Good morning, @pixiesusan. I hope you had a lovely Thanksgiving. Our daughter flew down from Minneapolis to join us in Florida for a week over TG…that was the perfect way to kick off the holidays early. But I’m going to be in trouble I think…I already had to break out the elastic waisted pants! 😂

It’s interesting to read that your experience with some other support groups online is lackluster. I’ve been finding that lately too. I’m in a couple of groups for bone marrow transplants. We were all fairly active a couple of years ago but now, what used to be the most prolific group, sits idle. There’s one other person besides myself who tries to instigate a good discussion and it just fizzles again. We’re all still alive and kicking but interests are elsewhere? Not sure.
Anyway, I’m sorry you’re feeling abandoned!

You’re not alone here! ☺️ There’s always someone around to chat with. Your CCUS diagnosis isn’t common and members who share that blood condition aren’t numerous. But if you would just like have some good conversations, there are a bunch of other fun support groups in the forum that are always active!
These are just a few of the lighter conversations to pique your interest.

Have you visited “Just want to talk”? https://connect.mayoclinic.org/group/other/

You’ll find discussions like:
~Journaling, the right stuff for you?
https://connect.mayoclinic.org/discussion/journaling-the-write-stuff-for-you/
~What’s outside your picture window today https://connect.mayoclinic.org/discussion/whats-outside-of-your-picture-window-today/

~Let’s go walking! Join me for a virtual walking support group
https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
~Do you have an inspiring or favorite quote to share?
https://connect.mayoclinic.org/discussion/do-you-have-an-inspiring-or-favorite-quote-to-share/
~How about a laugh (hopefully)? https://connect.mayoclinic.org/discussion/how-about-a-laugh-hopefully/

~ Art for Healing
https://connect.mayoclinic.org/discussion/art-for-healing/
What pets can do: Health and healing
~ https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/

You mentioned having a blood work coming up this week. Are you feeling that there might be a change in the numbers?