Has anyone had their GFR drop 20 points in less than year?

@like2dance2 I see you have other health concerns, also.

Remember our eGFR can fluctuate when we are not adequately hydrated. Also, if the tests are done right after exercise, or we have changed medications. Have you taken a look at what is going on, and listed them down on paper? Taking that in to your next appointment with your nephrologist, ask him/her for their thoughts, and why they are not concerned. You deserve to have an answer.
Ginger

My eGFR went from low 50’s to 8, in a 6 month period. Now, with renal diet and tons of water, it is up to 16. My nephrologist monitors me quarterly. Ginger is right that
you deserve an answer!

@like2dance2 Both @gingerw and @maggieinfp have made excellent points. I had a nephrologist once who could care less about the eGFR creatinine test, but relied on the Cystatin C test instead. In a perfect world, she would want the two kidney function tests to be equal. The difference between your test is that it deals with body mass as opposed to the newer test of the cell structure of the kidney and body. There is a more definitive nuclear test that looks at each kidney and checks the function of each. You are probably are not at that stage yet. Having said that, Cystatin C may not be covered by your insurance company, and that is why many docs may not consider it. If you are at the Medicare age, it does. The trend of tests is your friend. More importantly, be your own advocate and drink plenty of water daily, and watch your daily sodium, phosphorus, and potassium levels. Of course, exercise plays a role as well. Lastly, MGUS is an immune deficiency disease and may or may not play a role. If you are not getting the answers you seek, then perhaps it is time to find another nephrologist.

Thank you all for your comments. My nephrologist has ordered a kidney biopsy. In addition to the decline in gfr in 3 months, my creatine albumin ratio has gone fron trace to 1498. At least if MGUS is involved I will know after biopsy, I hope.

What is mgus?

My eGRF dropped from 55 to 39 when I got the tick bite Anaplasmosis. After antibiotics my eGRF went back to 55.

Mgus is monoclonal gammopathy of undetermined significance.

Hi,
I have big drops over shorter periods but am able to push it back up to 90% within a few months with an extremely strick kidney friendly diet, not too plesant to follow with absolutely no deviation or pleasure. The I slowly go back to my usual diet, somewhat kidney friendly but mindful of other health requirments I have. I'll drop 15 points in three weeks if I allow myself to be medicated for other health issues. Even so called kidney friendly medication can drop my GFR significantly.
A combination of what you do and what you eat before blood tests affects your GFR. I try to do and eat the same things before testing and also try to be tested at the same time of day to keep some consistantcy to the results and I still fluctuate a little. You need to take a bigger picture approach and view your results over a longer period. While I'm dissapointed with drops, short term they tell me if I'm doing or taking something that my kidneys don't like. Long term gives me perspective on how I'm actually doing and I chart the decent. We all drop kidney function as we age. Now if a test comes back low I look at what may have caused it and try to rectify it, if possible.
I tried to freak out my Dr by exercising vigorously eating food that I shouldn't and taking medication that I know knocks my kidneys before testing, once. Dropped 35 points and freaked them out, just to prove my point. I no longer allow them to mitigate my health at their whim, I make the choices when required and will forgo medication to preserve kidney function when ever possible. Pain killers are a big no no with my kidneys. I'm now medicated with opioid based pain killers, but being addictive, I have to use them sparingly and only when the pain is insurmountable. I mean really serious pain, fortunately I have built a high pain threshold which helps me out mostly.
Cheers

My GFR declines about 2 points every 6 months. In 2014 I was at 60, today it's 22. I feel pretty good. The rest of my bloodwork is normal, sodium, potassium, protein etc etc, everything tested quarterly. I exercise, mainly walk. How do you feel at GFR 16?

Interestingly, the night of my post i got the call for a transplant😆. Doing well now. At the time my gfr was 16, I was always tired with no energy but didn't feel ill. It was the anemia which is a huge side effect of CKD. Also, a lot of muscle cramps (mainly cos i was taken off all supplements that helped)
I still walked and golfed a little.
Good Luck to you!