1. < Transplants

Use of essential oils for transplant patients

Posted by amandajeffersaz @amandajeffersaz, Mar 9, 2017

Hi!

I am curious about the use of essential oils when I have issues that might be helped by their use.

I had a living donor kidney transplant in August 2009. I am healthy and active, but do have the occassional ache, or pain, etc. I have ( self-diagnosed) plantar fasciitis, sore sometimes from a personal training session, occassional insomnia etc. Oh, I also have a "mild" case of valley fever (diagnosed at my 1 year post transplant anniversary).

I'm on the normal anti-rejection meds (prograf, cellcept, prednisone), plus itraconazole (for the valley fever, am allergic to fluconazole/diflucan).

I'm curious about others' use of essential oils and whether it's ok to use them.

Honoring the gift.

Thanks.

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 6, 2020
In reply to @vashti "Hi there. I have only been using fractionated coconut oil up till now, but incorporating the..." + (show)
@vashti

Hi there. I have only been using fractionated coconut oil up till now, but incorporating the other oils pretty soon. I will keep you posted on the outcome. There are wonderful oils that can be used instead of ess oils too.
X

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Vashti @vashti, I would like to drop in and ask you about your experience with the substitute oils that you are trying to replace the essential oils that had proved to be too potent for your immune system.
Have you found a combination that is satisfactory for you and for your transplant team? How are your tacrolimus levels responding?

REPLY
sharonedd | @sharonedd | Nov 11 1:50pm

Are you a transplant patient?

Thanks

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1 reply
footballmum | @footballmum | Nov 12 9:47am

Good morning
I'm a liver transplant patient, just celebrated my 4th transversary. I'm curious about using ginger essential oils for my IBS symptoms. As a transplant patient I'm very limited in what I can take. I know I can't take ginger orally. I've googled and am waiting for an answer from my team, but was very curious what some of your thoughts are. Thank you very much 😊🇨🇦🍁

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2 replies
maggieinfp | @maggieinfp | Nov 12 4:31pm
In reply to @footballmum "Good morning I'm a liver transplant patient, just celebrated my 4th transversary. I'm curious about using..." + (show)
@footballmum

Good morning
I'm a liver transplant patient, just celebrated my 4th transversary. I'm curious about using ginger essential oils for my IBS symptoms. As a transplant patient I'm very limited in what I can take. I know I can't take ginger orally. I've googled and am waiting for an answer from my team, but was very curious what some of your thoughts are. Thank you very much 😊🇨🇦🍁

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Following!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 12 4:44pm
In reply to @sharonedd "Are you a transplant patient? Thanks" + (show)
@sharonedd

Are you a transplant patient?

Thanks

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Hi, you asked a question to a former member of Mayo Clinic Connect who is no longer participating in this discussion as she is not a transplant member. The post has been removed.

@sharonedd, welcome! Are you a transplant recipient?

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1 reply
footballmum | @footballmum | Nov 12 5:34pm
In reply to @colleenyoung "Hi, you asked a question to a former member of Mayo Clinic Connect who is no..." + (show)
@colleenyoung

Hi, you asked a question to a former member of Mayo Clinic Connect who is no longer participating in this discussion as she is not a transplant member. The post has been removed.

@sharonedd, welcome! Are you a transplant recipient?

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I'm sorry, I thought I was just posting a random question. I didn't realize I was responding to someone else.

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cromme50 | @cromme50 | Nov 13 1:08pm
In reply to @footballmum "Good morning I'm a liver transplant patient, just celebrated my 4th transversary. I'm curious about using..." + (show)
@footballmum

Good morning
I'm a liver transplant patient, just celebrated my 4th transversary. I'm curious about using ginger essential oils for my IBS symptoms. As a transplant patient I'm very limited in what I can take. I know I can't take ginger orally. I've googled and am waiting for an answer from my team, but was very curious what some of your thoughts are. Thank you very much 😊🇨🇦🍁

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When I was gifted with a liver transplant 27 years ago in Rochester, I was told "if you can smell it, your liver has to process it". The same applies to any substance that touches our skins. Think gas stations, think air deodorizers, think air freshener sprays.....the list goes on. Think deodorant, lotions, make-up, hair coloring, hair spray, colognes and perfumes.....Before knowing about this, I was very aware of what I ate or drank but this is another dimension. I don't live my life paranoid about it but the awareness of how those items might challenge my precious liver is very real.

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2 replies
footballmum | @footballmum | Nov 13 2:03pm
In reply to @cromme50 "When I was gifted with a liver transplant 27 years ago in Rochester, I was told..." + (show)
@cromme50

When I was gifted with a liver transplant 27 years ago in Rochester, I was told "if you can smell it, your liver has to process it". The same applies to any substance that touches our skins. Think gas stations, think air deodorizers, think air freshener sprays.....the list goes on. Think deodorant, lotions, make-up, hair coloring, hair spray, colognes and perfumes.....Before knowing about this, I was very aware of what I ate or drank but this is another dimension. I don't live my life paranoid about it but the awareness of how those items might challenge my precious liver is very real.

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Thank you. I already lived my life like that. Honestly live my life like
we're still in the middle of covid. I was just curious if anyone else was
using a topical for IBS as we cannot take anything orally. But thank you
very much for your support

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Nov 13 8:20pm
In reply to @cromme50 "When I was gifted with a liver transplant 27 years ago in Rochester, I was told..." + (show)
@cromme50

When I was gifted with a liver transplant 27 years ago in Rochester, I was told "if you can smell it, your liver has to process it". The same applies to any substance that touches our skins. Think gas stations, think air deodorizers, think air freshener sprays.....the list goes on. Think deodorant, lotions, make-up, hair coloring, hair spray, colognes and perfumes.....Before knowing about this, I was very aware of what I ate or drank but this is another dimension. I don't live my life paranoid about it but the awareness of how those items might challenge my precious liver is very real.

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@cromme50, I really like how your Mayo transplant team explained how anything we smell, taste, or feel has to be processed by our liver! Simple and easy to remember and to understand.
I also transplanted at Mayo Rochester, 15 years ago. It is a fantastic place! I received a simultaneous liver and kidney from an anonymous deceased donor. I return annually. Do you still have follow-ups at Mayo?
I don't recall whether I have shared the following link with you. But I feel certain that you have an experience that will be inspiring for those who are beginning their own transplant journey.
- Organ Donation and Transplant: What is Your story?https://connect.mayoclinic.org/discussion/use-of-essential-oils-for-transplant-patients/

Would you consider sharing your story there?

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