Has anyone used Trelegy?

Posted by guinivere @guinivere, Oct 24, 2024

I have been on Advair HFA for a long time, over 10 years. My COPD per tests today is stable, but I have wondered if I should switch to something different. I did not know the doctor I saw today but I had had a PFT test, shared my thoughts about being so long on Advair & she right off the bat suggested Trelogy. A once a day discus inhaler, bye bye to Advair & Incruse! Now that I have switched, I am anxious, primarily because I didn't get to discuss this with her. OR my doctor! I am going to try to contact him tomorrow but meanwhile would like to hear from anyone re Trelogy &/or Advair.

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Trelegy has been a life saver for me. It contains 3 medications, so its much easier than using 3 inhalers. It also makes me feel better. I pray everyone finds the right inhaler that helps you feel better.

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@patrick1000

I did trelegy for 1 1/2 yrs but can no longer get a good price on it. Seemed to work somewhat better for me than Wixela.

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I have used trilogy for 10 years now and it works very well for me. My insurance covers it so my monthly cost is about $50 until I reach my donut hole and then it jumps to about $180 for the balance of the year, when it comes to my breathing, I guess I just need to be able to breathe whatever it takes.

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For me trilogy has been the best. I can feel it when I don’t use it and when I do, I can breathe. I am currently at 5000 feet above sea level so breathing is very difficult and I have to use a rescue inhaler during the day even with trilogy, but I can tell right away when I don’t use the trilogy that I can’t breathe at all

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I currently use Trelegy and have for about 8 or 10 months. I use oxygen 24/7 now. I used to be able to get by without it when watching TV or at the computer or anything where I was sitting still. I used to use Combivent Respimat as my primary inhaler and now I use it as a secondary inhaler. I think I like the Combivent better. I have been getting the Trelegy for free but that ends at the end of this year. I think I will go back to Combivent as my primary inhaler.

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I have used it for two years. It's very helpful. I have bronchitis, asthma, and COPD.

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I was on Advair twice a day for quite a while. I have been on Trelegy now for about three years. I’m doing better on it.

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@segoyner

I screen my plan very carefully . I will be changing it for 2025. The price of Trelegy is the reason. BB , Crys

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Yes, Trelegy is very expensive. It’s still quite a bit with goodrx

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My insurance stopped paying for Breztri on Jan 1. Was on that twice a day for 5 years.
My awesome pulmonologist prescribed Trelegy. It’s been great. Very important to rinse very well, like any of the Copd inhalers. I like that it’s once a day. I feel very good with it. I also take Roflumilast 500 mcg once per day.
I have emphysema. I had chronic bronchitis but did a clinical trial at Temple Lung in Philly and I got the real deal treatment. So bye bye Bronchitis.
Good breathing people.
And God bless.

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@JustinMcClanahan

Hello @guinivere, I'd like to invite @jenicamom, @smd0109, @kathleenkapes and @ead to this conversation to share their experiences with Trelegy. Each has been prescribed Trelegy for different reasons but may be able to offer some experiences they have had with it.

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I have used trelegy for the past almost 10 years. I cannot get out of bed without inhaling my trlegy first and foremost every day. I live in high altitude now so I need a rescue inhaler during the day but trelegy is my life saver.

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@sizwhatitiz2

Yes, Trelegy is very expensive. It’s still quite a bit with goodrx

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Trelegy is expensive but go to the drug company website. After you spend a certain amount on drugs, they will send you Trelegy for free. I think it's $800 out of pocket for drugs and then apply for the assistance. It's been great for me.
Also, there is a program Patient Advocate Foundation that has opened a fund for COPD. They allow $1800 a year for COPD meds. Also helpful. Check these both out to see if you qualify.

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