MAC Reboot - After 3 Years Post Meds

@bluesplashgirl Carolyn - Yum! I haven't had that in years (since the last of the French-Canadian "aunties" quit baking.) Your comment about the harrowing experience makes me more convinced than ever that I will not attempt it myself. Especially with my post-MAC resolution of simplifying my holiday baking and entertaining! My daughter was disappointed that the meal yesterday did not include our traditional Tourtiere (meat) pie because I ran out of energy. I promised its return next year if my energy allows.

Hello Terri,
I live in Melbourne and so far we haven't had any fires, although we did have smoke from some of the NSW fires. The weather at present is lovely between 24 and 30 c, we did have one day of 41, same day as the smoke!
Wishing you all a Happy and safe New Year.
Mim.

@mimdavidson So glad you are doing ok. I just read where hundreds of people were running into the ocean to escape flames. Please keep me posted on how you are doing.

@mimdavidson Hello again. As you may have read already, when one has bronchiectasis; the threat of recurring mac, pseudomonas, etc., is always there. The lungs are permanently compromised. That is why I have been on maintenance meds since 2014. You can click on my picture icon and my regimen will pop up. My med plan may not be right for all patients because it would depend on your suseptibility test outcome. So far, this has kept me mac free for the last five yrs.

Prayers and blessings to you! I'm sorry to hear your MAC is back, but you have such a positive attitude, you'll rid of it again... I will be watching for your posts and keeping track of your progress. I am new to this site. I was diagnosed in September 2017. I am currently on the "Big 3". A sputum culture is being done as we communicate and hopefully it will show improvement. Thank you all for being here, to share and comfort. Blessings to all !!

Hi Terri, i was doing more research as I wait to get put back on the drugs. I was a little shocked to see that it says that medication is for life. I see that you have maintenance for your MAC. Are the doctors ever worried about resistance? Also, is it common to feel very, very sore and achey in joints and muscles? Man, I fluctuate, but feel like I have been hit by a truck most days. Thanks and I hope all is well with you. Carolyn

@bluesplashgirl I am sorry to hear that you are feeling achey and tired. Many on our site have experienced the same thing with the meds. I never did 'the big 3' because I was a sissy back then. I am on maintenance antibiotics for life because I have bronchiectasis and because of that, I will always be vunerable to infections. Fortunately, I have had no side effects. (I have been on them since 2013) At my very first dr visit, I was told that he would start me on cipro and doxycycline on alternating months for 10 days each. He did the switching of the two to prevent resistance. He also said that these meds were lower tier (as in strength) and that if my mac ever became resistant , then I could be bumped up to a stronger drug. He said for me to never let a dr put me on azithromycin, for fear of mac becoming resistant to it. He wanted to save that as the last resort of big guns just in case I caught a resistant strain of mac some day. My regimen has worked so far. I have been mac-free since 2014.

Sue ----I am reading some older posts, obviously.
Wow...daughter a nurse and niece a nutrtionist....how nice.... and I would imagine helpful also.
I have been off of the vest for a while and giving thought to trying it again. Had a mild pain after using it for a while and stopped. But, going to give it another try to see if it makes a difference now....didn't seem to help when I first started with it. Since I have learned more after finding this site...and learning all I didn't know about....... how to help myself with airway clearance....it might be a good thing to try it again.
You must be getting closer to being out of the sling.
Barbara

I'm just halfway with the sling, then PT begins! It is 90F everyday her, so it's itchy and miserable -walking morning and evening, staying inside during the day. nice to see our friends, but my next door neighbor moved home to Nebraska today to start her "next chapter" - fortunately we can see her often as we travel back and forth.
But I have paperwork to do for the MN Master Gardeners, tax things to gather, Mayo Connect and just across the yard, jigsaw puzzles to work in the clubhouse with friends - never bored.
I was never considered a vest candidate because when ill I was 100 lb and have arthritis throughout my spine.

Hi..
I rarely am ever bored....there is always something to accomplish or learn.
You must be back in Texas for the winter. Everything is still green in OKC with the weather the way it is....trees are just now turning to give us the beautiful fall colors.
In hindsight with what I know now I am surprised NJH put me on the vest...I had lost weight, I was less than 100lbs and with osteoporosis. Going to figure out the best way for me to use it along with postural drainage and all we do for airway clearance. I am surprised at how often I have read here that some people get it all up by lying on their back. I guess it's more the whole picture plus lying on your back.
Clubhouse with friends sounds nice...laugh alot together!
Barbara