Managing and Living With PACs and PVCs

Posted by rr1967 @rr1967, Aug 14, 2023

Hello all. I have posted in this forum before and I thank you for your advice. I appreciate more support please.

I am about to turn 56 and I have dealt with PACs and PVCs for the past 20 years. The come and go and now they seem to be getting worse. My cardio, regular doc, and electrophysiologist all say that I am fine and that I have too much stress and anxiety (which I do..I suffer from GAD and depression.) They all say that PACs are benign and that most PVCs are benign.

I had an exercise stress echo in 2019 (all normal). Several EKGs this year...all normal. Another Zio Patch Heart Monitor that I wore for a week. Normal sinus rhythm with PACs. My PAC/PVC burden hovers between 1.5 to 1.8 percent. I have had a recent chest xray and plenty of blood work. All normal. I am borderline type 2 diabetic and my cholesterol and triglycerides are all normal. I do take blood pressure meds and it is well controlled. I try to be active almost every day and I do practice CBT for my anxiety. My resting heart rate is about 55 and my cardio says that is normal.

What else can I do to reduce the PACs and PVCs or manage them? Some days they are fast and furious and some days they simply come and ago. But they are ruining my daily life and causing more depression and fear. They are awful in the morning, reduce a bit in the afternoon, and reduce a bit more in the evening.
My cardio again states that they are fine and to not worry.

I have tried a beta blocker (made my heart rate too low and I was too tired) and a pill called Diltiazem. Really had no effect and made me too tired. I don't qualify for any procedure and the one pill they are still offering me is Flecianide but that one has WAY too many side effects and I have had at least two cardiologists warn me from taking it.
What are you experiences, advice, etc?
Thank you!

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@janepaskvan

I am 75yo female. I have had arythmias for about 15 years or longer. First noticed them when I had stents placed. Have hardly noticed them until lately. I do have a very stressful life taking care of my husband who has dementia, and now this stupid election. They have been bad off and on for a month. I've worn a monitor twice but the times I was wearing them were not heavy with arythmias. So cardiologist says no problem. Well, they ARE a problem. Scary. Mine are worse at night, maybe because I'm reading or doing crosswords, so more noticeable. I do notice that they are worse when I don't eat regularly. I have what seems to be hypoglycemia, but not sure. Do not have diabetes, but have low thyroid. When I don't eat for more than 2 hours they get very bad. But I need to eat protein when I do, not sugar, so not sure what the problem is. I decided yesterday to be very careful about what and when I ate. Very careful. And last evening I had absolutely no arythmias! I was so elated, hoping I'd solved it. But today, as I was about to eat my well scheduled lunch, my husband did something to make me freak out. So, no matter that I ate well, I've been having terrible difficulty all evening. I read that that is due to adrenaline release. Anyway, it is driving me crazy. Oh, and I take Hydroxyzine. Used to take it very infrequently, but finding I need it more and more. It does calm me down and allows me to sleep.

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Some people have a sensitivity to adrenaline, and they should be given beta-adrenergic blockers to help keep the rate down when there is an arrythmia.
https://my.clevelandclinic.org/health/treatments/22318-beta-blockers
Others have a Vagus nerve sensitivity that drives their arrhythmia, particularly AF (atrial fibrillation). I don't have much background in that, but I do know that some use Vagus nerve stimulating actions to help. There are YouTube videos on that.

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@gloaming

Usually the ablation stops the unwanted arrhythmia, but flutter is one example that can be 'substituted' when an ablation is performed for AF (atrial fibrillation). Also, you can get PACs resulting from an ablation, and yes, SVT as well. It is usually the fault of insufficient mapping in my opinion, although the electrophysiologist who performed your procedure might disagree with me, maybe even for very good reasons.

Over on afibbers.org, we stress constantly that one must do research to find the very best, most experienced, and most skilled EP in one's area, even if one must travel for up to a day. Just as there are mediocre teachers and piano players, there are mediocre EPs.

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I wonder if it would help you to have a blood glucose meter to see if you are indeed having hypoglycemia. And a device to monitor heart such as a smartwatch or Kardia. I use the Kardia myself. It costs about $99. Then you can bring info or even send info to the doctor.

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@gloaming

Some people have a sensitivity to adrenaline, and they should be given beta-adrenergic blockers to help keep the rate down when there is an arrythmia.
https://my.clevelandclinic.org/health/treatments/22318-beta-blockers
Others have a Vagus nerve sensitivity that drives their arrhythmia, particularly AF (atrial fibrillation). I don't have much background in that, but I do know that some use Vagus nerve stimulating actions to help. There are YouTube videos on that.

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Thank you for the advice. I do take a small amount of Metoprolol, and maybe could take more. It did cause a significant weight gain, and tends to lead to depression, but then all these arrhythmias aren't making me feel great, either!

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@windyshores

I wonder if it would help you to have a blood glucose meter to see if you are indeed having hypoglycemia. And a device to monitor heart such as a smartwatch or Kardia. I use the Kardia myself. It costs about $99. Then you can bring info or even send info to the doctor.

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Thank you for your kind advice. I have tried the Kardia, but my arrhythmias weren't coming often enough for it to work. Hard to keep your fingers on it at all times! The Holter monitor works well, but I only had it for one day and I wasn't bad on that day (of course!). And I'm a chicken when it comes to sticking my finger. But it may come to that. It's just that knowing won't really help. I already know from years of experience that I need to eat regularly or bad things happen. But my symptoms are getting worse. That is the thing that worries me. But then, I'm pretty old, and have had a good life all in all. You do really suffer with these things, though, and I feel so bad for all the young people on here.

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@rr1967

Hello mjj151.
Thank you for sharing your information. 15%..wow... I think I am at 10% now, but my cardio keeps telling me I am fine. We have tried beta blockers and calcium channel blockers...no help at all. Now he wants me to try Flecanide which is very scary medication. Not sure what to do anymore as I am tormented every day and evening with them. I have seen a cardiologist and two different electrophysiologists and they all say I am fine. No...I am not fine...

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No, you are not. I can see that a lot more research needs to be done in this field. My cardiologist says he's had them, but I don't think he's had them like we have. I cannot understand them telling us we're fine. Guess it's because they don't know enough about them.

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@janepaskvan

Thank you for your kind advice. I have tried the Kardia, but my arrhythmias weren't coming often enough for it to work. Hard to keep your fingers on it at all times! The Holter monitor works well, but I only had it for one day and I wasn't bad on that day (of course!). And I'm a chicken when it comes to sticking my finger. But it may come to that. It's just that knowing won't really help. I already know from years of experience that I need to eat regularly or bad things happen. But my symptoms are getting worse. That is the thing that worries me. But then, I'm pretty old, and have had a good life all in all. You do really suffer with these things, though, and I feel so bad for all the young people on here.

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@janepastvan I was offered a patch monitor for a month (I only did it for two weeks but could have done a month). Maybe that would help. Or a smartwatch?

My kid has type 1 diabetes and had to prick her finger 15 times/day when a child. I think of her when I test my blood sugar! Like you have occasions of low blood sugar. I know that eating something sweet without fat or protein will result in a low blood sugar in about 2 hours. I have to remember to include protein and/or fat with white rice, white potatoes etc.

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@rr1967

Hello I received my Zio patch results yesterday. Predominant normal sinus rhythm with PACs and PVCs. Nothing remarkable per the cardiologist. PVCs very rare and PACs were occasional.
My PAC burden has increased from 1.5% in June to 3.4% in October per the Zio patch. I did have three very short runs of SVTs ( 8 days total) and I have been told these are benign.

I am worried why my PAC burden has more than doubled since June. Though my cardiologist and EP keep telling me that PACs, even at 10% burden, cannot hurt your heart at all. I see my EP in a couple of days and hopefully he will have plan on what we can do to at reduced the PAC burden.

One doctor told that regular exercise will reduce PACs and PVCs.

Thank you,
RR

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Hi

Has anyone's cardio mentioned that it could be a thyroid issue? Either hyper or hypo?

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@gloaming

Usually the ablation stops the unwanted arrhythmia, but flutter is one example that can be 'substituted' when an ablation is performed for AF (atrial fibrillation). Also, you can get PACs resulting from an ablation, and yes, SVT as well. It is usually the fault of insufficient mapping in my opinion, although the electrophysiologist who performed your procedure might disagree with me, maybe even for very good reasons.

Over on afibbers.org, we stress constantly that one must do research to find the very best, most experienced, and most skilled EP in one's area, even if one must travel for up to a day. Just as there are mediocre teachers and piano players, there are mediocre EPs.

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Thanks for the reply. I’m concerned that happened. An SVT ablation with no. history of AFIB or PAC’s should have been a resolution not the beginning of new things. Because it was a rush procedure I got the new guy whose calendar was open. I’m seeing someone new in 10 days. I have an associate who knows some folks at Cleveland Clinic. Might go there if I am not getting answers. Thanks again

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@windyshores

@janepastvan I was offered a patch monitor for a month (I only did it for two weeks but could have done a month). Maybe that would help. Or a smartwatch?

My kid has type 1 diabetes and had to prick her finger 15 times/day when a child. I think of her when I test my blood sugar! Like you have occasions of low blood sugar. I know that eating something sweet without fat or protein will result in a low blood sugar in about 2 hours. I have to remember to include protein and/or fat with white rice, white potatoes etc.

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Thank you for the advice. Is the patch you're talking about, the one where you push a button when you feel something? I wore one for a few days, but it was difficult. Maybe I can get one again, but it seems like there's little to be done about them. I need to eat protein every meal. If I was to just eat sweets I would have palps immediately. I'm working on eating every 2 hrs like I need to. Hard to do when you're never hungry and have GERD!
I'm sorry about your child. It must have been hell.

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@pascvobiscum

Hi

Has anyone's cardio mentioned that it could be a thyroid issue? Either hyper or hypo?

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I know I'm hypo, but not enough to treat. I had been on Synthroid and it worked fine for a year or so. Then I started getting palpitations, so stopped. When I tried to go back on it I ended up in the ER with palps.
Then a couple years ago I tried it again, in small doses. After 6 weeks or so I developed double vision. Everyone kept saying that couldn't be the cause, cause that's a symptom of Hyper. Anyway, I stopped the meds and 3 weeks later my vision was back to normal. The human body is a strange machine.

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