Forteo weight gain…anyone experience this?

Posted by penk0213 @penk0213, Apr 16, 2023

I have gained weight recently at the 3 month mark of using Forteo. It is not listed as a side effect.

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Profile picture for tricia225 @tricia225

On the Inspire forum, a woman claimed she lost 12 lbs within 4 months of stopping forteo with no exercise.
We are all different but seeing as this is a synthetic hormone, I’m hoping that stopping it will yield weight loss, especially the belly fat. Ugh!

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Belly fat can also happen with menopause. Are you on hrt?

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I was on Forteo for 6 months and gained about 16 lbs. I stopped taking the med 4 months ago and am having a hard time losing the weight.

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Profile picture for zygote @zygote

I'm on tymlos and having pain in both knees too. It's harder to go up and down the stairs and I've only been on it for 4 months.

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I've been on a half dose of Tymlos for 7 months. I have gained 8 pounds and just recently my knees started hurting. It seems that all my joints feel arthritic. I didn't have this much pain before Tymlos.

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Profile picture for hopeful2025 @hopeful2025

I started Forteo on Jan. 11, 2024. Every month at one of my many doctor appointments, I was always gaining slowly. I weighed 110 in December 2023 and now I weigh 130 and mostly the extra weight is in the abdomen and thighs, I have itchy skin and pain in both knees.

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Yes, I gained 7 pounds over the course of about two months. I stopped taking it for a month due to other reasons and, without changing my diet, I lost 4 pounds within a couple of weeks. During that time, I also noticed improvements in fatigue and brain fog, both of which cleared up while off the medication. Despite these side effects, I’m continuing with it to weigh them against the more serious risk of spinal fractures.

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Profile picture for vkmov @vkmov

Yes, I gained 7 pounds over the course of about two months. I stopped taking it for a month due to other reasons and, without changing my diet, I lost 4 pounds within a couple of weeks. During that time, I also noticed improvements in fatigue and brain fog, both of which cleared up while off the medication. Despite these side effects, I’m continuing with it to weigh them against the more serious risk of spinal fractures.

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Same here. Last year because of dizzy spells, I fell 5 times and broke 5 different bones. Two required surgery earlier this year. I was told I would be doing the shot till December 2025. Plus I was in 2 hospitals and a Rehab medical place for a total of 65 days. I don't want to go through any of that again.

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Profile picture for hopeful2025 @hopeful2025

Same here. Last year because of dizzy spells, I fell 5 times and broke 5 different bones. Two required surgery earlier this year. I was told I would be doing the shot till December 2025. Plus I was in 2 hospitals and a Rehab medical place for a total of 65 days. I don't want to go through any of that again.

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I’m so sorry you’re going through this. Do you mind if I ask if your dizzy spells were from the Forteo?

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Profile picture for vkmov @vkmov

I’m so sorry you’re going through this. Do you mind if I ask if your dizzy spells were from the Forteo?

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No. I saw a Neurologist and I was on Keppra for a while. Now I am off the prescription and I haven't had any more dizzy spells. The doctor thinks I was on some medications that taken together caused the spells.

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Profile picture for ans @ans

I am not experiencing this after being on Forteo now 4 months, however when I spoke to the Specialty Pharmacy issuing my Forteo that people are posting this as happening - her response was you all should report it to the FDA as it’s only after they hit a number that is statistically significant that they can then add that as a potential side effect. If you all did this you could impact that and possibly change the information given as a side effect of that drug.

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I reported it along with three or four other women that I know of. I called Lilly who pleaded ignorance and then they took all my information and told me that they would send it to the FDA. Don't believe they will do anything. Lilly will now want to push Ozempic on us to lose the weight! lol
On a serious note, my doctor told me he was on the research team back in 2003 and they told him not to mention it because women wouldn't take it and "not enough of these women really gained weight, they're all in menopause". Now...if these were men gaining weight...!

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Profile picture for gravity3 @gravity3

Belly fat can also happen with menopause. Are you on hrt?

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I was on HRT and never had a dexa. I went off the HRT, moved to another state and that is when my compression fracture happened. The immediate drop in estrogen unmasked the genetic osteoporosis that I never knew was there. I never ever had belly fat through menopause or while on HRT.
I have been off Forteo now for three months; I feel like my old self energy-wise and while there is still a jelly roll around my once 27" waist, my stomach was flatter after the first month off that stuff. It moved the needle the tiniest bit in the right direction and while I'm grateful for the added density, I wish they'd tell about all the side effects.

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Profile picture for ymv @ymv

@me75 . I started Tymlos in June and have gained 32#! Primarily in my belly. The sugar cravings are horrible! I don’t have any answers and am frustrated because I know about nutrition and portion sizes and protein intake but I can’t seem to follow a proper diet. Weight gain was not a side effect noted during clinical trials and so far several of my doctors have an explanation. For me it’s caused a lot of anxiety and depression as well. I know this problem has affected others as it’s been posted. If anyone who has also had a weight gain and has some explanation and solutions please share!!

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I have been on Tymlos injections for 2 months and am rapidly gaining inches in belly fat despite the fact that I am careful with my diet , I walk, and have never had a weight problem.
Like you, the doctors and the pharmacist have told me "studies have not shown weight gain"
I know my body and I know this bloating/ increase in waist is from the Tymlos.
Were you able to find out any info about how /when this weight will come off?
yikes - I hope that when I stop the drug the weight (belly fat inches) can be lost!

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