Multaq side affects for AFIB

Posted by queenofjacks @queenofjacks, Nov 17 6:56am

I am taking Eliquis & Multaq twice a day for AFIB & it is keeping my heart rate steady but I am having all kinds of side effects from the Multaq: weakness, dirreah, achy, lethargic , just to name a few. Is anyone else taking this drug for AFIB and having similar side effects? My next appointment isn’t until Dec. 6th to discuss what’s next…I hope ablation so I can get off these drugs. I will call the cardiologist office tomorrow to see if I can cut back once a day & wean off this nasty drug. Thx in advance to any discussion regarding this drug, much appreciated.

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It is very much an individual thing who responds well, even safely, to one drug or another, even if the drugs do the same things for the same condition. What you experience with Multaq is probably truly related to Multaq since the drug is new relatively to you as an individual. So, what you feel is not to be dismissed, or to be deemed not associated with the new drug intake.

Yes, by all means, challenge the prescription, whether it's just the dosage or the drug itself, and do seek the support of the prescribing authority for a trial of some kind, including ditching Multaq altogether and trying Flecainide, Sotolol, diltiazem, propafenone, etc.

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Thx so much for your affirmation- I will be talking to Cardiologist office today. Appreciate.

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I have had afib for many years, been on many drugs, been cardio converted many times, and undergone 4 ablations to fix the problem! I have no heart plumbing issues other than the “electrical” functioning, and did the first ablation to get off meds. After 3 months I was in flutter, then 3 more ablations and no solution! So now I am on Flecainide 50 mg twice a day (was 100 2xday but it’s lowered and do fine, albeit with some palpitations now and then, but I live with those). Over the years I have been on Rhythmol, Multaq, amiodorone, and Tikosyn (that one was terrible for me) and now the Flecainide which has been great for 5 years now. If you can try low dose and it works for you (and if your heart is otherwise in good shape) you should give it a try. I do often wish I had not started the ablation route bc here I am (67 yo F) after 4 ablations still on meds! I do take 25 mg of metoprolol succinate daily too to keep heart rate down. It’s been as high as 250 beats when I need a conversion. But none since Flecainide so for now I am sold on that drug. My doctor was supposedly the best in the Orlando area but I think I was a challenge to him, and I go to someone else now, BTW.
Just hoping if you do an ablation that they can get to the issue the first time and you are one and done! I will send good thoughts your way!

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I took Multaq for afib for just 3 days a decade ago. I had all the symptoms of a heart attack for 3 days non-stop and quit taking it. It started right when I started the med. I felt like I was going to collapse any minute the entire time. I stopped taking it. It was very scary for me. I am prone to adverse side effects with most meds. I hope you can find a med that works for you. Blessings.

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@jennirdh

I have had afib for many years, been on many drugs, been cardio converted many times, and undergone 4 ablations to fix the problem! I have no heart plumbing issues other than the “electrical” functioning, and did the first ablation to get off meds. After 3 months I was in flutter, then 3 more ablations and no solution! So now I am on Flecainide 50 mg twice a day (was 100 2xday but it’s lowered and do fine, albeit with some palpitations now and then, but I live with those). Over the years I have been on Rhythmol, Multaq, amiodorone, and Tikosyn (that one was terrible for me) and now the Flecainide which has been great for 5 years now. If you can try low dose and it works for you (and if your heart is otherwise in good shape) you should give it a try. I do often wish I had not started the ablation route bc here I am (67 yo F) after 4 ablations still on meds! I do take 25 mg of metoprolol succinate daily too to keep heart rate down. It’s been as high as 250 beats when I need a conversion. But none since Flecainide so for now I am sold on that drug. My doctor was supposedly the best in the Orlando area but I think I was a challenge to him, and I go to someone else now, BTW.
Just hoping if you do an ablation that they can get to the issue the first time and you are one and done! I will send good thoughts your way!

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I am in The Orlando area. Female-69 years old. Had two episodes of a-fib, which included two cardiac pauses: 7 and 5 seconds. They put me on Amiodarone 200 mg after hospital and EP scheduled me for an ablasion mid December, and still on Amiodarone at least until then. I am concerned this is pretty quick for an ablasion.

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@vpmusic55

I am in The Orlando area. Female-69 years old. Had two episodes of a-fib, which included two cardiac pauses: 7 and 5 seconds. They put me on Amiodarone 200 mg after hospital and EP scheduled me for an ablasion mid December, and still on Amiodarone at least until then. I am concerned this is pretty quick for an ablasion.

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Here in Canada, one is lucky to see an electrophysiologist inside of 4 months, and that involves waiting a month or more for any diagnostic workups the EP wants before he/she sees the patient. That's the first visit. Next, if you don't need other remediations first, such as a mitral valve repair/replacement, you'll be at least another four months before you get the ablation (with a 't').

May I assume that this is a whirlwind experience, kinda scary, and maybe you think the whirlwind has more control over your destiny than you have? That's perfectly normal, for almost all of us. We want more information, less speed, less uncertainty....

What you do want to do, though, besides continuing to educate yourself about your condition and the various ways to manage it, is to research for a really top notch electrophysiologist. You want a really good one, even if you have to wait six months to get the best. That person, with 3-5K ablations under their belt, and about whom patients rave, will have the best chance of success with you. I say this because the failure rate of first (or what are properly called 'index') ablations is about 25 %, but with a lot of variance between the best and the so-so electrophysiologists.

I hope you can convince yourself to be pleased that you might be ablated in as little as a few weeks. In Lotus Land, British Columbia, Canada, where I live, it's six-eight months to see an orthopaedic surgeon, and you may have another six months before you get called for the surgery.

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@vpmusic55

I am in The Orlando area. Female-69 years old. Had two episodes of a-fib, which included two cardiac pauses: 7 and 5 seconds. They put me on Amiodarone 200 mg after hospital and EP scheduled me for an ablasion mid December, and still on Amiodarone at least until then. I am concerned this is pretty quick for an ablasion.

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Hi vpmusic! I am wondering who you see in Orlando. I now see Dr Parikh at Central Fl cardiology group, and if I need another ablation I will have him do it. He did not do the first four. Amiodorone is a strong med for the first try, but of course if you trust your doc then I would do as they say. Ablation does seem like a very fast decision, from my personal experience looking back I wish I had known ablation is not always a one and done deal, it certainly started me on a different path. I’m still on meds after 4, and ironically did the first one to get off medication! It’s a tricky situation, I am sorry you are going through this! Let me know what you do, maybe a second opinion would be an option?

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@jennirdh

Hi vpmusic! I am wondering who you see in Orlando. I now see Dr Parikh at Central Fl cardiology group, and if I need another ablation I will have him do it. He did not do the first four. Amiodorone is a strong med for the first try, but of course if you trust your doc then I would do as they say. Ablation does seem like a very fast decision, from my personal experience looking back I wish I had known ablation is not always a one and done deal, it certainly started me on a different path. I’m still on meds after 4, and ironically did the first one to get off medication! It’s a tricky situation, I am sorry you are going through this! Let me know what you do, maybe a second opinion would be an option?

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Wow! 4 ablasions… Thank you for sharing your experience and for sharing your wisdom. In the hospital they referred me to Dr. Cesar Bonilla Isaza, EP. Saw his PAC once and the Dr. once. I know Amiodarone is a drug of last resort. Was told if I get off it that I would end up in the hospital with break thru episodes. It was mentioned that the earlier the Ablasion the better chance of success. As for a second opinion, my PCP sent a referral to Mayo Clinic, Rochester.. I am still waiting to hear. Praying they take me as I’ve had three successful surgeries there. Awesome experiences.

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That sounds like a great plan!! I would think you’d be in the best hands there, too, best of luck getting in quickly!

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@vpmusic55

I am in The Orlando area. Female-69 years old. Had two episodes of a-fib, which included two cardiac pauses: 7 and 5 seconds. They put me on Amiodarone 200 mg after hospital and EP scheduled me for an ablasion mid December, and still on Amiodarone at least until then. I am concerned this is pretty quick for an ablasion.

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Thought I would share that as a 68-year-old female I had my first identified episode of a-fib on 10/12/22. After a night in ED and then the hospital, a Diltiazem drip got me back in NSR. Before release I spoke with the attending cardiologist for about 5 minutes and essentially had to decide between managing the a-fib with meds or seeing an EP to have an ablation. She felt I was a good candidate for an ablation, and I didn't really want to be on long term meds, so I chose the ablation option. Based on that, she sent me home on Diltiazem, Eliquis and a loading dose of Amiodarone which then went down to 200mg daily. My ablation was on 2/14/23, so not quite as soon as you have been scheduled, but the decision to have it was very quick. The procedure went well and 3 months later I was able to go off the Diltiazem and Amiodarone. I now take Eliquis and am fortunate to have remained in NSR going into my second year since the ablation. As many have posted on this site, the decision of how to manage a-fib is unique to each person. You need to do as much research as possible and trust your feelings and the physicians that you choose to help you decide. The vast amount of knowledge and the experiences of those who post here is also extremely helpful and can be very reassuring as you manage this condition. I wish you all the best as you go forward.

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