1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

mchel46 | @mchel46 | Nov 29, 2016
In reply to @irene5 "Hi. I am so sorry you are suffering so much. I think that hydrocodone may be..." + (show)
@irene5

Hi. I am so sorry you are suffering so much. I think that hydrocodone may be a good choice for some types of pain, but fibromyalgia responds very well to Elavil and Gabapentin. I took Elavil for years, and it also helped with my migraines, and gave me a much better night sleep. Good luck to you. Irene

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I have heard so many medical professionals say that opiates don't work for fibro pain. I can only speak for myself, but that is hog wash! Oxycodone is the only thing that brings me relief. I take 800mg of Gabapentin 3 times a day. I've also taken tramadol and flexerol. It has been suggested that I take Excedrin, wait two hours, then take naproxen. I don't really care what is typical. I know what works for me. I took it for years, 4 pills a day, and never became addicted. I have an extraordinarily high tolerance, so maybe that is the reason. Once I moved to the Ohio Valley, where there is an opiate addiction epidemic, they tend to treat everyone as if they are just seeking drugs. I'm going to try one more pain center, then it's time to find a new doctor.

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kayelle | @kayelle | Nov 29, 2016
In reply to @irene5 "Hi. I am so sorry you are suffering so much. I think that hydrocodone may be..." + (show)
@irene5

Hi. I am so sorry you are suffering so much. I think that hydrocodone may be a good choice for some types of pain, but fibromyalgia responds very well to Elavil and Gabapentin. I took Elavil for years, and it also helped with my migraines, and gave me a much better night sleep. Good luck to you. Irene

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Even Doctors admit medicine is not black and white. What works for you or each of us, individually is the goal and your carer should understand this. Its cruel to make you feel bad for wanting to reduce pain.

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persist | @persist | Nov 30, 2016
In reply to @2122 "I tried a diet plan that a doctor wrote and for me it worked. It had..." + (show)
@2122

I tried a diet plan that a doctor wrote and for me it worked. It had something to do with not eating anything from the night shade families such as anything with tomatoes, potatoes, etc. You do have to follow it exactly but it is worth it plus you can lose some unwanted inches as well.

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I take 300 mg of Gabapentin nightly and sometimes afternoon on bad days. When I do that I can't stuff enough food in towards evening, reassuring to hear others have the issue.

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wandamiller | @wandamiller | Dec 1, 2016

I think that's a great idea but It depends on where you live. Im in NY and under pain management. Marijuana in my system is an automatic dismissal from pain management.

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wandamiller | @wandamiller | Dec 1, 2016

I feel for you. I've been told I have fibromyalgia also. I find that diet helps sometimes. I do my best to avoid sugar. When I eat candy or sweets of any kind I suffer.
Try taking magnesium. I find it helps a bunch.
Best of luck.

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1 reply
Carol Martin | @chari978 | Dec 2, 2016
In reply to @sandytoes14 "I have been on Savella aka milnacipran and that helped. Now I am on Cymbalta and..." + (show)
@sandytoes14

I have been on Savella aka milnacipran and that helped. Now I am on Cymbalta and that helps a good deal. Otherwise, you sound much like me. I have chronic neck pain added to my story but only get 1 or 2 Vicodin per day but not even a whole months supply--I'm no addict, we have military (retired) insurance and the military health care is trying to paint spouses and retirees as opioid dependent.

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Hi Sandy, I was just reading through the comments on pain and fibro.. Anyone that has real cronic pain knows that we don't even get close to feeling high on pain meds. With this big push on getting everyone off pain pills "carte blanche" is not fair. I'm still getting pain pills because of my spine surgeries (one more to go). However, my doctor is dying to stop prescribing them. Then what? The same people that convinced me to take 4 pills a day instead of "as needed' now just wants me to just stop. Even though I don't think I can make it without any help from pain meds. Every time I try to ask how to get help to get off the pills, they just blow me off. Mostly, they say just stop. What kind of professionals say that. If it was so easy there would not be so many non-sick people trying to do anything to get their hands on them. At my age and all the complications I have, I should be allowed to have some relief. Or any age for that matter. I don't know who to turn to..
.

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kayelle | @kayelle | Dec 8, 2016
In reply to @2122 "I tried a diet plan that a doctor wrote and for me it worked. It had..." + (show)
@2122

I tried a diet plan that a doctor wrote and for me it worked. It had something to do with not eating anything from the night shade families such as anything with tomatoes, potatoes, etc. You do have to follow it exactly but it is worth it plus you can lose some unwanted inches as well.

Jump to this post

The auto immune solution ...is a good book and talks about this

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kathy123 | @kathy123 | Jan 11, 2017

so the CBD oil that you put under your tongue it is pure oil CBD is that a good one can you take that if you take other pills from the doctor and does it really help if so how you just don't feel pain or it makes you numb I don't know never try the stuff but I hear a lot about it a lot of people take it I guess please get back with me thanks

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kathy123 | @kathy123 | Jan 11, 2017

so the CBD is a good one to try is the oil one good of that CBD oil I never try this stuff but I am in a lot of pain a lot because of my fibro and arthritis and other things please get back with me thanks

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 16, 2017

@tonyc55, do you have experience or an opinion about CBD oil?

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