Chronic Pain members - Welcome, please introduce yourself

I have done and continuing to conduct research for treatment and hopefully cures for my rectal area pain. (Had colorectal surgery about 10 year ago.) Lost count on the number of doctors, PT specialists, implanted spinal stimulator, which was useless; and the number of prescription OTC medications have taken over the years all providing very little or no relief.

hello there! Does your rectal area pain come with constipation, rectocele? Is it constant pressure? I have pelvic floor dysfunction and been to 2 pelvic floor therapists and several neuro and ortho for spine issues. Been to PT several times for DJD, spinal arthritis and weak hips due to flexor issues. However, nothing has helped this constant rectal pain that is excruciating . I am seeing a pain Dr. currently as I have exhausted other measures. I have a rectocele also. I have also tried numerous meds that either knock you out or make you nuttier than you are already. I continue to pray and search as well. Thanks for sharing

Hello, I am Wendy, new to this platform. I've been managing Fibromyalgia for 24 years, doing my best to cope. However, a few years back, I started experiencing tailbone pain. Things deteriorated after a Medial Branch Block (MBB), a test to see if I was suitable for Radio Frequency Ablation (RFA). Post-MBB, the pain intensified, leading to severe inflammation that severely limited my mobility and daily activities. The extreme pain subsided after weeks, but I was left with persistent pain that made sitting for more than 30-40 minutes unbearable, as if sitting on jagged rocks. My glutes and sit bones suffered too, along with low back pain, muscle spasms, bursitis in both hips, heel/foot pain, arthritis, and Lymphedema. The RFA offered a slight improvement of 10-15%. It seems my Fibromyalgia is exacerbating the pain, indicating a flare-up lasting 5 months, which is atypical for me, except for one other instance after a critical illness.

For a year, I've engaged in physical therapy and home exercises, albeit limitedly. Cortisone injections in my sacrum facet joints brought no relief, just enough to keep me functional. My Spine and Pain doctor is now recommending a trial with an implanted neurostimulator for 7-10 days, following a successful psychological evaluation and a comprehensive thoracic MRI. I'm striving to remain optimistic and hopeful, despite the struggle to lead a normal life with compromised abilities to sit, stand, and walk.

Hello, I am Wendy, new to this platform. I've been managing Fibromyalgia for 24 years, doing my best to cope. However, a few years back, I started experiencing tailbone pain. Things deteriorated after a Medial Branch Block (MBB), a test to see if I was suitable for Radio Frequency Ablation (RFA). Post-MBB, the pain intensified, leading to severe inflammation that severely limited my mobility and daily activities. The extreme pain subsided after weeks, but I was left with persistent pain that made sitting for more than 30-40 minutes unbearable, as if sitting on jagged rocks. My glutes and sit bones suffered too, along with low back pain, muscle spasms, bursitis in both hips, heel/foot pain, arthritis, and Lymphedema. The RFA offered a slight improvement of 10-15%. It seems my Fibromyalgia is exacerbating the pain, indicating a flare-up lasting 5 months, which is atypical for me, except for one other instance after a critical illness.

For a year, I've engaged in physical therapy and home exercises, albeit limitedly. Cortisone injections in my sacrum facet joints brought no relief, just enough to keep me functional. My Spine and Pain doctor is now recommending a trial with an implanted neurostimulator for 7-10 days, following a successful psychological evaluation and a comprehensive thoracic MRI. I'm striving to remain optimistic and hopeful, despite the struggle to lead a normal life with compromised abilities to sit, stand, and walk.

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

Hello. @reeneyed girl721. You are not alone in your painful circumstances. After a ski fall eight years ago, I also felt like I was sitting on "hockey pucks". Even through all my treatments, that feeling has never left me. Unfortunately, most pain docs do not have the time, compassion(as @philipsnowden has mentioned), and EMPATHY. My current pain doc has thirteen patient rooms. They are generally full when I go. Ten minutes is the usual visit time for me. How do you deal with patients' issues in ten minutes? After a year he still does not know my name or what caused my condition until he rushes in and scans his notes. Quite disheartening. I really wish you some kind of success in finding relief with the spinal cord stimulator. I had one that worked quite well for a couple of years. I am going for a consult this week with my neurosurgeon to see about having a newer, more sophisticated model implanted.

I am one of the lucky ones that the radio ablasion works for but my fibermyalgia still flares up in that area because I landed really hard on my coycx. Doc told me every bad injury will come back to haunt me with the fibermyalgia and I will feel the pain more intensely. He is right , my flare ups are in the areas that I have been in the areas that have been injured in the past. An ice pack on my butt helps me cope.