Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Were you able to find anything that helped? Looking for something,anything, that might help...witch doctors included. lol.
The only help I get are from using oxycodone, which usually just takes the edge off the pain, bed rest, and physical therapy, which many times actually aggravated my situation. So far, mostly half-baked solutions.
I hear you loud and clear. Injections, nerve ablations,PT, pain pump… virtually no effect. I thought that since my old SCS helped for a while, newer, more advanced one should help. We’ll, four days into the trial and nothing, zippo, nada. Tramadol, gabapentin, diclofenac barely do anything.
Hope you find some help.
Hope you do too. Chronic pain seems almost impossible to treat.
I never thought in a million years that I would be going through all this at age 70+.
I'm Cynthia. I don't know where to even start. I started having trouble getting up off the floor. I was stuck on the bathroom floor and had to call my next door neighbor to come get me I couldn't get up at all. So we went to emergency in January because my legs hurt so bad I couldn't walk I was falling down I was screaming I was crying. So the doctor came in listened to me and said, "Oh hey, that's an easy fix!" Wow! Really! He brings me a small Dixie cup with an orange flavored drink...potassium drink. So I drank it. Then he left the room and came back with three other doctors. He says, "well your room is ready. You can stay here or you can go home it's up to you." I'm thinking hmm this is pretty neat I think I'll stay. Then he says to me, "the room is ready, they're waiting for you." I said what are we going to do? He says "brain surgery!" I thought he was joking. So immediately I'm wheeled into the surgery room and they did brain surgery. He said I had old blood and New blood pooling on my brain and that if I didn't come in there when I did I'd probably have a stroke.
I was in rehab for 3 weeks or 4 weeks and left the hospital in a wheelchair. I'm still in the wheelchair. I haven't been diagnosed why my legs don't work and they hurt so bad it's excruciating. The muscles and the tendons contract and then I can't move and it hurts so effing bad. The primary care doctor gave me anti-inflammatory pills and some anti-inflammatory gel and some tramadol which none of the above helps with the pain. I'm not sure there's anything that can help the pain. I was diagnosed with kidney cancer about a year ago and I'm going to have the procedure done in about a week or two. Then my breast implant ruptured so I have to have those removed. And my orthopedic surgeon will be scheduling hip replacement on both hips. Meanwhile I need help I can't do anything and I dread having to go anywhere. I can't wash dishes, I can't do my laundry, I can't grocery shop I can't cook I can't do anything. I barely get out of my chair to get to the toilet. It's aggravating. Sometimes I get stuck for hours literally and I can't move I can't get from the kitchen to my bedroom takes about 2 hours. My legs and my ankles swell. I've tried everything and I get no relief I can't even sit in the wheelchair anymore it hurts it hurts it hurts. I cry every day! I'm bone on bone with the hips and that's understandable but what's all the other stuff going on in my legs what's that called? Soon as I move it sounds like I have rocks in my pocket, like pop rocks. Sometimes it bangs so bad it knocks me over and of course I scream very loud. (Not sure my neighbors can hear me.) This kind of pain should be illegal. Aqua therapy while I was in the pool helped a little bit but soon as I emerge from the pool it's back to pain. Does anybody else have that banging that popping sound in their legs with that kind of pain?
Please stay strong and welcome.
Well, I met with the Boston Scientific rep this am to get my SCS reprogammed. IAs mentioned previously, I had not received any pain relief after four days. So, after going through quite a few manipulations on her tablet, I finally got a program that is actually giving me some relief. Amazing! My buttocks don't hurt as much while I am sitting here; my feet still have some pain, but not nearly as much as before. As Yogi once said, "It ain't over til it's over". Now I have to contemplate the permanent implant. Definitely raising this up in prayer.
I hope everyone has a blessed day!
This is interesting. i struggled with my rep with Boston Scientific trying to get my implant to work properly. I was finally anle to get a Wonderful gal closer to my home. Turns out the original rep had hooked my legs up backwards. It was very frustrating. He also made an appointment with me and left brcause he forgot about it. Fortunately the hospital was able to reach him by ohone and he came back but did nothing to help me. I had issues for 7 months. I love the implant now.
Hi.
My name is Maria, 44 yrs old from Norway.
I've been having chronic pain for the last 24 yrs, mostly in my back but now my neck.
Was in a coma for 3 weeks because of Necrotising fascitis on my neck so was a long hospital stay. My back didn't like being in a coma so now I've got neuropathic pain down both my legs and my left arm.
But at least I'm alive, not bad when the mortality rate is 20%.
I've also got a very slow metabolism of CYP 2D6 so no opiates for me.
Ibuprofen and paracetamol are the only "pain relieving* medication I get, except for Cymbalta and Lyrica combined, which is starting to lose its effect.
I don't know what I'm going to if I don't get any proper help soon!
Fortunately I'm already on disability pension so don't have to worry about work.
Ive had surgery on my vagina because of abnormal cells, my last HPV vaccine is in February but here you have to pay for it yourself and it's expensive!!
Hospital in November to talk about a possible back surgery, fingers crossed.
On top of everything I've also got borderline personality disorder and bipolar 2 alongside endometriosis and fibromyalgia and inflammation of the outer thigh muscles on both sides, both hips.
This was a little medical introduction of me, the Norwegian woman .
Thank you all.