Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Thanks for posting the Mayo link, which I dad to compare it to my own experiences nearly two years ago. My extreme episodes of breathlessness while out walking and light-headed ness ( which I blamed on pandemic anxiety) led me to 30 days wearing a Holter monitor, which reported to my physician that I was having partial “blockages” — actually electrical issues within my heart. After one episode where I had no beat for 4.5 seconds I was referred to a cardiologist who sent me immediately to ER and subsequent admission for an emergency implantation of a two-wire pace-maker. When they could finally work me into the surgery schedule three (hospitalized) days later the actual surgery was under general anesthesia and only took 30 minutes. And I’ve been grateful for it ever since. I have about 9 yrs left on my battery. My advice is to be sure to schedule the procedure at a hospital that does high volumes of the surgery, where the doctors are very experienced. Good luck, all! 🙂

REPLY
@brightwood

Thanks for posting the Mayo link, which I dad to compare it to my own experiences nearly two years ago. My extreme episodes of breathlessness while out walking and light-headed ness ( which I blamed on pandemic anxiety) led me to 30 days wearing a Holter monitor, which reported to my physician that I was having partial “blockages” — actually electrical issues within my heart. After one episode where I had no beat for 4.5 seconds I was referred to a cardiologist who sent me immediately to ER and subsequent admission for an emergency implantation of a two-wire pace-maker. When they could finally work me into the surgery schedule three (hospitalized) days later the actual surgery was under general anesthesia and only took 30 minutes. And I’ve been grateful for it ever since. I have about 9 yrs left on my battery. My advice is to be sure to schedule the procedure at a hospital that does high volumes of the surgery, where the doctors are very experienced. Good luck, all! 🙂

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Hello brightwood
Thank you for taking the time to put to this thread.
I believe messages such as yours hi a long way to help reassure others that pacemakers in all their forms, are meant to enable, not disable, patients. For the most part, they improve lives by enabling recipients to live life much more fully and with better overall quality. That is certainly been my experience.
Again thank you for sharing your positive message.
Take care of yourself.
Best wishes.

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@cottagecountry

Hello brightwood
Thank you for taking the time to put to this thread.
I believe messages such as yours hi a long way to help reassure others that pacemakers in all their forms, are meant to enable, not disable, patients. For the most part, they improve lives by enabling recipients to live life much more fully and with better overall quality. That is certainly been my experience.
Again thank you for sharing your positive message.
Take care of yourself.
Best wishes.

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Please forgive the typos.
I have to remind myself that using the keyboard on my phone to write replies to posts is an invitation to type gibberish. 🙃
My apologies.

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Any ICD/Pacemaker recipients using electric blanket? It’s my winter bed cover to keep the cold out. I’ve use it about 8 months out of the year. Is there a potential problem with electric field interference with the ICD ?

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@tct

Any ICD/Pacemaker recipients using electric blanket? It’s my winter bed cover to keep the cold out. I’ve use it about 8 months out of the year. Is there a potential problem with electric field interference with the ICD ?

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Hello tct
I don't know what make of pacemaker or ICD you have , but here is a link to Medtronic 's website where they offer guidance about the safe use of things like appliances, tools, etc. Most of the manufacturers have similiar information available online.
In my experience, if one manufacturer states an item is safe to use, the others do , too.
https://www.medtronic.com/en-us/l/patients/electromagnetic-guide/household-hobby.html
Hope this helps.
All the best

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I had pacemaker fitted two weeks ago. I now feel a sense of anxiety and apprehension although physically better since the fitting, does anyone else have this feeling?

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@jillianas527

I had pacemaker fitted two weeks ago. I now feel a sense of anxiety and apprehension although physically better since the fitting, does anyone else have this feeling?

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Hello jillianas527
I had my device implanted a little over 2 years ago. Before the surgery, I was the least anxious person I knew. But, now for some reason, I do experience a heightened sense of general anxiety. Why? I do not know. My device works very well and I feel very well.
I do find it essential to get good quality sleep and enough of it. That alone has a huge impact on my state of mind.
In addition, I practice deep breathing at least twice a day. And I started doing mindfulness meditation each day. I do a 15 minute session each morning. I have been doing both of these things for a little more than a year and they have made a tremendous difference in my overall quality of life.
Perhaps others out there have other suggestions they can share. But take some comfort in knowing you are not alone in feeling this way.
All the best.

REPLY
@cottagecountry

Hello jillianas527
I had my device implanted a little over 2 years ago. Before the surgery, I was the least anxious person I knew. But, now for some reason, I do experience a heightened sense of general anxiety. Why? I do not know. My device works very well and I feel very well.
I do find it essential to get good quality sleep and enough of it. That alone has a huge impact on my state of mind.
In addition, I practice deep breathing at least twice a day. And I started doing mindfulness meditation each day. I do a 15 minute session each morning. I have been doing both of these things for a little more than a year and they have made a tremendous difference in my overall quality of life.
Perhaps others out there have other suggestions they can share. But take some comfort in knowing you are not alone in feeling this way.
All the best.

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How lovely hearing from you cottagecountry. That is so helpful. I too was the least anxious person and it has come as a surprise that I now am - hopefully not for long! I will take your advice and begin tomorrow to try meditation and deep breathing. I am most grateful, thank you.

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@cottagecountry

Hello tct
I don't know what make of pacemaker or ICD you have , but here is a link to Medtronic 's website where they offer guidance about the safe use of things like appliances, tools, etc. Most of the manufacturers have similiar information available online.
In my experience, if one manufacturer states an item is safe to use, the others do , too.
https://www.medtronic.com/en-us/l/patients/electromagnetic-guide/household-hobby.html
Hope this helps.
All the best

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Thanks, I have a Medtronic device, so that was helpful!

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@brightwood

Thanks for posting the Mayo link, which I dad to compare it to my own experiences nearly two years ago. My extreme episodes of breathlessness while out walking and light-headed ness ( which I blamed on pandemic anxiety) led me to 30 days wearing a Holter monitor, which reported to my physician that I was having partial “blockages” — actually electrical issues within my heart. After one episode where I had no beat for 4.5 seconds I was referred to a cardiologist who sent me immediately to ER and subsequent admission for an emergency implantation of a two-wire pace-maker. When they could finally work me into the surgery schedule three (hospitalized) days later the actual surgery was under general anesthesia and only took 30 minutes. And I’ve been grateful for it ever since. I have about 9 yrs left on my battery. My advice is to be sure to schedule the procedure at a hospital that does high volumes of the surgery, where the doctors are very experienced. Good luck, all! 🙂

Jump to this post

@brightwood
At hospitals and clinics like Mayo and Cleveland Clinic the procedure is done at outpatient and not under general anesthesia.

I am on my 3rd one and all have been done as outpatient. I have a AICD/Pacemaker.

I agree with your recomendation to have your surgery done at an experienced facility with experienced EP and/or cardiologist doing the procedure.

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