Anyone stop valcyte early?
I am 10 weeks post liver transplant and my wbc is low. So low that my Dr took me off valcyte two weeks early. I am high risk for cmv because donor was pos and I’m neg. Has this happened to anyone else I’m terrified of getting it. I will get tested weekly for cmv. Have a great day everyone.
Interested in more discussions like this? Go to the Transplants Support Group.
I had a pancreas transplant 18 years ago. I had 2 immune suppressants, prophylactic antibiotics and antivirals. At one point my white blood count (WBC) dropped and it was attributed to Mycophenolate / Cellcept. I was switched to Sirolimus / Rapamune. Eventually the antibiotics (Bactrim Sulfa Trimeth ?) and the antivirals (Valcyte) plus a mouth lozenge were discontinued. During this time (and still) there were post transplant labs to determine the doses of the various meds based on lab levels. At one point my CMV increased and I temporarily resumed taking Valcyte. When you are post transplant, early on there is a lot to adjust to. As time goes on things start to settle down.
I am 5 months post liver transplant. A month ago my WBC level was 1.48 and I had stopped taking Valcyte after the 90 day surgeon prescribed protocol. I was taken off Mycophenolate and put on prednisone. My WBC and all other blood work look great, however, today's blood draw detected CMV DNA, plasma at < 34.5. I have no idea what this mean. I have a mychart message in to my transplant coordinator. Also, I last saw the surgeon Sept 4 and transferred to hepatology and had my first appt. Oct. 29. The new hep blood draw orders did not include a CMR test as the previous orders from the surgeon until today. Thoughts?
Hi, @jtjourney. Welcome to Mayo Connect and Congratulations on your recent liver transplant!
I hope that you were able to enjoy the Thanksgiving Holiday with your new liver. I remember my 1st holiday after my transplant as being a celebration and a challenge.
I am a patient and I don't remember the blood work tht was ordered after my surgery. I am guessing that this was your post surgical visit when you were examined and released by the surgical team because of satisfactory healing. And are now fully under the care of the liver department. I think that of you have a question or concern about the difference in the requested blood labs, that you ask the hepatologist. It could be a simple, "Not necessary" at this time.
Here are some discussions by newly transplanted members.
-It's just one of those days: Share your transplant recovery tips
https://connect.mayoclinic.org/discussion/its-just-one-of-those-days/
-18 months post-transplant kidney + liver
https://connect.mayoclinic.org/discussion/18-months-post-trans-kidney-liver/
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Will you be seeing the liver doctor soon? If you are at Mayo you can send a note thru the patient to your nurse coordinator or follow the protocol of your transplant center with the question. There is no need for you to be worrying about it. How is your recovery coming along?
@jtjourney, how are you doing? What did you learn from the transplant coordinator about the blood draw results? Any update?