Is Camzyos effective long term?

Posted by par4rosy @par4rosy, Mar 9 8:45am

I was diagnosed with HCM a year ago by My cardiologist and got on
Camzyos 5mg in early December 2023.
Within a week I felt so much better; was walking faster, was much less tired, chest didn’t feel constricted and wasn’t breathless. I felt excellent.
But a few days ago all the old symptoms started to come back. So disappointing.
Wondering what my next steps should be?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

nbs | @nbs | Oct 22 5:45pm

In reply to @manuelpo "Thank you so much for all the information!" + (show)

I am happy to help any time. I am also lucky my doctor is with Washington University in St. Louis. They were and still are part of the research for our drug. Let's just hope that Social Security, therefore Medicare, still exists next year. Imagine trying to cover costs for Camzyos!!

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