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Have you got Primary Progressive Apraxia of Speech? Let's connect
Are you living with Primary Progressive Apraxia of Speech? Sometimes it's called progressive apraxia of speech or PPAOS. It reflects difficulty with speaking quickly and accurately. It may start with a simple word you can’t pronounce. Your tongue and lips stumble, and gibberish comes out. It can sometimes occur by itself (speech is the only problem) or develop into other neurologic syndromes like corticobasal syndrome or progressive supranuclear palsy.
On Connect we would like to bring together people who have been affected by PPAOS and provide a space to share your experiences and provide tips for managing it. Patients and family members are welcome.
Grab a cup of tea, or beverage of your choice, and let's connect. Why not start by introducing yourself?
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Hi @peggypierce, denial with mild cognitive impairment is common. I think you may appreciate the blog posts written by the directors of the Mild Cognitive Impairment program called HABIT at Mayo Clinic. See:
- Living with Mild Cognitive Impairment https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/
Your situation reminded my of this post written by @drmelaniechandler
- Is it Denial or Something Else? https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/is-it-denial-or-something-else/
I agree with @aoibhin. This is a lot to absorb and to deal with. Who on his medical team has told him about his diagnosis of MCI and apraxia? Have you been able to get support?
Not a lot yet.I got a ultrasound of my legs today.Tomorrow i get a EEG and then next week a MRI. .I have had vertigo to go along with everything else.Still have days where i can't hardly get a word out.Maybe after EEG and MRI they will figure it out.
Thank you, Colleen. Bill was diagnosed with. MCI in 2020 at Banner Alzheimers Institute. His apraxia diagnosis came from his speech pathologist just this year.
Peggy Pierce
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1 Reaction@larry68, how did the appointments go?
I usually use the Personal Voice on iPhone,
I using my TD Snap, with figures, to record my family, careers, education, and etc.
I like the TD Talk because it easier to type, I hope the TD Dynavox will in future, has app TD Talk with iPhone.
Earlier months ago, I going speech therapy twice a week, at FSU speech communication and the private speech therapist.
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1 ReactionMost people have aphasia which is different from Apraxia. I didn’t get anything I was looking for
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1 ReactionI like to know what are the dangers of anesthesia to the PPAOS brain . Does it trigger cognitive impairments?
What meds are a concern ? I know that benzodiazepines, anticholinergics,antihistamines , opiods etc should be avoided.
Where can I find information about this subject? I tried a pharmacy consult and my questions went unanswered
I attended the breakout chat. Aphasia is different that PPAOS . Yes I can learn something from them but I was hoping to be in a chat with people who have PPAOS
Happy Holidays!!
I discovered the new support group of just PPAOS patients, FINALLY!!!
See you on last Wednesday in January at 4 o'clock!!
PPAOS Friends Virtual Support Group Flyer (PPAOS-Friends-Virtual-Support-Group-Flyer.pdf)
My wife has recently had trouble speaking and forming sentences. After her two minute speach to her primary care doc, the doc said I didn't understand a single word you said.