1. < Osteoporosis & Bone Health

My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

hungrybirder | @hungrybirder | 16 hours ago
In reply to @firecracker "Hi @mayblin I was on Fosamax for two years at 35 mg, then next 4 years..." + (show)
@firecracker

Hi @mayblin I was on Fosamax for two years at 35 mg, then next 4 years were 70 mg (full strength).
I took an 18 month holiday before 5 more years of Fosamax. (A lot of Fosamax, I know.)
After another 1 year holiday, I had Reclast for 3 years.
Then another 1 year holiday followed by 1 more year of Reclast.
Finally, 1 year of Evenity. (No holiday directly before the Evenity.)
I hope this answers your questions.
The options other than Fosamax have certainly expanded in recent years.

Jump to this post

Hi @firecracker! I have a similar drug profile which started back 24 yrs ago. Did Evista for 3 yrs, about 7 yrs of Actonel followed by a 13 yr drug holiday, then Fosamax for 2.5 years and last year a Reclast infusion which if the scan is correct greatly improved my spine. While my endo seems to think Prolia is next, I don't. Hope to do a drug holiday until my spine goes South and then go to a bone builder. I'm encouraged by your post. Prolia might be an option in 10 yrs when I'm 88 but maybe by then there will be something new.

REPLY
1 reply
awfultruth | @awfultruth | 13 hours ago
In reply to @firecracker "Hi @mayblin I was on Fosamax for two years at 35 mg, then next 4 years..." + (show)
@firecracker

Hi @mayblin I was on Fosamax for two years at 35 mg, then next 4 years were 70 mg (full strength).
I took an 18 month holiday before 5 more years of Fosamax. (A lot of Fosamax, I know.)
After another 1 year holiday, I had Reclast for 3 years.
Then another 1 year holiday followed by 1 more year of Reclast.
Finally, 1 year of Evenity. (No holiday directly before the Evenity.)
I hope this answers your questions.
The options other than Fosamax have certainly expanded in recent years.

Jump to this post

@firecracker That's just amazing getting great improvements in both spine and hip after all those years of bisphosphonates. Just Amazing!
Congratulations!!!!!!!!!

REPLY
firecracker | @firecracker | 4 hours ago
In reply to @hungrybirder "Hi @firecracker! I have a similar drug profile which started back 24 yrs ago. Did Evista..." + (show)
@hungrybirder

Hi @firecracker! I have a similar drug profile which started back 24 yrs ago. Did Evista for 3 yrs, about 7 yrs of Actonel followed by a 13 yr drug holiday, then Fosamax for 2.5 years and last year a Reclast infusion which if the scan is correct greatly improved my spine. While my endo seems to think Prolia is next, I don't. Hope to do a drug holiday until my spine goes South and then go to a bone builder. I'm encouraged by your post. Prolia might be an option in 10 yrs when I'm 88 but maybe by then there will be something new.

Jump to this post

@hungrybirder, that's great that Reclast helped your spine so much! It helped mine a bit the first year and just kept it stable after that. I'm with you about Prolia. I will avoid it as long as possible.

REPLY
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