Frouke,
I got covid last January 15 if you don't count the 10 day incubation period. thought I recovered well from covid as of early February. I had a great deal of energy and could return to the gym. On Feb 17 my heart rate soared to 148 per a doctor present who happened to have his bag when I collapsed at church. He immediately called an ambulance and I was in the hospital for 3 days, I've been tired ever since. I struggle to keep my house clean, meals cooked and lift a few weights at home. I had been used to walking with vigor 45 minutes per day as well. Now all is a struggle. I walk slowly and lift far less weight at home.
Every day is a challenge. I fight my way through them.
Yes my partner had Covid 4 times from March of 2020- August of 2022. He had all the vaccines. He had side effects after each time. Definitely keep up on your heart health. He got heart failure after his in 2021 covid bout. He didn't follow the diet very much. Following the diet was even more important for him because of his previous stroke & diabetes. That also made his food choices very limited. He died in Oct of 2023 because of heart failure. He also had a dementia from Covid.
Yes my partner had Covid 4 times from March of 2020- August of 2022. He had all the vaccines. He had side effects after each time. Definitely keep up on your heart health. He got heart failure after his in 2021 covid bout. He didn't follow the diet very much. Following the diet was even more important for him because of his previous stroke & diabetes. That also made his food choices very limited. He died in Oct of 2023 because of heart failure. He also had a dementia from Covid.
Omg. I’m sooo sorry to hear that. I feel for you. Can I ask a few questions?
1) what heart symptoms did he have and did they find the issues right away?
2) did they admit or believe it was Covid/LC related?
3) The dementia, same questions as above.
I know we all have Brain Fog but some worse than others. I start to question the degree of Brain Fog for myself. My family I think uses it to make me think I’m crazy or have dementia at times. Appreciate the help. I am using much of everyone’s conversations to help get us heard. Thanks for your help and again, truly sorry.
Omg. I’m sooo sorry to hear that. I feel for you. Can I ask a few questions?
1) what heart symptoms did he have and did they find the issues right away?
2) did they admit or believe it was Covid/LC related?
3) The dementia, same questions as above.
I know we all have Brain Fog but some worse than others. I start to question the degree of Brain Fog for myself. My family I think uses it to make me think I’m crazy or have dementia at times. Appreciate the help. I am using much of everyone’s conversations to help get us heard. Thanks for your help and again, truly sorry.
We aren't sure if he started symptoms after 2020 ,2021 He was short of
breath some tight chest at times, but really no major symptoms his
caregiver caught it. She was monitoring his blood pressure & h20. Then his
PCP referring him to a cardiologist. He had a chemical stress test. Wore a
Holter monitor for 48 hours, plus a few others. They didn't connect it to
Covid until 2022. He was offered a heart surgery but he wanted to wait &
try diet. Unfortunately his stroke in 2009 caused some memory problems. His
dementia started out with him seeing things months gaps then progressed
rapidly. I saw in studies professionals are saying Covid actually lowered
some survivors IQ. I'm having memory problems, brain fog. His brain fog was
way less than mine. He also started becoming angry easily. He was always
saying we didn't tell him anything. He forgot he ate, forgot to take his
medicine, when he took a nap he often became confused if it was day or
night. The dementia they didn't connect to Covid but his caregiver believed
it was. She recently read me an article from a medical journal saying Covid
patients seeing things were being misdiagnosed. More research needs done on
Covid LC survivors diagnosed with dementia. I'm scared hearing people say
Covid is over. We won't know the full extent of Covid's damage for decades.
I'm sorry you're having to deal with the aftermath.
Yes my partner had Covid 4 times from March of 2020- August of 2022. He had all the vaccines. He had side effects after each time. Definitely keep up on your heart health. He got heart failure after his in 2021 covid bout. He didn't follow the diet very much. Following the diet was even more important for him because of his previous stroke & diabetes. That also made his food choices very limited. He died in Oct of 2023 because of heart failure. He also had a dementia from Covid.
So sorry for your tragic loss. I still haven't gotten my flu or Covid shots. The only time I had the flu was when I did not have the shot. You've made me hesitant about another Covid shot though. When I got my covid shots on time they worked. Maybe I got the last one too late. Or maybe it was the cause. Lost.
@kellysmail2016, hi, I understand how you feel and feel it’s a good idea to fight back, it may very well be worth the effort and perhaps it may even help to make a difference, we have to start somewhere. I don’t use it alias when I post comments here, instead I use my real name, I have nothing to hide and my comments are truthful and intended to help others in a small way. I hope that you will be able to get the help needed to make a difference for yourself and others, take care and good luck.
☺️ Hi Frouke, (is this your first name?). Mine is Kelly. Im fine everyone knowing my name. I mean well and hope I have it in me to accomplish what’s in this head of mine. Though, shoot, I can’t even make my boyfriend understand and he has to help me do daily activities I took for granted. I try to explain, why would I even want to make any of this up. I’m not crazy 🤪, though at times I think it might be just easier to say. lol. Walk in Cardiologist and they ask why you are there and just start screaming and pulling your hair and drooling. I’m giggling out loud right now cause I now really want to do that to the next Dr that mentions my issue is my weight or mental capacity. That would be the most fun I have had in a long time. 🥴.
☺️ Hi Frouke, (is this your first name?). Mine is Kelly. Im fine everyone knowing my name. I mean well and hope I have it in me to accomplish what’s in this head of mine. Though, shoot, I can’t even make my boyfriend understand and he has to help me do daily activities I took for granted. I try to explain, why would I even want to make any of this up. I’m not crazy 🤪, though at times I think it might be just easier to say. lol. Walk in Cardiologist and they ask why you are there and just start screaming and pulling your hair and drooling. I’m giggling out loud right now cause I now really want to do that to the next Dr that mentions my issue is my weight or mental capacity. That would be the most fun I have had in a long time. 🥴.
Hi Kelly, don’t worry about what the doctors say, they just make you doubt yourself and you and I both know what we’re going through. I had to laugh at what you said about behaving like you lost your mind, it tells me you’re okay because you have a sense of humour and that’s very important for your survival. I sometimes feel like we’re like the pioneers of this horrible virus and I think it’s going to be some time before the medical profession gets on board with what is happening. I do read some hopeful stories about some people who have found the right doctor to help them with their health, some of them even share what they know and that’s good for us. Please don’t give up the faith and keep on fighting back because it’s real and so many of us are going through the same thing, stay positive and strong, Frouke.
Hi Kelly, don’t worry about what the doctors say, they just make you doubt yourself and you and I both know what we’re going through. I had to laugh at what you said about behaving like you lost your mind, it tells me you’re okay because you have a sense of humour and that’s very important for your survival. I sometimes feel like we’re like the pioneers of this horrible virus and I think it’s going to be some time before the medical profession gets on board with what is happening. I do read some hopeful stories about some people who have found the right doctor to help them with their health, some of them even share what they know and that’s good for us. Please don’t give up the faith and keep on fighting back because it’s real and so many of us are going through the same thing, stay positive and strong, Frouke.
Thank you Frouke,
Glad you got a laugh out of it. Humor is definitely my best medicine. All the other 19 they have me on don’t work as well as humor!! I read a lot myself and hear stories of Drs who really are trying to learn and help. I have gone through the Dr lottery in my area and have a few I like that are trying to help. Some of them don’t get it at all. I mentioned Long Covid to the Urologist and they looked at me confused almost like they had never heard of it. Coughing hard for months at a time has been proven to make your pelvic floor weak and the causing organs to start to fall out. Sounds great Hunh. lol. I was there for that issue but never seemed to hear of it. And not sure how your area is but it takes 6-12 months to get to the specialist here. So firing them and starting over is a real PITA. especially if you need help then. I’m hoping next two new Drs I see in the next week are better 🤞. Thanks for your support and help. Fighting together!!!!
I had mild pneumonia with covid in early September. I went yesterday to ER to get chest xray done again. My only symptom that l still have is when l take a deep breath l feel discomfort and it goes into my upper back. The findings they stated on paperwork was right lower lung airspace opacity. The differential diagnosis is aspiration, atelectasis or pneumonia. Also atherosclerotic calcification of the aortic arch. Have no idea what this is. Did anybody have this after covid/pneumonia. Can it be a lc thing?
I had mild pneumonia with covid in early September. I went yesterday to ER to get chest xray done again. My only symptom that l still have is when l take a deep breath l feel discomfort and it goes into my upper back. The findings they stated on paperwork was right lower lung airspace opacity. The differential diagnosis is aspiration, atelectasis or pneumonia. Also atherosclerotic calcification of the aortic arch. Have no idea what this is. Did anybody have this after covid/pneumonia. Can it be a lc thing?
Hi, it sounds like you have your hands full with medical issues and I’m sorry because it’s so hard and frustrating to deal with all the symptoms. I think, purely as a non medical person, it’s still early to say if it’s due to covid, time and more cases coming up to do the stats on this.. would question many doctors to get some answers because you have a right to know, even pneumonia can cause further changes inside. I have long covid and it affects my heart rate, it beats too fast, I learned here on the Mayo connect that many people have the same problem, comfort in numbers can be helpful.
Thank you Frouke,
Glad you got a laugh out of it. Humor is definitely my best medicine. All the other 19 they have me on don’t work as well as humor!! I read a lot myself and hear stories of Drs who really are trying to learn and help. I have gone through the Dr lottery in my area and have a few I like that are trying to help. Some of them don’t get it at all. I mentioned Long Covid to the Urologist and they looked at me confused almost like they had never heard of it. Coughing hard for months at a time has been proven to make your pelvic floor weak and the causing organs to start to fall out. Sounds great Hunh. lol. I was there for that issue but never seemed to hear of it. And not sure how your area is but it takes 6-12 months to get to the specialist here. So firing them and starting over is a real PITA. especially if you need help then. I’m hoping next two new Drs I see in the next week are better 🤞. Thanks for your support and help. Fighting together!!!!
I had 30 years of drs saying just loose weight. Then my new PCP diagnosed me with lymphedema spinal stenosis, two torn rotator cuffs a burst bicep, a meniscus tear, & a rare painful disease. I had the surgeries. Started treating the lymphedema, & managing the symptoms of the disease. Don't give up. I'm so sorry you're going through this. lol one of the specialist, wrote in my chart, I was mean & nasty. Just because I told him if he doesn't know anything about my health conditions how can he treat the symptoms from the disease. I should have shown him mean & nasty. It did give my PCP a good laugh & removed him from the referral list.
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Yes my partner had Covid 4 times from March of 2020- August of 2022. He had all the vaccines. He had side effects after each time. Definitely keep up on your heart health. He got heart failure after his in 2021 covid bout. He didn't follow the diet very much. Following the diet was even more important for him because of his previous stroke & diabetes. That also made his food choices very limited. He died in Oct of 2023 because of heart failure. He also had a dementia from Covid.
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2 ReactionsOmg. I’m sooo sorry to hear that. I feel for you. Can I ask a few questions?
1) what heart symptoms did he have and did they find the issues right away?
2) did they admit or believe it was Covid/LC related?
3) The dementia, same questions as above.
I know we all have Brain Fog but some worse than others. I start to question the degree of Brain Fog for myself. My family I think uses it to make me think I’m crazy or have dementia at times. Appreciate the help. I am using much of everyone’s conversations to help get us heard. Thanks for your help and again, truly sorry.
We aren't sure if he started symptoms after 2020 ,2021 He was short of
breath some tight chest at times, but really no major symptoms his
caregiver caught it. She was monitoring his blood pressure & h20. Then his
PCP referring him to a cardiologist. He had a chemical stress test. Wore a
Holter monitor for 48 hours, plus a few others. They didn't connect it to
Covid until 2022. He was offered a heart surgery but he wanted to wait &
try diet. Unfortunately his stroke in 2009 caused some memory problems. His
dementia started out with him seeing things months gaps then progressed
rapidly. I saw in studies professionals are saying Covid actually lowered
some survivors IQ. I'm having memory problems, brain fog. His brain fog was
way less than mine. He also started becoming angry easily. He was always
saying we didn't tell him anything. He forgot he ate, forgot to take his
medicine, when he took a nap he often became confused if it was day or
night. The dementia they didn't connect to Covid but his caregiver believed
it was. She recently read me an article from a medical journal saying Covid
patients seeing things were being misdiagnosed. More research needs done on
Covid LC survivors diagnosed with dementia. I'm scared hearing people say
Covid is over. We won't know the full extent of Covid's damage for decades.
I'm sorry you're having to deal with the aftermath.
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Helpful -
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1 ReactionSo sorry for your tragic loss. I still haven't gotten my flu or Covid shots. The only time I had the flu was when I did not have the shot. You've made me hesitant about another Covid shot though. When I got my covid shots on time they worked. Maybe I got the last one too late. Or maybe it was the cause. Lost.
☺️ Hi Frouke, (is this your first name?). Mine is Kelly. Im fine everyone knowing my name. I mean well and hope I have it in me to accomplish what’s in this head of mine. Though, shoot, I can’t even make my boyfriend understand and he has to help me do daily activities I took for granted. I try to explain, why would I even want to make any of this up. I’m not crazy 🤪, though at times I think it might be just easier to say. lol. Walk in Cardiologist and they ask why you are there and just start screaming and pulling your hair and drooling. I’m giggling out loud right now cause I now really want to do that to the next Dr that mentions my issue is my weight or mental capacity. That would be the most fun I have had in a long time. 🥴.
Hi Kelly, don’t worry about what the doctors say, they just make you doubt yourself and you and I both know what we’re going through. I had to laugh at what you said about behaving like you lost your mind, it tells me you’re okay because you have a sense of humour and that’s very important for your survival. I sometimes feel like we’re like the pioneers of this horrible virus and I think it’s going to be some time before the medical profession gets on board with what is happening. I do read some hopeful stories about some people who have found the right doctor to help them with their health, some of them even share what they know and that’s good for us. Please don’t give up the faith and keep on fighting back because it’s real and so many of us are going through the same thing, stay positive and strong, Frouke.
Thank you Frouke,
Glad you got a laugh out of it. Humor is definitely my best medicine. All the other 19 they have me on don’t work as well as humor!! I read a lot myself and hear stories of Drs who really are trying to learn and help. I have gone through the Dr lottery in my area and have a few I like that are trying to help. Some of them don’t get it at all. I mentioned Long Covid to the Urologist and they looked at me confused almost like they had never heard of it. Coughing hard for months at a time has been proven to make your pelvic floor weak and the causing organs to start to fall out. Sounds great Hunh. lol. I was there for that issue but never seemed to hear of it. And not sure how your area is but it takes 6-12 months to get to the specialist here. So firing them and starting over is a real PITA. especially if you need help then. I’m hoping next two new Drs I see in the next week are better 🤞. Thanks for your support and help. Fighting together!!!!
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Like -
Helpful -
Hug
4 ReactionsI had mild pneumonia with covid in early September. I went yesterday to ER to get chest xray done again. My only symptom that l still have is when l take a deep breath l feel discomfort and it goes into my upper back. The findings they stated on paperwork was right lower lung airspace opacity. The differential diagnosis is aspiration, atelectasis or pneumonia. Also atherosclerotic calcification of the aortic arch. Have no idea what this is. Did anybody have this after covid/pneumonia. Can it be a lc thing?
Hi, it sounds like you have your hands full with medical issues and I’m sorry because it’s so hard and frustrating to deal with all the symptoms. I think, purely as a non medical person, it’s still early to say if it’s due to covid, time and more cases coming up to do the stats on this.. would question many doctors to get some answers because you have a right to know, even pneumonia can cause further changes inside. I have long covid and it affects my heart rate, it beats too fast, I learned here on the Mayo connect that many people have the same problem, comfort in numbers can be helpful.
-
Like -
Helpful -
Hug
1 ReactionI had 30 years of drs saying just loose weight. Then my new PCP diagnosed me with lymphedema spinal stenosis, two torn rotator cuffs a burst bicep, a meniscus tear, & a rare painful disease. I had the surgeries. Started treating the lymphedema, & managing the symptoms of the disease. Don't give up. I'm so sorry you're going through this. lol one of the specialist, wrote in my chart, I was mean & nasty. Just because I told him if he doesn't know anything about my health conditions how can he treat the symptoms from the disease. I should have shown him mean & nasty. It did give my PCP a good laugh & removed him from the referral list.