Fibromyalgia pain: Let's connect

I did not sleep a wink last night. Having trouble relaxing my entire body. I’ve read explanations for muscle weakness and fatigue in FMS, and it involves depleting your energy supply on a cellular level. I’ve found a product that helps replenish that precursor substance, D-Ribose, which is a 5 Carbon sugar, (C5H10O5)which has kept me upright and walking on vacation activities and such, but I’m starting to feel kind of overtired...

I've heard of D-Ribose but never tried ,thanks will start on it.I didn't sleep either last night

Hi! I’ve had fibro for about 15 years. About 5 years ago I hit on the magic cocktail. Obviously, everyone is different, but if it helps at all, here goes:
AM
225 mg Venlafaxine, 100 mg lamotrigne
PM
900 mg gabapentin, 25 trazadone, 1 mg lorazepam

30 min intense cardio a day is KEY for me bc it majorly helps for sleep. Getting a good nights sleep is the most important thing for me pain wise.

I still have flares here and there, but I hit the heating pad, get a good night’s sleep and i’m Usually back to normal the next morning. I hope you get some relief soon!

Hey there. Thank you for your response

I agree with you! The Dr. Looks at you like a drugy. I take tramadol with gabapentin. It's just keeps me moving. Does nothing for flare ups. I too, have more pain when weather changes.

i so happy for you that Gabapenten has worked for you. I take 3 pills a day and nothing. My brother also uses it and he get relief. I take Oxy when I really, really need them. Although it takes the edge off, it really does not help. That is why I am going for PT and steroid injections.

I had great satisfaction with the Steroid shots. I had a terrible rash for years. I dd not even know that it was associated with the RA. My doctor was only a General. I had to drive 4 hours to get to a Rumi Dr. I lived in middle of nowhere in Oregon So I felt fortunate to have the general. BUT, the difference with a RUMI doctor is day and night. The rash is gone. It will reappear again from what I have been told. But, now we know how to stop it. I am still getting the shot every visit and just got one yesterday with my infusion treatment. I must tell you to talk to your doctor about infusion treatment. Here is the drug they use. I am also listing(in next) post the drugs they give prior to the infusion. I am a new women today. I honestly can tell you I have no pain, EXCEPT for a fall I had as I was leaving. I hit my hip on something. Otherwise, pain is gone. I will have two more infusion treatments.

Here is the information I promised.....Infusion facts: I took Methotrexate 2.5 mg for 6 week by pill. It made me very ill whenever I ate. I would throw up each time by the 2nd bite. Then doctor put me on self injection by needle Methotrexate. I did not have any nausea with this shot I injected myself once a week. After one week my Infusion started. By IV a small bag but took 6 hours to take in. It is run very very slow. Then increased slowly by nurse every 30 minutes. Every one has a timer. I was in a room with about 20 or more people all receiving Infusion for different things. Cancer, RA and others that I don't know about. I have two more Infusions to come every two weeks. I believe the mg will be increased each time. The infusion drug is called riuximab. Prior to the infusion of the riuximab I received by IV Tylenol, 650 Mg tablet, then pepcid by IV 20 mg.,then by IV, solumedrol 125 mg IV Benadryl 59 Mg, then they wait a few minutes and start the rluximab. It is considered aggressive. But, my RA was out of control due to poor medical in Oregon. I suffered for months when it could have been controlled. I have no idea how long this lasts, but even one day has been paradise. I actually got on the Treadmill today and did 5 minutes. I want to increase to 30 minutes eventually. The exercise I need for weight loss and making me strong is once again. It is proof to me that the drugs are working. NO HABIT FORMING DRUGS< NO Narcotics. I LOVE it. Talk to your doctor about this. If he or she will not listen get to a Reumy as soon as possible.

Lynneb, Well Fibro vs RA, is probably the way the pain is in your body. If my right leg hurts, my left one hurts, if I get itchy on one arm, it also affects the other arm. There is a blood test to prove the RA. But, she also had my blood checked for possible cancer due to one of my blood tests which she received. She is very careful. She said day one that she wanted to check something before she did any "icky" items that I would have to endure. Bone sample etc. I also get headaches, which you get with Fibro. I have fevers and very very hot spells with no warning. I am 75 so it is not hormonal. The pain is horrible, but I am sure FIBRO is also bad. I guess if I had to choose, I would take RA over Fibro. There are treatments for RA, but no one talks about treatments for FIBRO. I will watch the video and give you my feedback. I feel so good today, that if I had the money, I would head for the Mall and buy them out.

Sandytoes, YES brain fog also happens with RA. I have noticed it more often lately. I don't want my kids thinking I am having difficulties that reflect elderly brain diseases. I wonder how many Fibro and RA patients have been diagnosed wrongly and they are prisoners of the nursing homes. How sad.