Hello @hmt and welcome to the Parkinson's support group on Mayo Connect. I am glad that you felt comfortable expressing your situation here on this forum. I wish there were some answers that I could provide, however, like you said Parkinson's will manifest itself in different forms with different individuals. There is no "one-size fits all" description.

While you indicated that you are not looking for advice, I just need to mention that it is important that your husband be seen by a movement disorder specialist. They are neurologists with special training in disorders like Parkinson's. Is he currently being seen by a movement disorder specialist? Has he been examined for a possible LBD diagnosis? Here are links to discussions about LBD:
https://connect.mayoclinic.org/discussion/lewy-body-dementia-1/
https://connect.mayoclinic.org/discussion/communicating-challenges-with-lewy/
And here is a link to a Mayo Clinic Newsfeed Post,
--Lewy Body Dementia Caregiver Resources
https://connect.mayoclinic.org/blog/dementia-hub/newsfeed-post/lewy-body-dementia-caregiver-resources/
On Mayo Connect we also have a caregiver's support group. Here is the link to those conversations. https://connect.mayoclinic.org/group/caregivers/

I would encourage you to look through those discussions. I think that you will find many of those conversations to be helpful.

I hope you find the support you need. Will you continue to post in any of these discussion groups?