Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@lindy9

I had covid in a terrible way. Never took drugs though. At times when walking, I suddenly am short of breath a bit and put a baby aspirin under my tongue. It might last 2-3 minutes. I would bet though that most of your problems are the d... drugs. Make a list and google the side effects of each and wean yourself slowly off the ones causing problems which is probably all of them. I am 76 and avoid doctors like a plague. I do better than most people I know that are much younger than me who are popping pills or eat a horrible diet.

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I wish I would have thought more like you from the beginning! I can't turn back time, so I am moving forward with family doctor to slowly stop taking drugs. I also found a chiropractor who thinks he can help me get at least some of my life back & possibly more! I need all the prayers & crossed fingers for me please! I have very little quality of life & I am not even 50 yet. I will be at the end of December. Thank you for all your words & suggestions. It was sweet of you to reach out. It isvery lonely on my end, being ill all the time.

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I think that getting off medications should be supervised if any are essential to health. One by one is a good way to go and very very slowly. Pharmacists and MD's can help but tend to suggest tapering too quickly in my experience. It will be easier to tell what is what if some of your meds don't complicate the situation but you may need some of them! We obviously aren't qualified to say and we are all different.

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@saraheigen

I wish I would have thought more like you from the beginning! I can't turn back time, so I am moving forward with family doctor to slowly stop taking drugs. I also found a chiropractor who thinks he can help me get at least some of my life back & possibly more! I need all the prayers & crossed fingers for me please! I have very little quality of life & I am not even 50 yet. I will be at the end of December. Thank you for all your words & suggestions. It was sweet of you to reach out. It isvery lonely on my end, being ill all the time.

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In the past, I had two chiropractors that helped me immensely with many issues. I would go in with one problem and he would get rid of three. A Gonstead chiropractor is the best of the best. There are very few of them. None where I live. I believe in prayer, but crossed fingers make give you a cramp in them. LOL

One of my best friends died because she followed instructions of family doctor. Was taking no meds and had one number a little too high. In a few months she was taking a handful of pills a day all with negative side effects, the last one being depression which she never was before. It was from meds. She lost her will to live, shut her eyes and two weeks later died.

Make a list of the meds you are taking, and the neg side effects and tell the doctor you want off of them. On two meds, many years ago, I was on a med and weaned off it. Took a sliver off every day taking less and less until none. I was told I had to take the rest of my life. Well, 45 years later I don't.

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Thank you! I'm hoping I can do the same as you. I used to pray but that has been very hard for me to do as of late! I would like to but I just can't bring myself to do it. That has been a bad spot for me for about a year.

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@saraheigen

Thank you! I'm hoping I can do the same as you. I used to pray but that has been very hard for me to do as of late! I would like to but I just can't bring myself to do it. That has been a bad spot for me for about a year.

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@saraheigen this forum is not supposed to provide medical advice, only experiences.

I have a kid on insulin who would die in days without it, and also on anti-convulsants and has not had a life-altering seizure in 10 years. My mother lived until 95+ thanks to medications. I took meds for cancer, and for my bones, and they have saved me.

So I would not say, in our experience, that meds are bad. Nevertheless they need to be carefully chosen, monitored for side effects as well as interactions, and the situation of a drug treating a drug's effects needs to be avoided unless the first drug is necessary for life. That's my view, as a lay person who unfortunately has dealt with a lot of medical situations.

Chances are you will keep some but a "wash out" meaning getting rid of candidates one at a time might be helpful.

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I am very happy medications have worked for you and your family, really I am. I'm not trying to condemn that. I was born with a rare heart defect & have been doing pretty well for 49 years, until COVID. It has turned my body into goo. I have so many things going wrong now. I don't get answers I get meds. I am so terrified it's not even funny. I just found some comfort that I might possibly not be alone. I will stop writing on these forums. Good bye!

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@lb80

A question about Apple watches offering ECG heart rhythm tracking:

My background: I'm 81, have occasional SVT and AFIB. Saw three different Cardiologists this year. The first two, seeming very aggressive, tried to sell me on surgically inserting a Loop Recorder above my heart for 24/7 HR tracking. The third, a Veteran's Administration Cardiologist, appeared just the opposite, too nonchalant. Said " Just continue doing what you've been already doing." (Just 25 mg of Metoprolol)

Heeding the advice on many on this forum, and abhoring any kind of surgery, I declined the Loop Recorder idea, but decided to track my HR 24/7 with an Apple watch. Many of you raved about how great the Series 9 is, and is being accepted by more and more doctors. Someone mentioned that the ECG tracking was discontinued by Apple due to patent infringement. Yet now, in looking for a watch that offers both ECG and fitness tracking, I'm finding the Apple Series 10 claims to offer both, and has nice upgrades as well. My question: which watch should I purchase? Is there something wrong with the ECG tracking on the Series 10 that I should be aware of? Thanks in advance.

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What is SVT?

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I am an active 80 year old female. I am in the process of all kinds of tests to determine what is going on with me...Heart monitor, PET scan, MRI on my lungs, Echocardia. When I wore a heart monito, I was only told by my doctor that my heart is beating too fast...put me on Metrolpolol 25 mg. My doctor is a DO -- not an MD. He seems to be doing everything he can to determine why I still have this fuzzy head though I am on oxigen at night. My latest test is for an overnight sleep apnea test. At what point should I move onto a Cardiologist?

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In reply to @dalebout123 "What is SVT?" + (show)
@dalebout123

What is SVT?

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Supra-ventricular tachycardia. Essentially, any arrhythmia that results in a heart rate higher than 100 originating in, and taking place in, either of the two smaller chambers atop the heart...above the two large ventricles. Tachycardia is an arrhythmia. Also included are atrial fibrillation, premature atrial complexes, and flutter.

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@dalebout123

I am an active 80 year old female. I am in the process of all kinds of tests to determine what is going on with me...Heart monitor, PET scan, MRI on my lungs, Echocardia. When I wore a heart monito, I was only told by my doctor that my heart is beating too fast...put me on Metrolpolol 25 mg. My doctor is a DO -- not an MD. He seems to be doing everything he can to determine why I still have this fuzzy head though I am on oxigen at night. My latest test is for an overnight sleep apnea test. At what point should I move onto a Cardiologist?

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@dalebout123 it seems like a good idea to see a cardiologist. Is the medication helping you? You are having a lot of testing which you can bring to cardiology. What is the reason for oxygen at night? Do you also have a pulmonologist?

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