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Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Texas Freedom | @oregongirl | Jan 29, 2018
In reply to @parus "I would that things would improve for all of us. Fibro is not for wimps nor..." + (show)
@parus

I would that things would improve for all of us. Fibro is not for wimps nor is depression/anxiety/old age. Cannot surrender to self pity lest I become even more alienated from the busy world. I do not mention fibro as I fully know the eye-roll thing. I know I push too hard at times and then pay for doing so. Perform well for others and they expect it all of the time. I can understand how it appears I am faking. I even tell myself I am and I know it is not true as I do not have a history of laziness. Largest part of the problem is that it happened so quickly. People know the vibrant, engaging person I once was and wonder why I am pretending to be hurting. I cannot eat like others and have found some get offended as they see me as wanting attention. Enough chronic negativity from this chronic pain body.

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Parus. How well I know this came on so quick. For a couple of years and then months it was boiling and suddenly I am weak and tired. I too was so active in my 40 yrs of realestate. No one could keep up with me. Financially, I have gone downhill. God will take care of me. My eyes are having trouble also. Still able to read.
Depression would be an easy train to board. I would not be depressed because I have this ilness only because others think we are taking.

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lioness | @lioness | Jan 29, 2018
In reply to @parus "I would that things would improve for all of us. Fibro is not for wimps nor..." + (show)
@parus

I would that things would improve for all of us. Fibro is not for wimps nor is depression/anxiety/old age. Cannot surrender to self pity lest I become even more alienated from the busy world. I do not mention fibro as I fully know the eye-roll thing. I know I push too hard at times and then pay for doing so. Perform well for others and they expect it all of the time. I can understand how it appears I am faking. I even tell myself I am and I know it is not true as I do not have a history of laziness. Largest part of the problem is that it happened so quickly. People know the vibrant, engaging person I once was and wonder why I am pretending to be hurting. I cannot eat like others and have found some get offended as they see me as wanting attention. Enough chronic negativity from this chronic pain body.

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This is the sad part of fibromyalgia it robs us ,of are normal self,It took me along time to realize this but I still do overdue then pay for it.There is a good article from Dr. mercola Mercola.com about Magnesium .in today's issue

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lioness | @lioness | Jan 29, 2018
In reply to @parus "Anyone else being accused of faking pain that has no history of such prior to fibro...." + (show)
@parus

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else's good intentions hinder the visit. Every thing is blamed on depression.

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Take one of your family members with you

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lioness | @lioness | Jan 29, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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Yes I love Epsom salts bath.I have another problem besides fibro ,I have a fractured back the L 2in 2005 ,now I have pain in my upper thighs all the time Dr.t.says it's my nerves coming from lower back to legs ,the only relief I get is Arnica gel

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Texas Freedom | @oregongirl | Jan 29, 2018

I prefer to go alone. I cannot stand noises that come out of my son when I am explaining my pain. He says, now wait a minute mom, don't confuse doctor. I was ready to strangle him. Lord knows he has been to Drs. Maybe o will go on his next appt and do the same to him. But that is not me

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4 replies
Texas Freedom | @oregongirl | Jan 29, 2018
In reply to @parus "Anyone else being accused of faking pain that has no history of such prior to fibro...." + (show)
@parus

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else's good intentions hinder the visit. Every thing is blamed on depression.

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NO..did that never again.

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LynneB | @lynneb2110 | Jan 29, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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@oregongirl, do you have other friends who are able to support you, perhaps from a church circle or a support group? I wonder if you can insert them in your life in place of where your kids (meaning both son + DIL) ought to be? If your are able to take comfort in that kind of support, I imagine it might help. A lot.
I’m still in favor of therapy for you. If you think you need it, you do.
I’d find articles that talk about family support for these illnesses, and how important it is. How some people fail to recognize that their loved ones’ pain is legitimate. Also, articles on the illnesses themselves. Symptoms, diagnosis, treatment. It might or might not help convince them.
And NO doc would do that for fun. Just using you for tests, did your son say? That’s...deplorable.

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LynneB | @lynneb2110 | Jan 29, 2018
In reply to @oregongirl "I prefer to go alone. I cannot stand noises that come out of my son when..." + (show)
@oregongirl

I prefer to go alone. I cannot stand noises that come out of my son when I am explaining my pain. He says, now wait a minute mom, don't confuse doctor. I was ready to strangle him. Lord knows he has been to Drs. Maybe o will go on his next appt and do the same to him. But that is not me

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@oregongirl, The only reason I would take him would be that you have pre-arranged with the doctor to be your advocate. She needs to be willing to basically shut his mouth for him. That patronizing butting-in that he did was for the birds.
She would need to be willing to explain to him (in some form, I’m not trying to put the words in her mouth) that this IS real, and his failure to support you is doing damage, not good. She could also SPECIFY what kinds of acts, behavior, and attitude from him and his wife would be helpful. And specifically, which ones that they do that are HARMFUL. Like DIL saying, “Are you sure this is not all in your head?”

This will not have been the first time she’s run across this. Tell her all about it on your next visit, see if she would be willing to schedule a follow up where your son’s presence is requested. Be brave, and ask for help, my dear. Or I will need to come to Texas and jerk a knot in his tail. (Just kidding. But you know.)
Xx

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LynneB | @lynneb2110 | Jan 29, 2018

Hi @jenapower, I realize your post was awhile ago, but I too am confused about this pee test and dismissal from treatment business. I had never heard of it. I live in MA where it is legal medicinally, and sort of so for recreational use. (They’re sorting it out.)

Very good write up on the differences between CBD and THC.

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lioness | @lioness | Jan 29, 2018
In reply to @oregongirl "I prefer to go alone. I cannot stand noises that come out of my son when..." + (show)
@oregongirl

I prefer to go alone. I cannot stand noises that come out of my son when I am explaining my pain. He says, now wait a minute mom, don't confuse doctor. I was ready to strangle him. Lord knows he has been to Drs. Maybe o will go on his next appt and do the same to him. But that is not me

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I understand I just kept to self and knew what I had to do.Everyone is different so just you take care of yourself.

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