Body vibrations when falling asleep or waking?

Posted by cricketlips @cricketlips, Jun 2, 2022

After many google searches for the reason I feel vibration in my head, shoulder and arm just before falling asleep and waking, I found nothing that satisfactorily explained it. Of course anxiety seems to be a common explanation but there was nothing specific enough to help me. I am currently reading Incognito by David Eagleman. It discusses the functioning of the brain as an organ. This morning, going through my routine to get ready for work, I thought of a way to understand the vibrations. Similar to the hypnic jerks we experience occasionally just before we fall asleep, I think the vibrations are intended to arouse me to stay vigilant. Which is the fight or flight mechanism in action. So there is the anxiety connection. Originating in the amygdala. I was thinking Parkinson's or MS but my symptoms don't indicate those conditions, thankfully. It seems counterintuitive to be anxious and sleeping at the same time but the brain can do that. The cerebral cortex sleeps but the life support systems of the brain must stay online, obviously. If you thought you were in danger, sleeping would put you at risk but at some point sleep becomes absolutely necessary. I think the vibrations I have been experiencing are caused by my sympathetic nervous system and not a neurologic disease. Thankfully !

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@exeter

I'm actually afraid, now, to take Temazepam because of the excessive frightening dreams, waking up at all hours of the night and then trying to fall asleep. I've been on it for so long. I was given Dalmane along with Elavil(both strong drugs) years ago. The pharmacy misunderstood the doctor and gave me Melloril (psychiatric drug) The internal tremors are rather new to me. I am unable to fall asleep without a sleeping pill and would be awake the entire night, so I'm in a difficult place.
I'd like to have a sleep study done while I TAKE the Temazepam so they can see what it does to my brain - but that won't happen. Sleep labs just look for RL or apnea.
I am making an appointment to see a sleep medicine doctor who helped my son. I just need someone to listen to me -- to understand. The doctor who fills my prescription has never met me and I have never met her. My former doctor left the area.

Thanks for your reply to me. You know what I have been going through. Few people know.

Take care, Benzo Buddy.
Philomena

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I would definitely discuss the Temazepam with your physician as they may want you to gradually reduce the dosage rather than just stopping the drug cold turkey. You may also wish to discuss with your pharmacist on how this drug can effect one after so many years of being on it, they seem to know these medications and side effects etc. better than physicians. But the fact is, after so many years the body becomes dependent on benzo's therefore the reason to ease off over time if you decide to quit taking this medication.

Best to you and I hope sleep returns. It is frustrating for sure.

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@arthur57

I would definitely discuss the Temazepam with your physician as they may want you to gradually reduce the dosage rather than just stopping the drug cold turkey. You may also wish to discuss with your pharmacist on how this drug can effect one after so many years of being on it, they seem to know these medications and side effects etc. better than physicians. But the fact is, after so many years the body becomes dependent on benzo's therefore the reason to ease off over time if you decide to quit taking this medication.

Best to you and I hope sleep returns. It is frustrating for sure.

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Unfortunately, my physician knows little about sleep medication, or insomnia. I'm in the process now of, hopefully, getting an appointment with a sleep psychologist. In 1973, I went to Dartmouth Medical Center where Dr. Hauri was one of only 8 doctors in the US who did sleep studies. He later was the head of the Sleep Medicine Center at Mayo. This new sleep doctor I hope to see attended Dartmouth Medical which is now a large facility. In 1973, It was just Dr. Hauri and an assistant. Hauri asked that my husband go with me to my appointment; he believed the spouse should understand what having insomnia entails. Then my husband left and I spent two nights in the lab and he also tested me for my ability to relax (not good). He sent me home with Dalmane and Elavil, two strong medications. Dr. Hauri was Dutch and had an accent. He phoned in the medication to the pharmacy but the pharmacy gave me Mellaril instead -- a drug for schitzophrenia! Thankfully, after taking one pill and calling Hauri because of the horrible effect on me, I didn't take a second pill. But I've been on meds since then.
Later, Hauri promoted cognitive behavior rather than drugs. He was truly a pioneer in the sleep industry.
I had an amazing internist (now retired) but he wanted nothing to do with sleeping pills and I always had to rely on a sleep center.
My sleeping pill prescriptions are filled by an NP who has never met me.
It's why I'm looking forward to meeting a bonafide sleep medicine neurologist with whom I can have a conversation about what goes on with me. I don't know how I can taper off a capsule.
Tonight, I'm going to try taking an OTC aid to see if that might help (I doubt it). I think I would need to go to a drug rehab center since I am addicted to benzos.
I definitely need help and hope i will be able to get an appointment with the neurologist soon.
Thanks again, for your help.

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@cielos

Hello I'm almost 16, I just woke up from a bad dream that vividly sent vibrations to my entire body and to be honest it scares me. This is the 2nd night of me experiencing it. It started yesterday, in which the dreams were both mentally tiring as it involved me being un-alived, it felt real and I'm assuming that my body responded to it as something that was actually happening and activated my fight or flight senses. I've read articles regarding to this feeling of realness of dreams as the REM Sleep or Rapid Eye Movement, and according to most of the articles, stress and anxiety is two of the closest symptoms that I can apply to myself as a 1st year STEM strand student (I have been cramming a ton to go after dues, also meant losing hours of sleep as I have morning classes). I came across this forum in hopes to find a probable answer as to why these scary dreams are sending vibrations to my body, this is also an interesting topic for research so it would be my pleasure to look out for new updates regarding this matter.

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Usually, I have vivid dreams, but last night my dream dragged on and involved a story that was borderline sci-fi and a bit horror -like. I woke up when I dreamed that that danger affected me personally, and I was relieved it was only a dream. I was therefore already awake, but in my first seconds of consciousness, laying on my back, when - for the very first time in my life, I felt a gentle but very clear vibration in my upper torso and my upper arms. I observed it for some seconds semi-alarmed, semi-curious... I even began to wonder if maybe there was a distant earthquake that my body was picking up. I then forced myself to stretch, and that helped to stop the shaking. Immediately afterwards, I turned to Google to search for this unusual symptom, which led me to this page.... Apologies for my English, I am not a native speaker...

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@wooboodooboo

Usually, I have vivid dreams, but last night my dream dragged on and involved a story that was borderline sci-fi and a bit horror -like. I woke up when I dreamed that that danger affected me personally, and I was relieved it was only a dream. I was therefore already awake, but in my first seconds of consciousness, laying on my back, when - for the very first time in my life, I felt a gentle but very clear vibration in my upper torso and my upper arms. I observed it for some seconds semi-alarmed, semi-curious... I even began to wonder if maybe there was a distant earthquake that my body was picking up. I then forced myself to stretch, and that helped to stop the shaking. Immediately afterwards, I turned to Google to search for this unusual symptom, which led me to this page.... Apologies for my English, I am not a native speaker...

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I have been having the vibrations for couple of years now. No bad side affects. I do notice that if I am startled wake they are much more intense so I figure adrenaline plays a role. You may be having some that are so faint you haven't even noticed them before. Mine were pretty intense and stressing me out until I realized mine were harmless. Once I relaxed and started to ignore them they are very mild now. Hope this helps.

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@edornton

I have been having the vibrations for couple of years now. No bad side affects. I do notice that if I am startled wake they are much more intense so I figure adrenaline plays a role. You may be having some that are so faint you haven't even noticed them before. Mine were pretty intense and stressing me out until I realized mine were harmless. Once I relaxed and started to ignore them they are very mild now. Hope this helps.

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does it increase on small physical effort, like turning around,stretching,
sitting up, moving arms or legs

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For me they go away almost immediately if I wake up all the way. And yes then stretching and moving helps. This is great in the morning. But at night when I feel them when I am starting to fall to sleep if I wake myself up to get rid of them it means that I will have to try to fall asleep again and they will be back. So vicious cycle. That's why now when falling asleep and I feel them I do everything possible to remain calm. relaxed, ignore them and know they will be gone if I just go to sleep. Same thing if I wake up in the middle of the night...relax, go back to sleep. ( Of course in the beginning I got up terrified which only made them worse and couldn't get back to sleep very well.) We are all a little different in our experience but I hope this helps. I am in excellent healthy, no medications, and anything else to explain why it happens.

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@edornton

For me they go away almost immediately if I wake up all the way. And yes then stretching and moving helps. This is great in the morning. But at night when I feel them when I am starting to fall to sleep if I wake myself up to get rid of them it means that I will have to try to fall asleep again and they will be back. So vicious cycle. That's why now when falling asleep and I feel them I do everything possible to remain calm. relaxed, ignore them and know they will be gone if I just go to sleep. Same thing if I wake up in the middle of the night...relax, go back to sleep. ( Of course in the beginning I got up terrified which only made them worse and couldn't get back to sleep very well.) We are all a little different in our experience but I hope this helps. I am in excellent healthy, no medications, and anything else to explain why it happens.

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yes, falling asleep again is a problem.

But I noticed a vibration increase on activity first randomly and then did
several tests and it was confirmed, so I'm pretty sure.
I also experimented with ECG and stethoscope and medication despite the
falling-asleep-again-problem. I just wanted to know what it is, what caused it.

Over the time I found many people with vibrations in internet
but they were all somehow different.

I also had the almosr instant disappearance within 10-20 seconds after full consciousness.

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The last 2 nights I’ve woken to my hands shaking on the inside. Internal tremors- vibrations of sorts but not pins and needles like they’re asleep. It didn’t last long, maybe 30 seconds.
The second time I woke up with hands vibrating/internally tremoring while hallucinating confetti on the wall-
That said…
I suffer from the hypnagogic and hypmopomic hallucinations (for years now). The vibration feeling is new. I have no other significant unexplained symptoms. I’ll keep monitoring it and see if they continue or get worse. Hoping it resolves on its own.

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@edornton

I have been having the vibrations for couple of years now. No bad side affects. I do notice that if I am startled wake they are much more intense so I figure adrenaline plays a role. You may be having some that are so faint you haven't even noticed them before. Mine were pretty intense and stressing me out until I realized mine were harmless. Once I relaxed and started to ignore them they are very mild now. Hope this helps.

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My pain management doctor just told me my internal vibrations are caused by a nerve being pinched. My whole spine was vibrating down to my tailbone once and he said, after a second MRI in 4 years, that bulging discs and the nerve being pinched are why my thighs get numb if I stand too long. I've read about vibrations being caused by different things. Some complain it started after covid shot or covid episode but I had neither one so no common factor there. There has to be something that links them all together. I do wish someone would do an indepth clinical study because they drive me crazy. They had stopped for about 4 months but started back. It's like I swallowed a cell phone on vibrate. Mine also is limited to my torso area, from hips to chest. I've read other people have them in their feet, hands, head. Makes me wonder if it's nerve related.

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I am a 57yr female, gluten sensitive (not celiacs) and healthy, active! The only medication I take (besides vitamin D) is hormone replacement therapy (estrogen and progesterone). I self diagnosed myself with internal vibrations this past summer. Happens a few times per week, only upon first waking (as I'm coming out of sleep), lasts about 20-30 seconds each time. My PCP, CARD, GYN, RHEUM had never heard of internal vibrations but now agree with my self-diagnosis. My bloodwork is all normal, sleep test normal, heart normal, cortisol normal, anxiety (10 day Ativan test) normal, stopped my hormone replacement therapy for a month but still had the vibrations. Had COVID 3 years ago, haven't been sick since. Neurologist seems perplexed and has ordered an upcoming MRI. I'm not interested in taking a medication to alleviate a problem (internal vibrations) if there is no diagnosis, unless I know the problem is hurting me somehow. I'm looking for a recommendation for a doctor that has actually heard of this/studied it/can help me get to a diagnosis or cause. Any suggestions?

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