Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Thank you for your quick reply!😊
Has anyone heard of Nerve Forte to help with the pain and numbness of neuropathy? How about MMP13 enzyme that is suppose to be the root cause of neuropathy? Can't get a good nights rest due to itching and stabbing pains in feet. I have a pair of reflexology shoes that I wear in the evenings and they seem to help some. I am open to suggestions for help. Thank you, Laura Henderson
Welcome Laura @sh0rtie, I'm no expert and have purchased a lot of stuff that was purported to help with neuropathy but hasn't done much to help me personally. It does contain 3 ingredients that have shown to help with neuropathy and it provides a lot of research links but it doesn't provide any clinical trials or test data.
And then there is this at the bottom of their website which screams "buyer beware" to me.
"The products and information shared on this website have not been reviewed or approved by the FDA, nor have any formal clinical trials or studies been conducted. This content is not meant to diagnose, treat, cure, or prevent any medical conditions. It is provided solely for informational and educational purposes, and individual results may vary. Any use of the products or reliance on the information provided is at your own discretion, and we assume no liability for the outcomes or actions taken based on the information shared here. Webmasters have the opportunity to earn commissions by promoting and linking to nerveforte.today through the Nerve Forte Affiliate Program. This program operates like other affiliate programs, offering participants the chance to earn revenue for successful referrals. FTC Disclaimer: While we have not been paid to endorse this product, we may receive a commission if you make a purchase through one of our affiliate links."
I don't have pain with my neuropathy just the numbness and some tingling. Myself and others have share our neuropathy journey in another discussion here that you might find helpful - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.
You might find these discussions helpful:
-- Neuropathy Pain at Night: What helps?: https://connect.mayoclinic.org/discussion/night-pain-2/
-- Peripheral Neuropathy - Shooting Foot Pains at Night: https://connect.mayoclinic.org/discussion/peripheral-neuropathy-shooting-foot-pains-at-night/
Well, I'm not sure which of these has helped, but I no longer take (almost) anything for PN pain.
1) VEIN ABLATION/PHLEBECTOMY I had itching on my left (the more painful side) inner thigh and some of the veins in my calf were painful to touch. I took no meds relating to this and I don't know if it was the removal of the veins which were another source of nocive stimuli, or the compression stocking that I wore in association with the procedure, but the drop in intensity and frequency of the PN symptoms was immediate.
2) My GFR is down to 40 and I'm drinking a LOT more water to try to help mt kidneys filtering function.
3) I've been taking a capsule of fish oil (there seems to be some evidence of beneficial effects combining enalapril which I take for HBP and fish oil) as well as
Pre-DX Nerve support. I started taking these around the same time as the vein procedure so the timing makes it more difficult to say which is more important, although I still seem to have less pain when I wear the compression stocking.
Hope any of this may be useful to some one!
Neuropathy has been my nasty sidekick for the past twelve years....it is in my feet and part of
my lower legs....tried ever thing from tens to blue laser ,,,,with no results...after a couple of
years of terrible times, my daughter recommend a combination of hydromorph contin and
jamp-pregabalin...it has reduced my neuropathy from a 8 out of 10 to a manageable 2.
I take 6mg hydromorph at 7am and 7pm,,,,200mg pregabalin at 12 noon and 9pm...
Herbert C Wyness
Hello Herbert @wynesshc, Welcome to Connect. It's good to hear that you are getting some relief with the pain medications. I've been dealing with neuropathy in my feet and legs since my early 50s and now at 81, I'm just happy I can still walk. I'm one of the fortunate ones with only numbness and some tingling and no real pain with my small fiber PN. I have also tried many different treatments to help with the numbness without much success. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
Thanks for the wealth of information,,,,I am going to be 89 next March, so life has afforded me some time for
adventure and great times...so the neuropathy has played a small part of my life.....I was in Asia Pacific when the problem started the it was sometime after returning home that I was told what the problem was...the first few years were tough, as I had pain, numbness, needles , cold and sometimes my foot would twist sideways ..
My balance is a bit of a problem and i have fallen a couple of times when working in the yard...
Herbert C Wyness
B12 mecobalamin injections may help.
Thought it seemed plausible about heat and massage but suspicious of other claims.
@wynesshc I am taking B-12 Complex drops by Native Path. I take 1 dropper full every morning. I have bought some reflexology shoes that I wear every day for at least 30 minutes. If I feel that numbing feeling coming on when I put the shoes on and walk I can feel that it fade away to some degree. I haven't succeeded in getting that feeling to leave my feet. I also bought a pair of barefoot shoes that I wear when I am in the house and wear them all day long. It seems to help a bit to contain the numbing that is going on. Thank you for replying to my post.