My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
@xiam2024 can you share the reviews you refer to, or how to view them?
I have read and been told (by McCormick) that Evenity can affect "acquired immunity" (such as vaccines?) because it has an effect on B cells. I read a study somewhere on this that mentioned bone marrow edema. I was concerned about this but noone seems to be having any ill effects of that kind on this forum. The side effects people share mostly seem to be about pain.
My doctors were concerned about Prolia's effect on the immune system for me since I already have some autoimmune disorders. They haven't mentioned any effect from Evenity on the immune system. I believe it needs further research. The focus of research before it went on the market was on cardiovascular effects.
Hi, how are you doing on the drug? Have you had any major side effects? It costs $800 per month for the shot in Canada--what about there? xo Lisa
How are you doing now? Why did you choose Evenity over Tymlos or Forteo?
Due to hypercalcium level related to parathyroidism.
Had a parathyroidectomy ,
x1 in 2022. Reclast was not working so Dr said Evenity was only one left that does not stimulate parathyroid to release. More ca to bone. Only 3 shots left...yahoo
What has been your experience on Evenity? Like you, I have parathyroidism and my Dr is suggesting Evenity or Fosamax.
After shot # 6 began have pain at shot 9 OA pain severe but greater in neck and arms and left hip/ side. Only 3 to go...