1. < Fibromyalgia

Fibromyalgia

Posted by lvl @lvl, Jun 7 5:36pm

I’ve been prescribed many things and tried so much for my pain which is unbearable. Can anyone share what works for them best?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

ripley | @ripley | Nov 15 12:26pm
In reply to @sue417 "Hi I used to take cyclobenzaprine five milligrams every night. My new g p does not..." + (show)
@sue417

Hi
I used to take cyclobenzaprine five milligrams every night. My new g p does not want me using it at all.. I did use it while I was going through radiation.I would just take One at bedtime. I live in canada so my C b d oil is through the government . I take cbd 20mg / cbn 10mg. I take 0.5 Ml Of a
Syringe. I am changing 2 a gummy.I just have to have my meeting with my doctor. I.
Tried lyrica.It's a powerful drug.I couldn't use it

Jump to this post

How much Lyrica were you taking a day and what side effects made you stop?
Thanks.

REPLY
1 reply
sue417 | @sue417 | Nov 15 12:37pm
In reply to @ripley "How much Lyrica were you taking a day and what side effects made you stop? Thanks." + (show)
@ripley

How much Lyrica were you taking a day and what side effects made you stop?
Thanks.

Jump to this post

Hi
Honestly I do not recall the milligrams. It was a very long time ago. Basically I could not function on the medication. I am extremely hypersensitive to drugs. The only thing I am doing now is c.BD oil and 5H.T P 50 mg

REPLY
loriesco | @loriesco | Nov 16 8:49am

Fibromyalgia is kind of a catch-all for indiscriminate nerve pain. I was diagnosed 20 years ago. I didn't really "buy it." I couldn't make sense of it and why and when. After I received some other diagnoses, I could periodically make it go away. Seemed the worst when I was experiencing: menopause, inflammatory reactions, my muscles were "bound" up and I was having fatigue. I have tried everything but for me - getting rid of inflammation, which excited the nerves and caused massive fatigue, was probably the answer in my case. Solutions were: going on Bioidentical Hormone Replacement Therapy, changing my diet and adding amino acids which weren't getting digested properly (Spectracell has a GREAT test for deficiency), regularly going to an acupuncture doctor (this was the most helpful!); using yoga to stretch and deep breathe, having a nutrition analysis so I found out I was lactose/gluten intolerant and that cleared the brain fog, and gently exercising (walking) which kept circulation moving. The nerve meds NEVER helped me. l took them all. I am super sensitive to medication and I could not tolerate them. Find a GREAT deep tissue myofascial release therapist (there is a section here on MFR) and that should really put you in high gear after a few months. I found tart cherry capsules (Zazzee brand) helped me after 30 years! found it thru this group! My pain was misdiagnosed! Although I am riddled with osteo arthritis - so they mistakenly said that caused my whole body inflammation -- it turned out it was Gouty Arthritis (high uric acid levels) which caused my 30 years of whole body inflammation! It has been a life changer for me. I am back on HRT at 67, I tested for LCarnitine deficiency so I take a suppliment, take vitamin D (because we all need to at older age) and i'm feeling GREAT. So much better than the crap I was going thru 20 years ago! Its a personal journey for sure!

REPLY
Jessica | @jmenassaka | Nov 16 9:44am
In reply to @c101 "Hope it helps! Be aware that the Valerian has a natural smell of "dirty socks". The..." + (show)
@c101

Hope it helps! Be aware that the Valerian has a natural smell of "dirty socks". The capsules have no taste. It is normal for this Valerian root to smell this way. I suggest you keep the plastic bottle it in a sealed container after opening.

Jump to this post

The smell really is horrid! 😂

REPLY
View MoreView Less
Please sign in or register to post a reply.