I have run into those types of scams. My favorite was the chiropractor who was part of an organization called Disc Centers of America. First red flag: didn't like the quality of my MRI that had not shown anything terrible. Then, he sent me to an imaging center(they owed him a favor) for a CT scan, I had to pay cash on the spot. Second red flag: we reviewed the CT scan. "look at that bulging disc! Man, there's more above. Good thing you got to me when you did". Third red flag: Twenty or thirty decompression treatments (not covered by insurance for thirteen thousand dollars. Fourth red flag: Wait! If you sign up today, the price will go down to nine thousand. And. we can set up the payments right here. i said. 'no thanks".
A friend of mine fell for that, invested months of time and over 7,000.00. I said if it works it’s worth it. Unfortunately he just loss money. Every time I see their commercial I cringe thinking of all those innocent sufferers that will just lose money.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Hi iam a late 70s guy pn for 5 years like many iv tried everything creams tabs eg amptidripline b12 nitric oxide r ala I do rem once a co I deal with nerve renew USA based one time saying although we all know its not supposed 2 be curable some things work for some and not for all about 3 years ago I bought a pair of those neumatic leg boots about160 us dollars now you can buy the same ones for 70 2 80 sterling I read that I should use them twice a day once say lunch time and once fir about 40 mins b 4 bed well it's working I know get 6 2 7 hours sleep due to better blood circulation now the pn is still there in my case burning but I sleep better enabling me t cope with the next day more easily I recon iv spent 3000 sterling over 6 years dictors nuerolisists creams tabs etc this works for me no need to spend 1000 pounds for high end neumatic boots they are for fit young athletes if you can sleep more without getting up every 2 hours to put on ice socks it's worth it I recon 80 dollars to help your blood circulation is worth it I also walk 1 hour a say yes ut burns and I swim 30 mins a day blood circulation is everything weather u have burning pain or numbness james from ireland
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
A friend of mine fell for that, invested months of time and over 7,000.00. I said if it works it’s worth it. Unfortunately he just loss money. Every time I see their commercial I cringe thinking of all those innocent sufferers that will just lose money.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
It is interesting to see that our suffering companions are as numerous as the remedies we have tried. One thing is an undeniable truth, we are all as different as the remedies tried. As one of you pointed out, what works for one does not for others. We have war stories, some time similar, and sometimes so different that it makes you ponder whether there will ever be a cure, and if so, will it be within our life time or not. I wish it could, just as some cancers are curable when it was once thought it was a death sentence. I can only keep on trucking and trying whatever might work hoping it would help me with this malady. Keep on trying you all and be blessed in your journey. Anton
That’s a great idea,
New Renew (no help)
Alpha Lipoic Acid (not sure if it helps or not but I take it because some people said it helps)
B12(took so much my doctor told me to stop, did not have a B12 deficiency so I stop taking it)
Extra strength Tylenol (helps with my aching legs, I guess it reduces the swelling and inflammation and gives me some relief)
Pain Meds (if I didn’t have pain medicine I would go insane with this crap)
Gabapentin (why do I take this? I don’t know if it helps or not but the doctor said to take it so I do, 1300 mg/day
Nothing out there helps except pain meds, and I know but it will kill you, so will neuropathy in its own way, slowly and never leaving.
It’s worst than an addiction, at least with an addition you can get some help!
I wish I could give someone good news but there isn’t any for me. Just more of the same pain.
I can empathize with you and if it wasn’t for this community I don’t know what I would do. I confided in my best friend that I was profoundly depressed because of my PN pain and some evenings I will cry uncontrollably. She said that wasn’t normal to feel this depressed about my condition because “It’s nothing life threatening”, says the person who has never had PN. She also berated me for trying a topical THC/CBD product whom my doctors have had no trouble with me using. I feel like I’m on this island, adrift from the rest of humanity. The medical facility I went to recently had me set to meet virtually with a pain psychologist and they called a couple of days ago to cancel my appointment on the 19th of this month to three weeks later so addressing my mental health will have to wait a while longer. Your last two sentences brought me to tears. I pray every day not just for myself but for all of us that they can find a cure or universally effective treatment, very soon. I am so thankful for this forum where we can share ideas and our feelings with those who walk this painful road which others cannot understand.
It is interesting to see that our suffering companions are as numerous as the remedies we have tried. One thing is an undeniable truth, we are all as different as the remedies tried. As one of you pointed out, what works for one does not for others. We have war stories, some time similar, and sometimes so different that it makes you ponder whether there will ever be a cure, and if so, will it be within our life time or not. I wish it could, just as some cancers are curable when it was once thought it was a death sentence. I can only keep on trucking and trying whatever might work hoping it would help me with this malady. Keep on trying you all and be blessed in your journey. Anton
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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What is Mama Bear Oasis Cream made of? What kind of neuropathy do you have?
Got your message that it’s made of magnesium. Thx! What kind of neuropathy do you have?
Where do you buy Mama Bear?
A friend of mine fell for that, invested months of time and over 7,000.00. I said if it works it’s worth it. Unfortunately he just loss money. Every time I see their commercial I cringe thinking of all those innocent sufferers that will just lose money.
Hi iam a late 70s guy pn for 5 years like many iv tried everything creams tabs eg amptidripline b12 nitric oxide r ala I do rem once a co I deal with nerve renew USA based one time saying although we all know its not supposed 2 be curable some things work for some and not for all about 3 years ago I bought a pair of those neumatic leg boots about160 us dollars now you can buy the same ones for 70 2 80 sterling I read that I should use them twice a day once say lunch time and once fir about 40 mins b 4 bed well it's working I know get 6 2 7 hours sleep due to better blood circulation now the pn is still there in my case burning but I sleep better enabling me t cope with the next day more easily I recon iv spent 3000 sterling over 6 years dictors nuerolisists creams tabs etc this works for me no need to spend 1000 pounds for high end neumatic boots they are for fit young athletes if you can sleep more without getting up every 2 hours to put on ice socks it's worth it I recon 80 dollars to help your blood circulation is worth it I also walk 1 hour a say yes ut burns and I swim 30 mins a day blood circulation is everything weather u have burning pain or numbness james from ireland
I should have said I used the phenomatic 6 times and gave up big mistake I have been advised twice a day 30 mins 2 40 mins especially b 4 bed
It’s a real shame that these hucksters will take advantage of people with no thought of how it will affect them.
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1 ReactionIt is interesting to see that our suffering companions are as numerous as the remedies we have tried. One thing is an undeniable truth, we are all as different as the remedies tried. As one of you pointed out, what works for one does not for others. We have war stories, some time similar, and sometimes so different that it makes you ponder whether there will ever be a cure, and if so, will it be within our life time or not. I wish it could, just as some cancers are curable when it was once thought it was a death sentence. I can only keep on trucking and trying whatever might work hoping it would help me with this malady. Keep on trying you all and be blessed in your journey. Anton
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2 ReactionsI can empathize with you and if it wasn’t for this community I don’t know what I would do. I confided in my best friend that I was profoundly depressed because of my PN pain and some evenings I will cry uncontrollably. She said that wasn’t normal to feel this depressed about my condition because “It’s nothing life threatening”, says the person who has never had PN. She also berated me for trying a topical THC/CBD product whom my doctors have had no trouble with me using. I feel like I’m on this island, adrift from the rest of humanity. The medical facility I went to recently had me set to meet virtually with a pain psychologist and they called a couple of days ago to cancel my appointment on the 19th of this month to three weeks later so addressing my mental health will have to wait a while longer. Your last two sentences brought me to tears. I pray every day not just for myself but for all of us that they can find a cure or universally effective treatment, very soon. I am so thankful for this forum where we can share ideas and our feelings with those who walk this painful road which others cannot understand.
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4 ReactionsRight On Anton, Thank you for your realistic and heartfelt sharing.
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1 ReactionI have it in my feet I had chemo and radiation I am wondering if the course it.