Preparing to Age in Place
Many of us in the Aging Well Support Group express similar concerns. We are currently doing o.k. in our homes, on our own, but recognize that disabilities may be on our horizons.
Can we be reasonably proactive about this?
What can we do to stay in our homes as long as possible?
What can we do to gracefully reach out for assistance when we need it?
What can we expect the costs will be as we try to imagine the economies of our lives as we age?
What modifications can we make now that will make life easier when we have less strength and energy?
Interested in more discussions like this? Go to the Aging Well Support Group.
@isadora2021, you're very blessed to have family close by to help...and who don't mind helping. Some people have posted that their children and/or grandchildren don't want to have anything to do with them. And that's so unfortunate.
I'm sorry that the concierge term, and the rates mentioned make you think senior/assisted living is out of reach except for the rich. While it is true that many well-advertised places charge very high prices, many of our facilities in Minnesota have 10-40% of the units dedicated to subsidized housing - meeting HUD low-income qualifications, where one pays a fixed portion of their income & the balance is covered.
When my Mom entered, she was definitely not in the "top 20%" probably more like the bottom 25-30%. At first she only needed an apartment with housekeeping and could contract for other services as she became more frail. Using the equity from selling her mobile home, she could demonstrate the ability to "self-pay" from her SS, tiny pension and savings for at least 6 months, and didn't have to wait for a subsidized unit to come available. Then, when her assets were below the designated limit (around 5000 then) she qualified for subsidy right away. As she needed ever more services, we qualified her for Medical Assistance to cover her bathing, meds, etc. The only thing she had to cover above the rent was her meals plan, and the amount the rent subsidy left enough of her income to cover it.
I know the situation is the same because my sister was financial/medical POA for a friend, and she secured a place for him this fall in the same building, starting on subsidy right away. His wait on their list was under 6 months; unfortunately he passed away the week he was to move in.
On the other hand, my cousin spent her last last months in what we called "a ladies' home." There were many when I was growing up - they are more rare now, but can be found. She shared a home with the owner and 3 other women with similar care needs. The owner was a retired but still licensed RN, and she had aides with her around the clock to assist. It cost my cousin $2200 a month in San Antonio - a combination of her SS and small savings (like you, she did not own her home outright).
So depending on where you live, you may want to check.
My brothers son was born paraplegic and requires assistance everyday. My brothers income has never been good because he takes jobs that allows him to care for his son who has tried to work but his health issues keep getting in the way. I see your dilemma. But many people who are average people could afford these apartments. Maybe it is because they sold the home.
Nurses deserve to be paid a professional wage. They do ALL the work in the hospital and their education supports that.
I don't believe the current generation won't have homes to sell. When I bought my first home the interest rate was 15%. What is different now than then is we didn't have talking heads telling us how bad we had it. We just did it.
Yes an I'll and aging population is a problem. I both those things so I'm not pointing figures
Also a home is a very poor investment if you don't pay cash for it. In most environments you will pay for that home more than twice because of interest and the up keep is expensive. Sometimes I think let the landlord deal with the headaches and put that money you send in up in another more liquid investments.
@my44. Yes my father is very fortunate to have such a close family network around him. He is immensely grateful but we are grateful to have him in our lives too. It sure helps there are so many of us.
For myself - I think 2 of my nieces would help me if I needed them to do so if at the time they lived nearby.
I have to prepare ahead on the basis I won’t be as fortunate as my father. I too need to plan now as if I won’t have that family help.
Thanks for adding to the conversation
Thanks for your response. First, yes, the "concierge" word brings up privilege to me like "concierge doctor" - that's where my mind goes. Private dr that comes to your home and you pay pay pay. And probably the split between the have and have nots is so huge right now, no more middle class really. As hourly wage goes up, which is needed, that SSA check is worth less and less. The COLA doesn't even pay the increased cost of insurance never mind the cost of groceries everyone complains about. It was a presidential issue.
And I'm privileged to pay for better insurance. I would take food off the table to pay for my medigap plan. And very grateful its even an option. A friend, people on SSI (not SSDI) is living on $860 a month? Not allowed to get any kind of gift "legally" without deducting it from her income. If I buy her dinner, she is supposed to report it and it gets deducted next month.
BUT, on Medicaid, she has amazing home health care. 36 hours a week and well, ill keep my opinions of how much of it is needed. At 55 you dont need someone in your house to remind you to take meds because you have ADD. She's a good friend and I dont deny her all she does to get what she does, but medicare doesn't pay for nearly what she gets.
If I had medicaid, I could get them to pay for someone to drive me to Mayo in Feb. I know this because she did.
And I think we are made to feel like everyone is just a millionaire these days. That word was used very little but now it seems everyone in Congress etc is at least a millionaire. They say $150,000 a year is what the average family needs to live comfortably. Its hard to be closer to the have nots and hear people donating a billion to pay for an election party but that same person is talking about doing away with medicare, medicaid, retirement SSA. Or saying "its going to hurt people" (the disabled and seniors) but we will reduce checks by 25%. Its depressing. And angering.
Good for Minnesota for treating seniors with respect. What exists here is PACE. Its aldo what my mother was on to lower her assisted living rent to $3,000 9 years ago. Still a lot of money!
Friends here went looking for assisted living and it was 9,000/month! We have PACE here but they cover your medical care like an HMO but it reduced it to like 5,000 a month.
I really have trouble believing that average retired people can pay $5,000 a month? Am I way out of the loop on money in the world? Are many people retiring with a million in thd bank lije they say you kind of need now? Not in my world tho I fo hsve friends with trust funds. Just not a thing I even knew what it was.
I've also found out this year that it costs a fortune to "become visibly disabled." People might be surprised to find out medicare doesn't psy for scooters that leave the house. Or folding or lightweight wheelchair that a single older person still can't get into the car. So, $3300 plus to have a hoist installed. Folding electric wheelchair $2000. Scooter I thought would work $2000 but where I live its so hilly the scooter can't even manage my driveway, so a wheelchair. And a new mattress and automatic bed that my PT said I needed as my mattress was responsible for some of my pain. Anyway, you get the picture. $9000 on credit cards at 28% for mobility equipment. I'm suddenly drowning in debt I can never pay off never mind that medicaid in a nursing home leaves you I think $40/month for personal items?
Everyone talks about a generation of people who will never own a home. A friend in her 30s with 2 Masters knows she will never own a home with school loans that reduce the amount a bank will even let you borrow.
I kniw its complicated but its about aging in place. You can't do it if you can't pay out of pocket for a home health aid. Where do you get help with groceries? I kniw things aren't going to better physically for me or any of us. I'm 69 and struggle to get groceries into the house and put away. And that's it for the day. Dishes pile up. I'm not unique in any of this and certainly not special that I "deserve" more but realistically, when I can't carry in groceries anymore, or drive or yeah, change my sheets more than once ever few months (I kniw disgusting but reality for many seniors living on tuna. I'm not and very grateful.
I was really just saying aging in place is not reality if you don't have the money for all this private pay stuff. You age not even knowing what Medicare will pay for and not. Suddenly at 65, I had a $560 medication deductable I didnt have when disabled. All out of pocket in Jan. No gifts for anyone at xmas if you want meds for the first 2 or 3 months of the year. And again, I'm very privileged to be able to not have to be on an Advantage plan and pay so many copays, get denied coverage, etc.
Yes, its complicated. But even at 2200/month to live with other women is not doable if you have to pay your share of electric etc.
Me and frirnds have often thought if 6 or 8 of us pooled our money we could rent a huge house and take care of each other or maybe afford a housekeeper. I do know that "ladies homes" used to exist. There was one in my small town in MA where I grew up. A friends aunt ran it in her actual home. An older polish woman who took care of older women till the day she died. Not easy to find things like that.
But I bought a condo 7 years ago because it was first floor and there was already a cutout in the sidewalk. 2 bedrooms 2 baths so I could have a college student live hers for free and help with some things. I didnt expect that to be now! And I don't want someone living here right now as long as I can. I've lived alone my whole life. I'm up sometimes all night watching TV like right now.
Anyway, how can I hear that everyone is struggling but come here and of course everyone can pay for assisted living? I feel like I'm being told I'm wrong or the exception to the rule. And yes even having kids doesn't mean they will be near or we know they are the sandwich generation. Older parents and younger kids. And working full time as everyone I know needs two incomes. My reality is just different than others here I guess? That doesnt feel true tho.
Agjng in place is not so much of a reality if you aren't 100% independent. Or can afford home care. I was more about what insurance will cover and what it won't which we find out as soon as we are in need.
And sime states are better than others of course. NC not do much caring about disabled or alone seniors. Many homeless seniors all around the country. There but for the grace of god...
Thanks for your ear. Always open to suggestions but our realities are different clearly. There has to be people here who understand what I'm saying? Aging in place, for too many, is a misnomer. And I'm one of tbe lucky ones. Truly.
Most of us would probably like to stay in our homes through the very last day of our lives, but preparing to age-in-place does not guarantee that will happen.
I assume that my wife and I will probably face losses of strength, agility, perception and cognition as we age.
We can’t say how soon or how severely, but it would be foolish to deny the possibility.
We don't have unlimited finances. We must use what we have wisely.
I imagine preparing to age-in-place as a continuous process of observing and learning how we use our resources to care for ourselves, looking to make whatever adaptations we can make to extend the time we can stay in our home.
I recently began to have episodes of vertigo, and the grab bars and extra stair rails installed around our home have saved me from falling more than once. I’m carefully doing squats to strengthen my thigh muscles, and early next year will see a Physical Therapist to work on balance and mobility. When I leave the house I use a walking stick for extra orientation. Many years ago a nonagenarian called it “tripoding.” But the grab bars and walking stick were already there when I needed them, so even with vertigo I get around quite well.
We’ve just ordered a bidet toilet seat, and are considering getting a Japanese toilet which does all the bottom cleaning functions automatically.
When we decided to enclose our back porch a few years ago, we said that the cost of doing it was less than the cost of one month in assisted living, so if having a wheelchair accessible sun room could enable us to stay here just one month, it would be a bargain. The same for the walk in shower. And maybe the Japanese toilet.
We do have long term care insurance. It can be used for care services in our home, which would maximize the benefits.
We still need to plan how we would adapt to downstairs living if we can’t manage stairs.
We don’t know what the future will bring, but there’s much we can do to hedge our bets.
And by “we” I mean most of us participating in MC Connect Aging Well discussions.
I don’t think I’m the only person who has been supported by these discussions.
@denisestlouie
You make many uncomfortable but valid points.
In an ideal world all of us would start planning for retirement as soon as we joined the workforce. We don’t for a wide range of reasons. For myself, because it was way down the track and there were much more fun things to do with my money (such as travelling) and I had a naive belief things would be fine.
I was very lucky that I rose through the corporate world and made very good money. I could make up for lost time when I finally wised up. The tax system in Australia during my life has also been structured to get people to put money into super. I needed the tax deductions which helped incentivise me to “save” by putting money in each tax year. My super then grew substantially through the fund’s investments over the years.
While interest rates were very low, I also bought a home and prioritised paying off the mortgage as quickly as I could. Yes I’m lucky I could - but through a lot of hard work, long hours and sacrifices. With the housing crisis I am now very grateful to own the roof over my head and not fear the rent rising or worse being evicted. So many people in Australia ARE homeless, even some who make a decent wage.
I know I’m extremely fortunate to be in the position I am and so darned relieved I made wise financial decisions when I could.
No children or family to help during ill health and/or in my older age though is a different and new challenge.
Money sure helps get outside assistance, whether it’s your own or strong government policies to provide support. Yet many voters don’t agree with providing that support.
It’s a hard world that constantly needs careful planning. New home structures like a group of women or men in a shared rented house is one possibility I read on here. New challenges. New solutions 🤔
Oh. I was just re-reading. We have "lots" (?) of low income housing. Not lots as the waiting list I think is years.
But also, rereading what you said about HUD. I'm in that gray zone. I have too much SSA to qualify for any assistance, food etc. But that also makes me way way better of then people making < 1000 month which is who really needs those places based on income.
The thing for me is I bought a condo 7 years ago that it was kind of in bad shape and was in pre-foreclosure so I was able to get it, and a local organization that helps first time homeowners buy a place by giving the deposit at 0% interest that is a lien on my condo but doesn't need to be repaid till the end of my mortgage. My seven year old 30 year mortgage ends when I'm 93. I'm not concerned. My "estate" lol can handle that or the gov takes it all to put me on Medicaid for a nursing home.
My mortgage is only $700 which is just amazing. As long as they dont cut down SSA, I'm ok. First floor. Ramp. All that stuff is good for being able to stay here I just don't qualify for anything. Make too much to get help but not enough to pay for it myself. Hundreds of thousands of us in this between place.
So I'm more fortunate than many! But that doesn't make or those in that gap with me, lucky right?
I'm also particularly depressed right now living in the middle of a war zone still since I'm in Asheville and it's going to be like this for a long, long, time. Doors on falling down houses marked with a big X which means people died there. Up and down streets all the furnishing piled up in the front yard. Just 1/2 mile from me and I'm not close to the really bad spots.
We just get to hear the personal stories that aren't on the news. A family from church and their house just floated away. I don't even know if they found the kid's bodies. That's where I'm living. So that feeds my depression. Everyone living in the air of trauma. It took me days to realize how close I came to serious damage from tornadoes. Trees the width of trucks uprooted and still just laying there.
The world moves on. It affect all of our mental health. And Christmas with kids who have zero belongings. People all pitching in to try to normalize something for these kids also who have lost friends. 10 and lost their best friend. So yeah, feeds how hard it all feels. So, Im sorry.
Its going to be about a year before Mayo can replace my hip I injured when I fell last March. Its been a wake uo call to be in so much pain AND yes, get my groceries, almost falling in the bath a few times a week.
A wake up call to this topic. I just need a hip replacement but will waiting put me in a home?
Are we all are one fall from a nursing home? Kind of yes but its been that way for seniors for decades or more. I've just never been here before with it being me?
Too close to the bone I guess. Ill stop.
I get it! I had better breaks in life than you, but started out at zero with my husband, and we gradually worked our way to where we are now. We still can't throw money around, because I'm pretty sure I'll see 90 as several of my aunts have done - one is still fully "with it" at 97, although body doesn't agree.
I understand the devastation you are living with in Asheville, but in better times do you have a senior "chore corps" or similar group that could help with your shopping?
Or you mentioned being a graphic artist, I think? Could you trade services with a young, just starting out client to get your housekeeping done biweekly or monthly?
I have big perennial gardens I can no longer manage alone, so I trade "plants for muscles" with new gardeners - I get help, they get far more plants than they could afford to buy along with planting advice, and sometimes even garden design advice.
Can you think outside the box to get what you need? My friend is an artist - she traded teaching art classes in a small town art gallery for studio and gallery space and access to tools one summer.