How to Sleep Post Liver Transplant in Initial 30-Day Recovery?
Hi, all! Please share any tips on how to GO TO/FALL asleep and STAY asleep after liver transplant surgery during the initial 30 day recovery period. Here’s more details on my experience so far:
I’m a bit over a week post-transplant surgery and currently going through my initial 30-day recovery period. As a 21 year old transplant recipient, I was able to recover enough movement and other things to be discharged from the hospital 5 days after my transplant surgery. Since I’ve been home, I have not been able to sleep. Initially, I knew it was because I was used to the hospital’s inclined and remote controlled bed and also going from the hospital’s constant waking you up and noises to the silence of my home with no major/constant sound disturbances is an adjustment. However, it’s been almost a week since out the hospital and I’m struggling because I am only getting bursts of sleep— an hour here, wake up at 2 am and can’t go back to sleep, and be up at 3, 4, 5 am sporadically, all the while having to make sure I’m up by 6/6:15 am to get ready to go to labs 3x during the week. I’m not sure if I just need to give it another couple of days and Lord willing I’ll see some improvements, but it’s been really hard to need to be up early now (which I’m not usually up super early in the morning but now HAVE to be) yet I’m not getting deep sleep of any kind. I’m definitely not getting 7 or more hours of sleep (I don’t even know if I’m getting 6). Managing this sleeping issue the past week has been difficult, and I really would like to be able to lay down at night and fall asleep, and then stay asleep for hours, not constantly waking up in the middle of the night MULTIPLE times and then struggling to go back to sleep AND also struggling to get comfortable while trying to go to sleep because that’s been another issue too!! I’ve taken melatonin practically every night, and pain medicine if it’s ever needed. I use a pillow to cushion my side or back (depending on which I’m laying on to try to get sleep); I’ve used this firm back bed pillow I have to try to mock the hospital bed’s incline and then put pillows in front to cushion it. That worked a few times but now isn’t really working.
Overall, I am just struggling with being able to comfortably position myself and going to sleep and staying asleep since I’ve come home from surgery and would appreciate any tips from fellow liver-transplant recipients that dealt with this same issue during their recovery period. Thank you!
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@gerryp and @lynnecp, so great to have both sides of the same coin (recipient and caregiver) sharing on Mayo Clinic Connect. Cool.
Gerry, I agree. The healing power (and distration power) of music is not to be underestimated.
Please check with your transplant team. You are on a lot of strong medications. Prednisone alone can cause problems sleeping.