. If you are on Social sec disability or your state insurance. You can call the local chapter of adult social services. They will assist you or call 211 and tell them you need resources. Instead of senior living look into subsidized living. There will be a list but take only 30% of your income. Grant, it it is not the tosh mahal but maybe that can help. I to go on the computer keeps my mind busy love my games lol and two dogs a Pomeranian and a 50 %beagle, 37 Boston terrier and 13 bulldog had her DNA done 🙂

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Lioness. WOW excellent suggestions for Audrey. My daughter lives in Long beach. She wants me to move there. How much is your housing and what is the name of it?

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Texas Freedom | @oregongirl | Feb 16, 2018

Cant wait to hear the name of the building. What part of Long Beach

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virtuous69 | @virtuous69 | Feb 16, 2018

@clownscrytoo
My word,your story mimics mine to a T and probably many other members too. You are so not alone. I take the same meds, am 70 years old and my spinal stenosis issues add to my pain. I too am a bed potato while I wait for the meds to kick in, and I lay on a heating pad for my lower back stenosis pain. Good thing you have an understanding husband.....so do I and that so helps. I take life one day at a time, cannot volunteer or do the hobbies I like. I stand on God's promises that He will come along side of me. I get physical therapy when a fibro knot or a degenerated spinal disc goes way out of whack. Sometimes I log into the "just want to talk" section of Mayo Connect because I need to vent. I notice that if I have a busy day, the next day is a total wash out. I try to run only one or two errands a day, and the next day I'm down for the count. I no longer feel ashamed. Trying to maintain good posture helps. Computer chair sitting can aggrevate. Drink plenty of fluids. Move when you can. When you can't, rest. May God bless you, show you favor and plenty of friends who understand. Sending you a basketful of love.
Victorious69 (Dori)

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7 replies
virtuous69 | @virtuous69 | Feb 16, 2018

@sandytoes have give some consideration about asking my primary doc if medical marijuana would help the fibro and degenerative disc disease. Am hearing great things about stem cell placement, but so far its only for the very rich. Dori

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