Neuropathy pills: How to avoid scams?

Posted by wideawakechas @wideawakechas, Oct 26, 2021

Has anyone heard of or tried a pill treatment called Vita Soothe Pro? Nerve Savior?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@alicebrown

Try Nerve Control 911! It works for me! I’ve taken it for 3 years. I have PN diabetic. Pain was excruciating before I found this capsule. I take 2 a day. Also tried cyclobenzaprine & Pregabalin with no effect. I’ve shared this more than once on this website but have never seen it posted. ??? I’m only trying to share what works for me.

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Has not done anything for me after trying it for a full month.

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@antonintampfl2009

Has not done anything for me after trying it for a full month.

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So sorry. It works well for me. I have diabetic PN in my feet. I am 90 yrs old, a woman. It’s like a wonder drug for me although it’s all natural. No pain as long as I take 2 caps. a day. I tried going off and the pain comes back.

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@fairymystry

I believe that the Blueprint for Neuropathy program was a scam for me and several others. Don't waste your 10K on that program. There's a thread about it on this site if you want to know more.

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Scams usually work this way: amazing patient testimonials. Special discounts if you sigh up today. Don't worry, we offer financing. Sorry, not covered by insurance. No money back guarantee. Only $9000 to $12,000. A bargain to eliminate your pain.

Do a google search for REAL reviews. You will get the answer soon enough.

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@kbirchem

One thing that I forgot to post . I have had 3 sets of PRP injections . My feet used to be cold and the feeling and color were not good. My color in my feet is so much better . The feeling and warmth of my feet is also better. I used to take Lyrica . It is an evil, evil medication . It gave me very dark thoughts and anxiety attacks. Wish you the best in your PN journey . KTB

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I'm very interested in use of PRP injections to treat peripheral neuropathy. Was your health care provider suggesting this for treating neuropathy or was it for other foot pains such as plantar fasciitis? You mentioned improved circulation, improved feeling, and color, so would you say improvement to your neuropathy symptoms? Have you had to continue PRP injections? When were your injections as in year/month, how long did you feel improvement, and how often have you had to or will you have to go back and get additional injections? If you don't mind me asking approximately how much were the treatments each time?

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@biginohio

I'm very interested in use of PRP injections to treat peripheral neuropathy. Was your health care provider suggesting this for treating neuropathy or was it for other foot pains such as plantar fasciitis? You mentioned improved circulation, improved feeling, and color, so would you say improvement to your neuropathy symptoms? Have you had to continue PRP injections? When were your injections as in year/month, how long did you feel improvement, and how often have you had to or will you have to go back and get additional injections? If you don't mind me asking approximately how much were the treatments each time?

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Welcome @biginohio, I'm not sure PRP injections are widely used to treat neuropathy symptoms but I'm also interested to hear more from @kbirchem to learn more about their experience. I did find some research that shows some promise but seems like there needs to be more studies and testing done.

-- Platelet-rich plasma (PRP) in nerve repair: https://pmc.ncbi.nlm.nih.gov/articles/PMC10997806/

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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Stay away from Chiropractors and their Neuropathy treatments. I was seeing one for another issue and they offered a program for Neuropathy treatment. The cost was $6,500 (also offer financing).

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@johnbishop

Welcome @biginohio, I'm not sure PRP injections are widely used to treat neuropathy symptoms but I'm also interested to hear more from @kbirchem to learn more about their experience. I did find some research that shows some promise but seems like there needs to be more studies and testing done.

-- Platelet-rich plasma (PRP) in nerve repair: https://pmc.ncbi.nlm.nih.gov/articles/PMC10997806/

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Thank you for the welcome and the link!

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@dbchip

Stay away from Chiropractors and their Neuropathy treatments. I was seeing one for another issue and they offered a program for Neuropathy treatment. The cost was $6,500 (also offer financing).

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I went to one of these Chiropractors for a Neuropathy assessment and yes their treatment plan was $14,000 for 3 months so I hit the pause button. It seems laser light therapy has positive outcomes and I have seen some of these papers in PubMed. I'm combing through this blog site though and not seeing many positive outcomes. If any of these therapies worked consistently then PN would be eradicated but that does not seem to be near the experience of the majority or even minority of sufferers. The question is ... is there a 10% chance any of these therapies work - if you knew it would work you would gladly pay $20k. I don't want to keep $ in my pocket and wonder if I could have had a better quality of life.

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@biginohio

I went to one of these Chiropractors for a Neuropathy assessment and yes their treatment plan was $14,000 for 3 months so I hit the pause button. It seems laser light therapy has positive outcomes and I have seen some of these papers in PubMed. I'm combing through this blog site though and not seeing many positive outcomes. If any of these therapies worked consistently then PN would be eradicated but that does not seem to be near the experience of the majority or even minority of sufferers. The question is ... is there a 10% chance any of these therapies work - if you knew it would work you would gladly pay $20k. I don't want to keep $ in my pocket and wonder if I could have had a better quality of life.

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I too, suffer from peripheral neuropathy. Fortunately, I suffer no pain associated with my neuropathy. But as you, I am anxiously searching for a cure, or at least some temporary relief from the numbness that I experience continuously. I just listened to a doctor on Facebook claiming "he" had a cure for neuropathy. What was promised to be a five minute introduction until he revealed his cure, I listened intently to a 45 minute "word salad" of how his intense research and rare findings lead him to the discovery of a cure for the pain and numbness and pain of neuropathy. This is not my first time to fall for these claims. I am convinced now that these are nothing more than charlatans, intent on separating you from your hard earned money.

I am so disgusted with myself for falling for these claims and false promises to cure my neuropathy. I have come to the conclusion that when and if a cure is found for neuropathy, it will be front page news. There would be no need for making 45 minute speeches on FB on how "they" have found a rare cure. Since this is a widespread condition for many of us in our later years, I am sure our doctors will be happy to inform us that a cure has in fact been found, when and if it ever is.

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I’ve had Polyneuropathy for 9 years. My nerves were damaged by Vasculitis.

The only thing that helps me is the supplement, Alpha-Lipoic Acid (ALA). I take 600 mg. twice a day on an empty stomach.

My Neurologist recommended it, and I can absolutely feel the difference if I don’t take it.

The brand I use is DOCTOR’S BEST. There are others but this works for me. It’s available from Amazon.

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