Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
I wish I would have thought more like you from the beginning! I can't turn back time, so I am moving forward with family doctor to slowly stop taking drugs. I also found a chiropractor who thinks he can help me get at least some of my life back & possibly more! I need all the prayers & crossed fingers for me please! I have very little quality of life & I am not even 50 yet. I will be at the end of December. Thank you for all your words & suggestions. It was sweet of you to reach out. It isvery lonely on my end, being ill all the time.
I think that getting off medications should be supervised if any are essential to health. One by one is a good way to go and very very slowly. Pharmacists and MD's can help but tend to suggest tapering too quickly in my experience. It will be easier to tell what is what if some of your meds don't complicate the situation but you may need some of them! We obviously aren't qualified to say and we are all different.
In the past, I had two chiropractors that helped me immensely with many issues. I would go in with one problem and he would get rid of three. A Gonstead chiropractor is the best of the best. There are very few of them. None where I live. I believe in prayer, but crossed fingers make give you a cramp in them. LOL
One of my best friends died because she followed instructions of family doctor. Was taking no meds and had one number a little too high. In a few months she was taking a handful of pills a day all with negative side effects, the last one being depression which she never was before. It was from meds. She lost her will to live, shut her eyes and two weeks later died.
Make a list of the meds you are taking, and the neg side effects and tell the doctor you want off of them. On two meds, many years ago, I was on a med and weaned off it. Took a sliver off every day taking less and less until none. I was told I had to take the rest of my life. Well, 45 years later I don't.
Thank you! I'm hoping I can do the same as you. I used to pray but that has been very hard for me to do as of late! I would like to but I just can't bring myself to do it. That has been a bad spot for me for about a year.
@saraheigen this forum is not supposed to provide medical advice, only experiences.
I have a kid on insulin who would die in days without it, and also on anti-convulsants and has not had a life-altering seizure in 10 years. My mother lived until 95+ thanks to medications. I took meds for cancer, and for my bones, and they have saved me.
So I would not say, in our experience, that meds are bad. Nevertheless they need to be carefully chosen, monitored for side effects as well as interactions, and the situation of a drug treating a drug's effects needs to be avoided unless the first drug is necessary for life. That's my view, as a lay person who unfortunately has dealt with a lot of medical situations.
Chances are you will keep some but a "wash out" meaning getting rid of candidates one at a time might be helpful.
I am very happy medications have worked for you and your family, really I am. I'm not trying to condemn that. I was born with a rare heart defect & have been doing pretty well for 49 years, until COVID. It has turned my body into goo. I have so many things going wrong now. I don't get answers I get meds. I am so terrified it's not even funny. I just found some comfort that I might possibly not be alone. I will stop writing on these forums. Good bye!