What happens when the caregiver has health issues?

Posted by joedeb @joedeb, 5 days ago

I had some spots removed from my arm yesterday, to be tested for cancer. My brother in laws health was the final straw that forced him and his wife into assisted living. That's the end game right? The caregivers health.

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@joedeb Not sure if I understand you. Are you saying that the caregiver’s health is very important in the end of life situations. Yes, the caregivers health if of premier importance. So their health must be carefully monitored.
Let’s wait and hear what other caregivers on this site have to say.
Are you a caregiver for someone?

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Yes, my wife. She has lewy body dementia. I was thrown quickly into being a full time caregiver this fall. I witnessed my brother in law and sister in law, who has advanced parkinsons, move into assisted living two weeks ago after a year of denial on their part and declining health of him. They did just fine until his health starting turning rather fast and then it became a crisis. I became their 1st responder living 30 minutes away. It didn't turn out well.

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hi joedeb, lilyann here, i am like becky, this sounds terrible and its so true how some health problem can turn on a dime, never thinking of the worst, always thinking the better and then hit with " wow, how fast something happens". so sorry about your wife, that's a hard pill to swallow to begin with and then in laws. you sound like a very special person and i am sure all of mayo followers would agree with me. you are the calvery. praying for all of you. stay strong .

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@lilyann

hi joedeb, lilyann here, i am like becky, this sounds terrible and its so true how some health problem can turn on a dime, never thinking of the worst, always thinking the better and then hit with " wow, how fast something happens". so sorry about your wife, that's a hard pill to swallow to begin with and then in laws. you sound like a very special person and i am sure all of mayo followers would agree with me. you are the calvery. praying for all of you. stay strong .

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Thanks. I get support too knowing others are doing this.

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@lilyann

hi joedeb, lilyann here, i am like becky, this sounds terrible and its so true how some health problem can turn on a dime, never thinking of the worst, always thinking the better and then hit with " wow, how fast something happens". so sorry about your wife, that's a hard pill to swallow to begin with and then in laws. you sound like a very special person and i am sure all of mayo followers would agree with me. you are the calvery. praying for all of you. stay strong .

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I guess I didn't express myself the way I wanted, Lilyann. I ahve witnessed the decline in the health of the caregiver and it can suddenly force big changes. As you say, caregiver health becomes more important to day to day activities. In my extended families situation, the caregivers health actually got worse than his spouse. If some advanced planning is not done ahead of time, things are tough for the family members. Example, my inlaws, didn't even have a list of the meds my sister*in-law was taking (advanced parkinsons). With the caregiver in the hospital and me trying to figure out what if anything to give my sister-in-law.
LBD is certainly humbling. You are constantly reminded you're not in charge. This morning, my lovely wife, started eating her breakfast with her fingers. At what point to you decide had she known, she would not want me to take her in public or to family gatherings to witness that?

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Proteins in the brain eating away at the memory sensors that you have accumulated since you were born. Reducing you at times to a 2 yr old boy( I had one little girl and I think she was an angle at birth). Playing with your food, messing things up in cupboards, learning how to use the bathroom. Things you've done for 72 years now temporarily leaving your memory. I'm not a doctor but I wonder if the memory cords just finally break and you are left as a 2 yr old

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